(5 years, 7 months ago)
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Those quotes are breathtakingly horrific. My constituent gave birth in the late 1960s to Steven, who had severe abnormalities thanks to Primodos, and she then went on to conceive two healthy daughters. My constituent wanted to be pregnant, and she wanted a family.
My hon. Friend makes an excellent point. Time has not been a healer in this case. We need to understand what has happened and we need to get answers for the affected groups.
The quote from Dr Dean goes on:
“In view of these findings tentative though they are, it would be my own view that, since there is in any event no very sound medical reason (in my opinion) for the use of such hormonal preparations, Primodos should be withdrawn from use.”
To suggest that women going through the pain of dealing with a miscarriage had perhaps taken steps to terminate their pregnancies is nothing short of abhorrent, especially given that Dr Dean went on to suggest that Primodos should be withdrawn from use. That indicates that he did see a link between the drug and the miscarriages. Sadly, the suggestion was completely ignored.
Then there are the poor women whose babies had such severe health issues that they did not survive. Reports from those women include the following:
“1971: the words ‘Monster child’ were written on my medical notes. My baby was born alive. I was not allowed to see her. I was drugged. My baby was taken away. I never saw her again.
1971: Anencephaly. Stillborn 2 weeks early. No funeral allowed. Not allowed to name her. My daughter was put in a coffin with a stranger. Searched for 18 years to find where her remains had been left.
1973: I was 16. Just married and excited about my first baby. Just before my baby was born the doctor said my baby did not have a properly formed head. She had no skull and no brain and would die at birth. I was then heavily sedated and my waters broken. I tried to wake up when my baby was born and begged to see her. They refused as her birth defects were too distressing to see.”
I am sure we all agree that those reports are nothing short of heartbreaking. They are incredibly demeaning for the women involved.
To be put through the most horrendous of situations and made to suffer for all these years without answers has been like a life sentence for some, and those living with complex disabilities face an uncertain future without carers or financial support, should their loved ones die before them. If Primodos and other pregnancy hormone tests were to blame, the answers need to come now, and financial support needs to be given before it really is too late to help those living day to day with the effects of innocently taking a drug after putting their trust in clinicians and drug companies all those years ago.
On listening to stories from those affected and researching the issue, the greatest point that sticks with me is the uncertainty that surrounds all the reports that have been published—the lack of evidence used, the lack of research analysed, the lack of questions answered. I think 50 years is long enough for campaigners to wait. I hope that the Minister will today pledge that she will ensure an end to that wait, and that she will make sure that the findings of the latest review, when published, are acted on thoroughly and comprehensively.