Career Breaks: Parents of Seriously Ill Children

Helen Maguire Excerpts

Monday 3rd February 2025 Westminster Hall

[Robbie Moore]

The hon. Member must have read my speech, because I will come later to the importance of all employers and employees being aware of the rights that already exist. There are a number of protection measures out there. The challenge is that employers and employees do not necessarily know what support is available.

Through the survey conducted by the Petitions Committee, we can see, as in Christina’s case, that when an employer is less flexible—or outright unhelpful, as we have seen in certain circumstances—things quickly get worse. Some 99% of respondents believed that employers should be required to provide career breaks for parents of terminally ill children. What Christina and thousands of other people are calling out for is statutory reassurance that, as soon as they are able to go back to work, the job will be available for them, at least for a limited period.

That reassurance—that as soon as treatment is complete, life can go back to normal—is hugely important for the parents’ mental health and to help them plan their future financial situation. Many families can afford to take a short-term hit to care for their child, although not all can, and they cannot do so without a guaranteed time period within which they can get back into the workplace at the end of that employment break. That is why I reiterate the importance of the petition.

The key point about reassurance was raised with me by It’s Never You, a charity run by two individuals who care deeply about the issue because they suffered the tragic loss of their own child from the terrible illness of cancer in 2021. When I met them, they passionately explained that getting support in place from day one is a major issue. For the first 90 days after a child has been diagnosed with a terrible illness, parents have to go through an incredible amount of restructuring in their life, so having their employer’s support from day one is vital. As employers themselves, those individuals are all too aware of the burden that a statutory requirement for a career break would have on smaller businesses, but they correctly highlighted to me that the lack of any Government-directed standard or benchmark is a recipe for chaos—and, as has already been indicated, many employers and employees do not necessarily know what level of support is available when a child is diagnosed with a serious illness.

[Helen Maguire (Epsom and Ewell) (LD)]

We have heard so many stories of individuals who lost their jobs as a result of taking time off due to having seriously ill children, adding stress to an already unbearable situation. We have heard stories of good employers and not-so-good employers. Does the hon. Member agree that it is vital that we understand the extent of the situation, and that the Government should commission research into the number of families impacted each year? If we had more information, that would help us to determine the best solution.

[Robbie Moore]

I always agree that it is fine in this place for us to be designing guidance, regulations or indeed other legislation, but unless it practically works and has the positive impact it was designed to have, it benefits no one. More datasets and data collected and available to Government to help them make the right decisions is always welcome. I endorse the hon. Lady’s point.

Employers and their employees often struggle to come to an acceptable arrangement, as the group It’s Never You has indicated, so it is important that the Government outline the support that is already available to those employees and employers, whether that is a break or flexible working. We should also be encouraging businesses to think outside the box, as highlighted to me by the Rainbow Trust and the Chartered Institute of Personnel and Development when I was preparing for this debate. They told me that flexible working is vital; for the parent of a sick child with complex needs, it is so important that flexible working, or part-time work, can be put in place. But, as many employers said to me during my preparation for this debate, although good employers do as much as they can to facilitate the needs of a parent with a seriously ill child, not every job environment allows flexible working to take place. That has to be recognised.

One problem that was raised by all the parties I spoke to about this issue was just how long it can take for support, such as carer’s allowance, to kick in. Again, we come back to the crucial first 90 days, a period that is in part defined by how long it takes state aid to arrive. In those 90 days, parents can feel completely lost when it comes to knowing their rights and how they can use those rights to ease their situation. Businesses may be just as ignorant of the rights and support mechanisms actually available, and time spent researching that, once a challenge has been put to them by a parent with a seriously ill child, can delay support being put in place. I therefore urge the Government to ensure that, through the best means possible, employers are well equipped with the right amount of support, and that their rights and those of employees are laid out.

My first question, which I hope the Minister will be able to answer today, is: how will the Government ensure that employees are aware of their rights before a crisis is put before them; and how often are employers made aware of the obligations on them? Secondly, what work are the Government undertaking to ensure that support such as carer’s allowance is delivered as quickly as possible? For many families, their income can drop to zero overnight, and reaching the end of the first month can be the greatest challenge. With a doctor’s note or an employment record, it should not be difficult to determine the truth of an applicant’s status.

Finally, the key point, which has been reiterated throughout the evidence given to me in preparation for this debate, is that the most important change is about giving certainty to struggling families, to allow them to get through and recover quickly from these terrible ordeals. I hope the Minister will be able to confirm that the Government are looking at providing some clarity through statutory requirements for the provision of career breaks for parents of seriously ill children. We know from the work undertaken on neonatal complications that the Government are open to the concept, so what logical reason can there be for this support to end with an arbitrary cut-off, based on the age of the child?

I hope the Minister will listen carefully to the contributions that are made in this debate. I thank Christina and the more than 100,000 signatories who have provided support for this debate to happen in this House. I also thank everyone who contributed to the work of the Petitions Committee in preparation for this debate and those who responded to the survey undertaken by the Petitions Committee. I look forward to hearing hon. Members’ contributions to this debate.