Independent Living Fund Recipients

Debate between Emily Thornberry and Nicholas Dakin

Wednesday 18th June 2014 Westminster Hall

[Nic Dakin]

My hon. Friend makes a good point. The Minister might well say that he is passing the moneys and the responsibility to local authorities—through the Welsh Assembly in Wales’s case—but that will not ease people’s fears.

[Emily Thornberry (Islington South and Finsbury) (Lab)]

Will my hon. Friend give way?

--- Later in debate ---

[Nic Dakin]

My hon. Friend is right. She speaks with a lot of experience and insight into the issue, which she has campaigned on for a long while. She is right that the other group of people who might find themselves under significant pressure are the family carers of those now in receipt of ILF.

The worry, as my hon. Friend has indicated, is that the continued underfunding of social care will mean that the care system will simply not be able to support disabled people to live independently. The lack of reference to independent living in the definition of the well-being principle in the Care Act 2014, which local authorities will need to take into account when providing care, further fuels that anxiety.

[Emily Thornberry]

Will my hon. Friend give way?

[Nic Dakin]

I happily give way to my hon. Friend.

[Emily Thornberry]

I am grateful to my hon. Friend for giving way. The point that I wanted to make is that, in Islington, 100 people are dependent on ILF. Although the local authority has undertaken to continue that support next year for those currently in receipt of ILF, the authority cannot give any guarantee that that funding will go on in future, in particular given that Islington council is facing 40% cuts over the year. Discretionary funding such as for independent living will be difficult to find.

[Nic Dakin]

My hon. Friend is right. Interestingly, we have cases coming in from all parts of the United Kingdom, which illustrate that the issue is deep-seated in all our communities.

Not only are people in receipt of ILF worried, but their friends, carers and families are too. The cases of two of my constituents illustrate that well. Ashley Harrison, for example, is a Scunthorpe United fan, like me cheering on the Iron at Glanford Park. At 10 months old, he was diagnosed with cerebral palsy; he will turn 30 this year. Ashley has lived in his own bungalow since 2006. The ILF allows him to employ his own team of carers. Ashley is an inspirational man, a fighter, but he is worried about the control over his future being taken away from him. His mother says:

“The closure of the ILF would be nothing less than devastating for us as a family. Since Ashley was awarded his ILF allowance the whole family’s lives have changed for the better. ILF understands Ashley’s needs and always do everything they can to constantly improve Ashley’s life and enable him to live independently.

As a family naturally all we have ever wanted is the best for Ashley, which the ILF has helped us achieve. The ILF has always seemed to be the leading and positive force at meetings ensuring that social services match and meet Ashley’s needs. Without the ILF we all face a very uncertain future. The uncertainty that Ashley faced in his early years prior to receiving his ILF award have been daunting, frustrating and of course a constant battle with social services.

The alleged ‘smooth transfer’ over to social services is already proving to be nothing of the sort. Each and every meeting we hold (which are incredibly frequent) leave us having to justify Ashley’s needs as a disabled person. The assessments they ask us to complete are totally unsuitable for the severely disabled.

All of the disabled people living independently with the help of ILF are living their lives to the full. The fear is that if ILF closes these people will lose their human rights and dignity to live their lives as they should.

As a mother who has fought the last 30 years for Ashley to have the life he wants and of course deserves, I dread to think what the next generation of disabled people will have to endure without the positive support of the ILF.

I beg you to listen to myself as a mother of a disabled son and also listen to all those disabled voices who deserve to be heard.

Give each and every person the ability to live and achieve their dreams just as you and I can.

The Paralympics just proves how amazing disabled people can be!”