(4 years, 8 months ago)
Commons ChamberCan the Secretary of State confirm that claimants will not face benefit sanctions if they miss appointments because they are choosing to self-isolate?
(4 years, 10 months ago)
Commons ChamberI think all of us here have had those moments when the injustice of what we see continues to haunt us ever afterwards. Last October, I had such an experience when I visited the vascular service at Hull Royal Infirmary and spoke to NHS staff as well as amputee patients with vascular disease and their families. Hon. Members may not know much about vascular disease, so forgive me while I explain briefly. This disease results from the build-up of fatty deposits in people’s arteries, which interrupts the flow of blood around the body. Vascular disease in the legs causes pain and muscle wastage, and the dead leg tissue can leave unhealable wounds that become ulcerous. My horror at learning about the pain suffered by patients of vascular disease, as the tissue in their legs slowly dies through lack of oxygenated blood, cannot be understated. When I was younger, someone very close to me suffered from the same disease and an amputation, and I grew up seeing not only their suffering, but that of their loved ones and family around them.
During my visit to the hospital I was shown images of foot ulcers, and the surgeon explained, in a phrase that has stayed in my mind ever since, that “time is tissue”, and that the development of a foot ulcer from something so small into something that requires amputation can be as short as 48 hours. My horror only increased when I learned of the north-south divide, with major amputation rates being 30% higher in the north of England than the south. The situation in Hull is even worse. Overall, people in Hull are 46% more likely to need a major amputation, and 16% more likely to need a partial amputation, compared with the all-England average.
Staff at Hull Royal Infirmary are incredible. They are hardworking and dedicated, and I am in awe of their work. I particularly wish to mention Dr Dan Carradice and the work done by his department on this disease. They are fighting vascular disease with their hands tied behind their backs. They are battling staffing shortages, increased demand for services and funding restraints, and all without the updated critical equipment and facilities that they need. It cannot be right that vascular disease patients who live in Scotland have access to more advanced equipment than people who live in England. We are at a critical juncture, and the Government need to take action quickly.
I therefore have two simple asks, the first of which goes to every Member of this Parliament. I am proud to be taking over from the hon. Member for St Ives (Derek Thomas) as chair of the all-party group on vascular and venous disease. I invite Members from across the House to join that all-party group, and to find out about the disease and how it impacts on their constituents. Together we can make the strongest possible case to the Government for more funding, and a better staffing plan to deal with this crisis.
Secondly, will the Minister meet me and Dr Dan Carradice to discuss the particular challenges at Hull Royal Infirmary, and the workforce requirements, equipment and funding that are needed to prevent the crisis in vascular disease from becoming even deeper? The Government must make this an urgent priority because as the doctor said, time is tissue, and we must act before it is too late.
(5 years ago)
Commons ChamberI am sorry, but we have way overrun. Demand exceeds supply on these occasions—by the way, that is true in the health service under Governments of both colours—but we will take one more question.
I was very distressed to learn last week that a higher than average number of people in Hull are having foot amputations, partly because of diabetic foot ulcers and despite excellent work by the vascular department. The message from that department is that it is underfunded, under-resourced and in desperate need of an infrastructure upgrade to its theatre. Time is running out, so instead of asking the Secretary of State to meet me, will he just act very quickly to give it the funding it needs to stop unnecessary amputations happening in Hull?
We have the largest infrastructure investment programme in a generation and I am very happy to look at the specific request from Hull to ensure it gets the infrastructure it needs.
(5 years, 1 month ago)
Commons ChamberMy hon. Friend is absolutely right. Imperial College Healthcare NHS Trust has one of the worst maintenance backlogs of all trusts. I congratulate him and Labour-controlled Hammersmith and Fulham Borough Council on leading the campaign to save Charing Cross Hospital; it is because of the pressure he exerted that it was saved.
My hon. Friend may be aware that, just today, the Education Committee published its report on children with special educational needs and disabilities. One of our findings was that the staff shortages are having a serious impact on those children, because the plans that are drawn up for them are now being drawn up on the basis of what is rationed and what is available, rather than on the basis of what they actually need. Does he agree that there should be a review of therapy services around the country, so that we can ensure that, wherever a child lives, it gets the support it needs?
My hon. Friend is absolutely right. She has brought home the extent of the impact of staff shortages on service delivery at every turn.
