Infected Blood Inquiry and Compensation Framework

Debate between Florence Eshalomi and Peter Bottomley

Thursday 24th November 2022 Westminster Hall

[Florence Eshalomi (Vauxhall) (Lab/Co-op)]

I too pay tribute to my right hon. Friend the Member for Kingston upon Hull North (Dame Diana Johnson) and the Father of the House, the hon. Member for Worthing West (Sir Peter Bottomley), for securing this vital debate, and for fighting for justice for those affected by the contaminated blood scandal. All the Members who have made important contributions today campaign tirelessly to get affected constituents the justice that they deserve. I pay tribute to them all, and to Members who could not join us today, for keeping the pressure on the Government and delivering for the victims of the scandal.

My hon. Friend the Member for Llanelli (Dame Nia Griffith) highlighted that many people have been waiting for decades, and that over 300 children have died of AIDS. We must look at how we can help those children who are still living with the condition. The hon. Member for Central Ayrshire (Dr Whitford) highlighted her medical experience. The treatments that we have seen over the years, and being able to spot contaminated blood, are vital, but what about the people who were contaminated before those medical breakthroughs?

My hon. Friend the Member for Wirral West (Margaret Greenwood) highlighted her constituent’s case, and said that this is a long, upsetting and depressing process. We have to remember that people are still living with this mentally. They are suffering daily. Think about the toll that lockdown will have had on the mental health of these people. Every day that compensation is delayed is another day that they suffer.

The hon. Member for Southport (Damien Moore), and a number of other hon. Members, said that we must think about the carers: the people who cared for their family members and loved ones. Where is their voice, and where is the justice for them? No amount of money will change the fact that many people had to bury their children. We have to remember the children. That was highlighted eloquently by my hon. Friend the Member for Wansbeck (Ian Lavery), who passionately reminded us that, for all the statistics around the scandal, we are talking about people. We are talking about real lives, which continue to be impacted daily.

My hon. Friend the Member for Newport East (Jessica Morden) highlighted her work, and that of fantastic voluntary and charity groups that support the many families affected. Even within their financial constraints, they still do a fantastic job supporting many families up and down the country. I also pay tribute to those organisations and groups. The Haemophilia Society, the Hepatitis B Positive Trust, the Hepatitis C Trust, the Sickle Cell Society and the families of thousands of people up and down the country continue to raise awareness. They contributed to this inquiry, and have fought for justice over the past years and decades.

This is the first debate in which I have represented the Opposition Front Bench in this Chamber, but this is a topic in which I take a deep personal interest. My late mother suffered from sickle cell anaemia, and I am a sickle carrier. As a result of the disease, my mum required regular blood transfusions, which were vital to her. Without them, her life would have ended a lot earlier —she died when she was 60. The transfusions helped to ease her sickle pain, and ensured that she was able to see me and my sisters grow up, see her first grandchild, and live her life.

Today, vitally, all blood is screened to avoid the risk of the transmission of serious infection. I am pleased that that has helped more people come forward to give vital blood. Every so often, I get a ping from NHS Blood and Transplant—a call-out for people to come forward and give blood. It is vital that people give blood and know that that blood will be safe.

[Sir Peter Bottomley]

The hon. Lady is making an important point. It reminds me that it was only two weeks ago that, in the Jubilee Room around the corner, there was a plea for people, especially from ethnic minorities, to register to donate blood and, potentially, organs, as many do not need them all. I agree that it is critical that people be aware of the importance of being donors, and of the gift of donations.

[Florence Eshalomi]

I totally agree with the Father of the House; that is so important. As I say, every so often, we get the ping from NHS Blood. At that NHS blood donation event, we called for a bus in Parliament, so that we could get more people here, including parliamentarians, to give blood.

Thorough screening of blood has come alongside the emergence of synthetic clotting factors for haemophilia sufferers, which eliminates the risk of contaminants from important treatments. Together, these treatments have significantly improved the safety of blood treatments in the UK, and patients now have a low risk of contracting serious diseases such as hepatitis or HIV from blood. Sadly, treatments in the ’70s and ’80s put patients at unacceptable risk of contracting serious and life-threatening diseases. In the ’70s, people with bleeding disorders had transfusion treatment replaced with the new product factor concentrate, which was then produced by pooling and concentrating tens of thousands of donors’ blood. As the hon. Member for Central Ayrshire highlighted, just one sample was enough to contaminate the entire batch, and could risk infecting thousands of people; that caused significant concern.

The tragic result was that thousands with blood and bleeding disorders were infected with deadly diseases, which had and continue to have a significant impact on their lives. Without modern, effective treatment, diseases such as HIV were acutely fatal and came with horrific consequences. Heartbreakingly, many of those infected have not lived to see today’s debate and the prospect of proper justice at the end of this inquiry. My right hon. Friend the Member for Kingston upon Hull North highlighted that more than 3,000 people have died, and statistics from the Terrence Higgins Trust show that between the start of the inquiry in July 2017 and February 2022, some 419 infected people have died. While we await the conclusion of this report and inquiry, one person dies every four days. This is about the human element of the inquiry; every day that we delay this compensation is justice denied to those people.

The impact of the scandal goes beyond the immediate medical concerns. My hon. Friend the Member for Warrington North (Charlotte Nichols) highlighted the stigma. We must remember the stigma that those with HIV and AIDS suffered during the ’80s and ’90s. Disgraceful racist and homophobic stereotypes were widely perpetuated, and victims were persecuted and shunned for suffering from this horrific disease.

Diseases associated with contaminated blood often impact not just the immediate victim, but their families and friends. As the primary carer for my late mother, I remember some of the challenges in the late ’90s in making sure my mum got the right treatment when she was suffering. Many of the loved ones of the victims will have gone through similar challenges in trying to get the right treatment, and victims are often misunderstood and continue to be stigmatised for having a disease.

The inquiry is finally coming to a close, and interim payments have begun to be made. It would be remiss of me to pre-empt the recommendations of the inquiry. However, I hope that the Minister has heard loudly the concerns raised by a number of Members this afternoon, and those concerns raised in other debates. I hope that he can fully address some of those clear asks when he responds. As Dame Elizabeth Anionwu—the first ever sickle cell nurse—pointed out, it can be very hard for people suffering with infectious disease, including blood contamination, to come forward because of the stigma.

Sir Robert’s report was published on 7 June 2022 and made 19 clear recommendations. It is frankly disgraceful that only one of those recommendations has been followed up. Sir Brian acknowledged that there is a moral case for the interim payments to be made. I ask the Minister to respond to a number of those claims and ensure that the victims get the payments they deserve. We cannot ignore the impact on the families and friends of victims, who fought alongside them for this justice. Can the Minister provide assurances that those groups will not be ignored when the Government finally respond to the inquiry?

The contaminated blood scandal had a life-changing impact on tens of thousands of victims who were promised the hope of effective treatment. It can only be right that they see the justice they deserve as soon as possible.