Carer’s Leave

Edward Morello Excerpts

Wednesday 14th May 2025 Westminster Hall

[Edward Morello (West Dorset) (LD)]

It is a pleasure to serve under your chairship, Mr Stringer. I congratulate my hon. Friend the Member for North East Fife (Wendy Chamberlain) on securing this important debate. She has been an advocate for carers throughout her parliamentary career, and I thank her for all her hard work.

Unpaid carers are the backbone of Britain’s social care system. They carry out remarkable and irreplaceable roles, often with little help and too often at great personal cost. I would like to tell the story of one of my constituents, Sarah. She spent nearly 30 years as a full-time carer for her son, who has profound and complex needs. He suffered neurological damage before and during birth, and although he is verbal, he has severe autism and behavioural challenges, which, through no fault of his own, have dominated the lives of everyone around him. Sarah’s story is one of lifelong dedication and unconditional love. For years, her son’s unpredictable behaviour dictated his family’s routine. He was excluded from multiple schools and, later, from supported living settings because his needs were too challenging to manage in shared environments. He now lives with one-to-one professional carers. The support that he receives is of a high standard, but it costs as much as all the benefits he receives.

Sarah no longer qualifies for carer’s allowance because her son no longer lives at home. However, as a mother she remains deeply involved in his care. Over the years, she has given up work. She is approaching 60 with no pension or savings and with health problems of her own. On top of that, she now supports her elderly in-laws and ageing parents. Like so many others, she is a carer several times over—unseen, unpaid and exhausted. Sarah described herself to me as simply “broken” from years of having no room to breathe or recover.

Sarah contacted me not just because of the long hours of care or the loss of income, but because of the fear caused by the Government’s proposed changes to disability benefits, especially the personal independence payment. Her son relies on PIP; the suggestion that that support could be taken away or turned into a voucher system has devastated Sarah’s mental health. She told me that she cannot sleep and feels physically unwell from anxiety.

Carer’s leave is designed to support those who give so much of themselves to care for family and friends, but we must ensure that that support is not undermined by other policies. When carers are able to share some of their responsibilities with professional services and return to work, they should encounter stability, not the prospect that they will have to return to full-time caring because of sudden changes. However, proposals such as the changes to PIP risk having exactly that effect, which causes immense anxiety among the very people who we claim to be helping, including Sarah, who worries whether her son will be affected or not.

Carer’s allowance is just £81.90 a week, which is the lowest amount for a benefit of its kind. Worse still, carers are being punished for going even slightly over their earnings threshold. Tens of thousands of carers are being asked to repay thousands of pounds each, and often through no fault of their own. Indeed, many of them did not even know that they had gone over the threshold, and in many cases it was the Department for Work and Pensions that had failed to update their records in time. That is yet another example of carers being treated as an afterthought.

I am immensely proud that the Liberal Democrats, thanks to the hard work of my hon. Friend the Member for North East Fife, passed the Carer’s Leave Act 2023. The Act gives 2 million employees across the UK the legal right to at least one week of unpaid carer’s leave each year, which was a crucial first step, but now we must go further and make that paid leave.

Caring is vital, emotionally draining and complex work, which deserved to be recognised as such. That is why we should introduce paid carer’s leave and consult on extending the eligibility for it. We should also give unpaid carers a statutory guarantee of regular respite breaks, and not just when a council can afford them. We should also increase carer’s allowance by at least £20 a week, with higher earning thresholds and a taper, so that people are not penalised for doing extra hours at work.

Sarah’s story is not unique. Her exhaustion, her fear and her resilience are echoed in stories in millions of households up and down the country. We owe it to her and to every unpaid carer to stop taking them for granted.