(5 years, 1 month ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
It is a pleasure to serve under your chairmanship, Sir Charles.
I think we all accept that there is an ever-increasing demand for social care. In fact, when I was looking at data for this speech, I found out that 5,000 people a day are trying to access social care, according to NHS Digital. However, we sometimes forget the human being behind the figures, and although I was not going to use this story in my speech, it has stayed with me, and I want to share it with Members.
A couple of weeks ago, I knocked on a family’s door. I was talking to the woman there, and she told me about her sister. She was really keen for me to read some research about why adults with learning difficulties die earlier than adults without, when there is no physical reason for that to happen. She told me that, despite being the younger sister, she had helped her older sister to learn how to speak and that, when she was younger, she had helped to look after her. She used to visit her, and they were very close, despite the fact that her sister had numerous learning difficulties.
Two years ago, however, the sister died, at the age of 51. The woman was clearly still very upset. She said her sister had died because there was no reason for her to get up any more. There was no reason for her to get out of bed; there was nothing for her to do. She said that her sister had been involved years ago in volunteer work placements, and that she would get really excited when she earned her money and was given a bit of a wage at the end of the day—she felt like she had a reason to get up. The woman told me there used to be activity co-ordinators in the care homes, who went in and did work and activities such as gardening and all sorts of other things. However, over the past few years, everything has gone. She said there was no reason for her sister to want to be alive, so she stayed in bed. Her condition degenerated, and she developed serious health conditions, which resulted in her passing away at only the age of 51.
We sometimes forget about those things. We talk about care, and we ask whether 15 minutes is enough to go and care for someone. It might be enough to stick a meal in the microwave, and it might be enough to give someone their medication, but is it enough to care? It feels like we have lost the caring from our caring system. We have lost the time to actually sit down and be with each other and to have that human contact and human care.
As automation increases, it feels like that human interaction could disappear even more. For example, there are fantastic new homes that are run by voice activation. People can tell them to open the curtains or the drawers. All these advances in technology are a reason to decrease the amount of human interaction, and I worry about that. I worry about where we are going as a society. We are replacing humans with automation, and we are replacing caring with just functioning. If feels like we have developed a system where people function but do not get cared for.
We need a fundamental rethink. The time for tinkering around the edges has definitely ended. I am obviously pleased with the Labour party’s proposals for free personal care. I hope we look at giving those free personal carers the time to care, and give the quality and status to carers, so that instead of their being dismissed as insignificant people on the minimum wage they are given that quality and status. We should view our carers in the same way as we view our nurses—as people giving a quality service and making a difference to our society.
It is time for us all to put the care back into caring, raise the status of the profession and give people the time they need, and I am very proud that that is exactly what the Labour party intends to do.
(5 years, 1 month ago)
Commons ChamberMy hon. Friend makes a good point. Local NHS trusts will be developing their plans and proposals on how they wish to see services modernised, but he is absolutely right and I am sure that they will have heard him, just as I have.
In 2003, the Labour Government opened Hull’s women and children’s hospital, which is where I had the “pleasure” of giving birth to my two children. However, the main Hull Royal Infirmary site is a 50-year-old tower block that is in need of serious investment, so it is a shame that the Government have not even attempted to match the previous Labour Government’s NHS investment in Hull. Can the Minister at least explain how he will fund the existing maintenance backlog?
The hon. Lady makes a good point. This Government will invest in our NHS without leaving it saddled with private finance initiative debt for many decades to come. However, she is absolutely right to highlight the need to manage a backlog of works, because many of the buildings are old and not entirely fit for purpose. This announcement represents a huge step forward in that, alongside the work that has already been set in train through the Naylor review of the management of NHS capital and property maintenance. I believe that we are making significant strides forward in that. If she wished to write to me about the specific issues with her hospital trust, I would be happy to respond to her on those as well.
(5 years, 4 months ago)
Commons ChamberThe hon. Lady asks a good question on behalf of her constituents. I cannot confirm today when that will happen, but I will look into the matter and write to her to make sure that she gets the answer.
One in 10 women have endometriosis. The average wait for diagnosis is seven and a half years and can be even longer in rural areas, and there is currently no test for it. Researchers at the University of Hull previously developed biomarkers for cancer testing and have recently developed a project to test for biomarkers in urine to help to identify endometriosis. They need £10,000 in seed funding to get the project off the ground; will the Minister please meet me to discuss how we can secure the funding?
