Bereavement Charities

Gillian Keegan Excerpts

Tuesday 5th July 2022 Westminster Hall

[The Minister for Care and Mental Health (Gillian Keegan)]

Thank you very much, Mr Davies. It is also my first time —and a real pleasure—to serve under your chairmanship. I congratulate my hon. Friend the Member for North Devon (Selaine Saxby) on securing this important debate and using her voice to support a local charity and its role in helping people all the way through the pandemic. I also congratulate her on her role in getting broadband to so many of her constituents at such a vital time. I am sure they were very grateful.

It is vital that bereavement support is available and accessible to those who need it, when they need it. People who have been bereaved navigate their grief in different ways, as we have just heard in the moving testimony from the shadow Minister, the hon. Member for Tooting (Dr Allin-Khan), about the sad death of her father. I, too, would like to pass on my condolences at his untimely death. She threw herself into exercise, and some people can manage their grief in that way, with the support of loved ones—family and friends. Our role as Government is to signpost the options for support to help people through this journey, however they need that. Probably all of us have suffered a bereavement, and I understand how overwhelming the emotions associated with grief can be. From conversations with bereaved people, bereavement support organisations and my policy officials, I know that there is still more to do to overcome the stigma of grief.

As part of its “Time to grieve” campaign, Independent Age recently came to the Department of Health and Social Care to deliver to me an open letter about the importance of emotional support services. I was pleased to meet the representatives from Independent Age, as well as a number of bereaved people who had made the journey to the Department, in Victoria Street, to join them. It was deeply moving to hear their harrowing stories of loss and grief. They included people who had been, very sadly, bereaved by covid-19. I heard how much all the restrictions had impacted their ability to go through the difficult but normal mourning and grieving processes. I gained so much from that experience and the conversations that I had, and I would like to thank those people. I know that it was not easy for them to come. It took a great deal of time, and it took a great deal of strength to share their stories.

I know that many people still feel unable to speak up about their grief. We must encourage people to have conversations, whether that be with personal support networks or specialist bereavement support organisations, about their feelings and experiences. There is no quick fix for grief. But as a society, we can collectively tackle the stigma and make it easier for people to share their feelings and to seek the support that they need.

At the start of the covid-19 pandemic, the Government recognised the unparalleled circumstances and the need for additional bereavement support due to the increase in deaths. And as the pandemic progressed, we recognised that the restrictions on social contact that were in place to limit the spread of the virus disrupted the grieving process for many. That made it much more difficult to say goodbye and led to some people experiencing more complicated grief.

In 2020-21, as part of a wider package of mental health support, we provided more than £10 million of funding for mental health charities, including several bereavement support organisations. One organisation to benefit from that funding was the National Bereavement Partnership, which my hon. Friend the Member for North Devon has referred to in this afternoon’s debate. I know that the National Bereavement Partnership was able to achieve some invaluable outcomes with the funding. It bolstered its capacity to provide support for those suffering mental ill health and anxiety following a bereavement; and it was able to provide support through its helpline, a befriending programme, a signposting service and therapeutic interventions. I am truly grateful for all its hard work during this tough period.

Other organisations funded by the Government during this time were able to achieve some fantastic outcomes, such as increased signposting, online resources and training events, and increased capacity to run helplines and webchats. They were also able to advise people of something that perhaps not everyone knows: people can now self-refer for NHS talking therapies. If people go on to the NHS website and search for talking therapies, they can self-refer to get that support if required.

The wider fiscal and economic context meant that we were not able to extend the additional grant funding to bereavement support organisations beyond March 2021; it was for a specific period. Outside the extraordinary circumstances of the pandemic, bereavement support services are commissioned locally, based on the needs of the local population. We know, though, that in the past it was not always clear whether clinical commissioning groups or local authorities were responsible for providing or commissioning bereavement support. As a result, it could sometimes fall through the cracks. However, the establishment of integrated care systems, as of last Friday, in places across the country will help to improve collaboration among commissioners, local authorities and other partners. The integrated care system for Devon is now established, and I am sure that my hon. Friend the Member for North Devon will be meeting its representatives very shortly. She will be pleased to hear that we have added palliative care services to the list of services that an integrated care board must commission to ensure a consistent national approach and support commissioners in prioritising palliative and end-of-life care. To support that, NHS England will introduce new statutory guidance as well as technical guidance and tools, which will include bereavement support as part of a wider package of palliative and end-of-life care services.

I was interested to hear about the many achievements of Michaela Willis and how many people she has personally helped. It was sad to hear her powerful testimony that the National Bereavement Partnership has had an abundance of calls from those who have lost loved ones, including by suicide, and from people contemplating suicide as a result of personal loss. The NHS long-term plan has ensured that every local area has services for suicide bereavement support. By the end of the year, these services will proactively communicate with bereaved families within days of a sad death to offer their support. The Government can provide better support in other ways. For example, we know that fewer people from minority ethnic groups access bereavement support services, so we are working with the National Institute for Health and Care Research to commission research into the barriers that prevent minority ethnic groups from using these services. That bid is backed by at least £350,000, and we expect the findings of the research in 2024.

My hon. Friend the Member for North Devon said that many people may experience complex grief. We recognise that, and we are working with the National Institute for Health and Care Research on other areas relating to bereavement support, including prolonged grief disorder, on which further research could be commissioned. We will continue to work closely with the bereavement support sector on the matter. In June 2021, in response to the pandemic and the societal impact of the huge numbers of individuals and families suffering a bereavement, the UK Commission on Bereavement was established. Its remit is to explore issues and make recommendations to Government on how to support bereaved people better. Alongside launching calls for written and oral evidence from bereaved members of the public, the commission is informed by a lived experience advisory forum and is working with stakeholders in the sector via a steering group. I have met with the commission and I await the publication of its report in September. Knowing the extent to which its report is informed by the voices of the bereaved, I look forward to reading the findings and recommendations. I have made a commitment that the Government will formally respond to the commission’s report.

I have been actively engaging with a range of bereavement support stakeholders. Their main concern is the lack of join-up across Departments on areas that impact bereaved people. We have listened and acted to address that. I directed my officials to set up a cross-Government working group to discuss cross-cutting issues that relate to bereavement support, and I am pleased to say the working group first met earlier this year, with representatives from 10 Departments. The working group continues to meet on a regular basis and has met with the UK Commission on Bereavement to discuss its initial findings.

The pandemic has been the largest public health challenge in the past 100 years. Its legacy is clear: thousands of bereaved families are grieving the loss of a loved one. So bereavement will form a central component of the public inquiry into the Government’s handling of covid-19. As a Government, we are working with the bereavement sector to ensure that support is available for those who need it. We must break down the factors that create barriers to bereavement support, such as ethnicity. Our research with the NIHR will help us do that. I thank all those who have lost friends, families and loved ones and have shared their deeply personal experiences with me, either directly or through the UK Commission on Bereavement. To all bereavement support organisations, I want to say thank you. The services they provide are vital for their communities. I encourage bereavement support organisations to reach out to their local integrated care system to understand the support on offer and how they can help deliver bereavement services.

Finally, to my hon. Friend the Member for North Devon, I am truly sorry to hear about the loss of her grandmother—my condolences to her and her family. I, too, lost my grandmother, who was nearly as old at 96. I still have her as my screensaver on my phone. It cheers me up every time I switch my phone on. It is still very sad and a loss that is keenly felt. I thank my hon. Friend for her strength in bringing forward this important debate and championing her local charity. I hope that the information I have provided will be instructive, so that she can carry on those discussions with the integrated care system in Devon.