Advanced Brain Cancer: Tissue Freezing

Helen Maguire Excerpts

Wednesday 7th January 2026 Westminster Hall

[Helen Maguire (Epsom and Ewell) (LD)]

It is a pleasure to serve under your chairship, Mr Western. I thank the hon. Member for Caerphilly (Chris Evans) for securing this very important debate on equitable access to tissue freezing for brain cancer patients.

My constituent’s son was first diagnosed at the age of 10 with a very rare brain tumour. When he should have been playing with friends and going to school, he underwent surgery and intense radiotherapy. After treatment, he returned to normality, but 13 years later the tumour recurred and he received the same treatment. Earlier this year, when he was 28 years old, and just three and a half years after his last treatment, the tumour was back again. Further radiotherapy was not safe, so he underwent six months of chemotherapy. His mum told me about the devastation of undergoing chemotherapy, knowing that it was never going to be a cure and that the tumour is expected to recur. In the 18 years that he has been living with the diagnosis and undergoing treatment, there has been no progress in treatment options, and a cure has not been found. Sadly, my constituent’s son is not alone; every year, 13,000 people are diagnosed with this brutal condition.

Like many people, I was struck by the story of Owain, who was diagnosed with a 14 cm grade 4 brain tumour in his right frontal lobe. Similar to my constituent’s son, Owain was told that the standard treatment of radiotherapy and chemotherapy could only hold the tumour back for a period of time, until he sadly died.

Owain’s campaign is now run in his memory by his brilliant wife Ellie, who is here today in the Public Gallery. The campaign has exposed the lack of communication, clarity and consistency in brain tissue freezing. Fresh tissue freezing can help to deliver personalised treatment, research and diagnostics, but across the country there is unequal access to it. Brain cancers are difficult enough to tackle. Even when tumours are surgically removed, cancer cells have already infiltrated the brain, often causing a tumour to regrow, sometimes within just a few months.

We know that current drug treatments struggle to have an impact on tumour mass and that radiotherapy can only delay recurrence. Consistent access to brain tumour storage across the country could help to save future lives and improve outcomes for existing patients. A recent study by specialists from the department of neurosurgery at King’s College hospital and Guy’s cancer centre aims to implement a robust pathway whereby tumour tissue can be stored as a fresh frozen sample. Their report concluded that although the implementation of this pathway appeared to be straightforward, the limiting factor was the need for a fridge. There were also difficulties in liaising with the multiple teams involved, which was very time consuming, and disagreements about who should fund the freezer.

Such concerns have been reflected by the charity Brain Tumour Research, which highlighted the variations in the basic infrastructure needed to support brain tissue freezing. The Tessa Jowell Brain Cancer Mission has also noted the numerous barriers to genome sequencing, which requires tissue freezing to enable precise diagnosis, prognosis and tailored treatments.

Therefore, we are not struggling with unknown barriers. The solutions are right in front of us. When battling brain cancer, every day counts. Because of the lack of communication with Owain, there was not enough tissue frozen appropriately to create the vaccines needed to help tackle his tumour. Now his young daughter Amelia must grapple with life without dad.

The Government have an opportunity to finally make a real difference to the thousands of people affected by brain cancer, by ending the postcode lottery of cancer treatments. The Conservatives spent 14 years failing to make any progress on improving cancer outcomes, and now it is time for action. The Liberal Democrats urge the Government to pay close attention to the specific difficulties facing brain cancer patients in the delayed national cancer plan. This includes setting out tangible improvements for brain cancer patients and equitable access to tissue freezing. We also cannot ignore that quick access to treatment saves lives, which is why I once again call on the Government to make sure that 100% of patients start treatment within 62 days of urgent referral.

There can be no more families torn apart, left in the dark or blocked from possible treatments. With the UK lagging severely behind our peers on cancer outcomes, it is time for this Government to turn around the Conservative Government’s failure to improve cancer outcomes, and finally to place the UK as a global leader in cancer research and outcomes.