The hon. Lady has invited me to meet her to discuss that funding. She will be pleased to hear that I will be delighted to do so.
(5 years, 5 months ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
One of the reasons why NICE was set up in the first place was to take politics out of drug development. We need to ensure that we have the balance right between the Government intervening and the clinicians—the people who can make their assessments without political interference—making their decision. None the less, we clearly must have a view.
One of the things that some people have suggested—I think it was intimated in an earlier intervention—is Crown use of patents, to allow the use of generic drugs and effectively remove patents from pharmaceutical companies. Obviously, that is in extremis. There is an inherent problem with the potential lack of investment in future research, should we start taking away patents from private companies.
The hon. Gentleman is making a very powerful speech, and I stand here today representing my constituents. Does he agree that when factoring in costs, NICE should also factor in the ongoing costs that not treating cystic fibrosis will bring? It needs to factor in the cost of the additional mental health treatment and other health treatments that will be needed, and possibly even the cost of lung transplants. This is not a simple comparison with the cost of treatment; other things need to be taken into account.
The hon. Lady has hit on a really crucial point. The underlying thing that I took away from my meeting with the people living with CF this morning was mental health, which ran through all their situations.
I heard from Oli Rayner, who talked about the fact that he is 43 and has dedicated his whole life to staying alive; he had effectively been told that he would not make 10 years. He was then told that he would not make 20, then 30. This is a guy who has now got cystic fibrosis-related diabetes and a number of other conditions. He has had a lung transplant, and he had Orkambi to get him to that stage. The fact is that his lungs are now doing what he wants them to do, without his having to think about it. We can imagine the mental issues that he had before.
Jessica Jones told me that people with CF are very good at living. Yvonne Hughes said she felt broken. One lady, Carly Beale, told me that she had been on the original Orkambi trial. The NHS had not prepared her for when Orkambi stopped at the end of the trial. She had suddenly improved and started to get her life back—perhaps a life that she had not had in the first place—and she was not ready to have it taken away from her. She said that it is almost worse that this drug exists but she cannot get access to it. She said, “I’d rather it didn’t exist than have it dangled in front of me in expectation.”
(5 years, 6 months ago)
Commons ChamberYes. It was brilliant to go to County Hospital in Stafford and see the hard work and team work and to be able to thank NHS staff both in Stafford and across the country working over the long weekend. My hon. Friend is a brilliant and diligent voice of Stafford. I have already stopped A&E closures in west London. I do not think that we should be seeing the closure of small A&E units, and I will work with him on the issue.
As the Minister is aware, I have become concerned about the rising number of suicides in my constituency. When I talk to professionals in the area, they tell me that it is not just funding that is causing some of the problems but the lack of staff. What more can the Minister do to ensure that we have the mental health staff that we desperately need?
I am grateful to the hon. Lady for raising that. She is right to do so. We are aware of some of the specific issues in her constituency, and I look forward to visiting and taking up some of the discussions directly.
(5 years, 10 months ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
She sounds fantastic—how lucky you are.
We are now in an age in which women can stand up in Parliament, as I do not think they could even as recently as 2010, when I was first elected, and talk about the cost of Tampax, smear tests, their sexual history—
And mesh, as my hon. Friend never stops reminding me. That is a good thing—a wonderful thing—and I am really proud to be part of it.
When I saw that this debate was taking place, I asked for the data for Darlington, because I wanted to see where we stood. I was anticipating the same thing I normally get when I compare health data for the north-east with the rest of the country, but I was pleasantly surprised: take-up is better in the north-east than in most places in the UK, which is a very interesting fact. Part of it, I think, is about the stability of communities and the ability to access services that are themselves stable. They do not tend to move around too much and GPs tend to serve for longer. Although there can be many problems with access to services, it appears that, in this regard at least, women in my constituency are availing themselves of the opportunity to get tested at a higher rate than women in other parts of the country. That is very welcome.
Looking at the data on Darlington, I notice that the participation rate among 25 to 49-year-olds is fairly steady at about 74% or 75%. The take-up among older women—those aged between 50 and 64—has gone down by 2% in the last year, which seems to be the case in other parts of the country as well. I welcome the discussion about testing young women under the age of 25, but we should be mindful that we might be sending the message to older women that they do not need to worry. Take-up is perhaps dropping off more quickly among older women than among those in other age groups due to embarrassment, indignity and all of that. At the risk of oversharing, the only smear test I have ever had—where I really did not care happened not long after I gave birth to my second child. That was not an issue at that point. However, I am mindful of the fact that older women are not taking part in the way we would wish. Some of that is obviously about the indignity, but also there is a lot of misinformation and misconception about cervical cancer.
