Dementia: Covid-19

Elliot Colburn Excerpts

Thursday 12th November 2020 Westminster Hall

[Elliot Colburn (Carshalton and Wallington) (Con)]

It is a pleasure to serve under your chairmanship, Sir Graham. I add my thanks to the hon. Member for Oldham East and Saddleworth (Debbie Abrahams) for securing this debate. Its importance is exemplified by the fact that my postbag has also been full of requests from constituents asking me to come along—I am therefore very grateful to her for securing it—and by the fact that, based on recent trends, it is estimated that well over 3,000 residents over the age of 65 in the London Borough of Sutton, where Carshalton and Wallington is situated, will be living with dementia by 2030. That is 38% higher than it is today.

Living with dementia can be incredibly scary and worrying, and it also has an effect on family and friends as they watch someone they love slowly deteriorate. My family had to go through that with my grandfather, Derek—it was one of the toughest times we went through. The family and friends of somebody living with dementia suddenly find that they are carers first, and family and friends second. As time passes and they start to recognise less of the person they love, that person sadly also recognises less of them.

The situation with dementia care was already incredibly challenging prior to the pandemic, which has only exacerbated the problem. As other hon. Members said, the Alzheimer’s Society has produced a hard-hitting report, entitled “Worst hit: dementia during coronavirus”. I want to highlight and repeat some of its stark findings, not least of which is the fact that 27.5% of all those who died from covid-19 between March and June had dementia. For the same period, dementia was the most common pre-existing condition for covid-related deaths. For people who survived the crisis, the effects of social isolation were severe. The survey shows that 46% of people with dementia reported that it had a negative impact on their mental health and 82% reported a deterioration of the symptoms of dementia. As has already been highlighted, 92 million extra hours have been spent by families and friends caring for a loved one with dementia, and 95% of carers have reported a negative impact on their physical or mental health.

The Alzheimer’s Society has two key asks for the Government—one for the short term as we continue to deal with the pandemic, and one for the longer term. The shorter-term ask is that we recognise the role that informal carers play in the lives of people living with dementia, as the hon. Member for Bradford South (Judith Cummins) outlined well. I am repeating what other hon. Members have said, but this is important. The asks are for at least one informal carer per care home resident to be allowed to be designated as a key worker, with access to training, testing and PPE. The Alzheimer’s Society asks that the Government ensure the delivery of carers’ assessments, provide short-term breaks for carers, and collect local authority and health authority data on carer assessments and respite care.

I do not think it will be surprising to hear that the second recommendation is about the long-term future of social care. I have a background in the national health service, so this is something that I am incredibly passionate about. I genuine believe that, alongside the long-term plan for the NHS, there has to be a long-term plan for social care, and the two must be integrated. We need to tackle not just the cost of care but problems with the care workforce, including career pathways, recruitment and retention.

Change is often unnerving, but to a person living with dementia an upheaval of the likes that the pandemic has brought is nothing short of terrifying. Indeed, if my grandfather was still alive today, I am genuinely not sure how either he or the family would have got through the last couple of months. I hope the Minister will look carefully at the Alzheimer’s Society’s report and its recommendations.