I have heard it said that once a person is no longer as sexually active as they might have been earlier in their life, or does not change partners quite so often, they are somehow at less of a risk or no longer need to be so concerned about cervical cancer, and their need for a test is therefore reduced. I have heard people say that, if they are in a same-sex relationship, they do not need to have a cervical screening test. There seems to be an association between sexual activity and a risk of cervical cancer. I do not know where that has come from or why it persists—my hon. Friend the Member for Warrington North (Helen Jones) referred to it when she talked about vaccination. That kind of misconception seems to apply to older women as well. If the campaign mentioned by the hon. Member for Henley (John Howell) takes place, it is very important that they take the opportunity to get those messages right, too.
My hon. Friend the Member for Rotherham (Sarah Champion) made a very helpful point about women who have been victims of sexual abuse. They have a very special and entirely understandable concern that is not taken into account by the blunt approach that service providers can take. More thought needs to be given to that. Disabled people might have additional needs when accessing this test, and I am absolutely certain that not every setting will be able to cater for those needs in a way that enables a disabled woman to have the test with the dignity and sensitivity that we would all expect.
The declining participation in smear tests is a trend that should ring an alarm bell for Ministers, and I am sure it does. This is a red-flag dataset. It is great that we have the data—it is fantastic to debate something with clear information, and when we can see good-quality data over time and get a good idea of what is happening in different parts of the country. We must use that to nip this problem in the bud before it gets even worse. From people I have spoken to, access to this service is one of the principal reasons, along with all the other things that we have talked about, why women are not participating in increasing numbers and why we are seeing those numbers decline.
The GP patients’ survey last year found that 28% of patients found it “not easy” to make an appointment over the phone to see a nurse—up from just 19% in 2012. We have had many debates in this place on the difficulty in accessing GP services, which I know the Government will want to grapple with. It is affecting these women. A smear test is a very easy thing to want to put off. Someone might get round to making that phone call, but if it does not quite work the first time, it is tempting not to get round to it again for some weeks or probably months.
The work that Jo’s Cervical Cancer Trust has done is absolutely phenomenal—what a tremendous organisation. It is really impressive. Its data, stories and the way it puts those across in a manner that everybody can access and understand are fantastic. The trust found that one in eight women find it difficult or impossible to book an appointment for their smear test, which just cannot be right. It might be the case that women should be encouraged to access services not through a GP, but through a specialist clinic where they could access contraceptive services at the same time. That is now available in Darlington—it is also open in the evenings and is a very good service, which might be one of the reasons participation rates in my constituency are holding up relative to other areas of the country.
Obviously I take the point that the age of screening must relate to science, but I wonder whether this is a situation in which we might be able to prevent some of the misconceptions and anxieties about pain, which does not need to happen, or a lack of dignity, which there does not need to be if screening is done sensitively. Young women can have a good experience if they are encouraged to have a test at an early age. Perhaps we need to give some thought to positive early experiences of smear tests to increase participation rates among women over 25.
We need to consider an awful lot about access to the test and cervical cancer generally. This is an important part of it and I congratulate everybody who signed the petition and put it in front of us. We have an opportunity to do something that would make the lives of my constituents and everybody else’s so much better and safer. The Minister is listening and thinking hard, and I know he wants to do right by the people who signed the petition.
It is a pleasure to serve under your chairmanship, Sir Roger. I thank everybody who signed the petition and all the women who have come to listen to the debate. I know that getting down to London can be quite tricky—I say that because I come from Hull—so I thank them all for coming.
I agree that having a smear test is not pleasant, but I think that we would all agree that it is crucial. While we are in a sharing mood, I will share a little bit with you all as well. I too had abnormal smear tests and was found to have pre-cancerous cells when I was in my early 20s. I had just finished university and decided to move to Leeds to spend time with my sister. It was fine, because I had the biopsy and—they had to remove the cells—went through the various bits and pieces of the operation. Since then I have been on a yearly recall, so I have had so many smear tests. Every time I ask whether I still need to be on a yearly recall, they say, “We’ll let you know,” and then the following year I have to go back. I am due to go back again, so this debate has prompted me to pick up the phone and arrange that.
I did not take my mum with me to that procedure, because unfortunately she was unable to come, so I took my sister, who is five years younger than me —I was only about 21 or 22. The experience of coming in to watch terrified her; she was there to offer me moral support, but I found myself reassuring her throughout my operation, saying. “Don’t worry; it’s fine. I’m perfectly okay.” I think that we should be a bit more open and honest about these things.
We should also do the brilliant thing that we all do when we get a little embarrassed: laugh about it, because it can actually be quite comical. As I said, I have had so many smear tests, and when my friends are worried about them, I joke about the ridiculous, small piece of blue towel that is meant to preserve our modesty. The midriff is hidden by the piece of blue towel while all the rest is exposed to the world—that is funny. It was also quite funny when, not long after being elected, I was lying there and someone asked, “Are you our local MP?” I said, “Oh, yes. I am.” We then proceeded to have a conversation about how I was finding life at Westminster. I said, “Well, slightly more comfortable than this, thank you very much!” We should find those things funny and we should laugh.
While I am in the sharing mood, I have a little tip for all the women out there. If, like me, they suffer from a hidden cervix—apparently mine is quite shy—a towel or cushion under the bottom lifts it up so it comes into view. That is a little bit of health advice while I am here.
In all seriousness, there is a growing problem. In Hull, the figure for women having smear tests has dropped to only 73.1%—that is a huge fall. The figure is slightly higher in East Riding, at around 78%, but that is nowhere near the 80% for which the NHS is aiming. I echo the words of all hon. Friends and hon. Members who have spoken when I say that the Government need to conduct some kind of survey to find out why. Is the problem, as my hon. Friend the Member for Warrington North (Helen Jones) said, that women associate smear tests with sexual activity? Do they think that they have no need for one? Do their working hours mean that they are not able to attend tests? Let us find out and make life that bit easier for all of them.
We know, when looking at the NHS cure rates, that 92% of those whose cancer was detected are cured. That is wonderful. I cannot possibly say what would have happened to me had mine not been removed—I do not know. I am here today, all is well, and I will book my next smear test. Some 66% of all those diagnosed after developing symptoms are also cured. We need to do more to push that message out to people and get rid of the myths. I absolutely support what my hon. Friend the Member for City of Chester (Christian Matheson) said in his beautiful speech about the importance of reducing the age to 18 under a doctor’s advice.
I have been involved in a campaign for teaching menstrual wellbeing in schools, on the education side of the issue, because I am not sure that everybody understands what the abnormal signs or symptoms are. I became involved in the campaign through my support for the charity Endometriosis UK, but I think that removing the taboo around periods, smear tests and so on would also help a lot of people. We must start talking in schools about menstrual wellbeing, what normal and abnormal periods are, and what normal and abnormal symptoms are. If we start to have that conversation, we will give people the language and ability to talk about the matter without feeling really shy and saying, “I’ve got a problem with my—I can’t say the word.”
We should be able to talk about it, which reminds me of a brilliant story. When I was doing a radio show for my campaign on vaginal mesh, I spoke to the show’s producer before I was due to speak live. He said, “We’re very supportive of the campaign, but it’s a breakfast show, Emma, so could you not say the word ‘vagina’?” I therefore spent the entire interview talking about problems with “mesh” that was “in” women’s bodies. We need to dispel all of that nonsense and shyness and start being a little more open, and I implore the Minister to work with the Schools Minister in support of my call for menstrual wellbeing to be taught in schools.
I absolutely agree with the hon. Lady about how, for some reason, we cannot talk about parts of our bodies at that time in the morning. In the same way, I still find it incredible that adverts for sanitary products depict women’s period blood as being blue rather than red. I do not know about anyone else, but I have never bled blue in my life.
Perhaps that is the royal family only. The hon. Lady is absolutely right. For years I was convinced that if we used Tampax, it would suddenly make us fitter, more active and able to roller-skate—[Laughter.] Sorry, we are descending into farce.
On a serious note, I ask the Minister, please, to look at what my hon. Friend the Member for Warrington North said about lowering the age to 18 when doctors give a recommendation. I also ask him to support my call for menstrual wellbeing to be taught in schools, and to have a wider survey into understanding why people are not attending tests, so that we can do something to change that for the future.