Parkinson’s Awareness Month

Edward Leigh Excerpts

Thursday 1st May 2025 Commons Chamber

[Graeme Downie (Dunfermline and Dollar) (Lab)]

I beg to move,

That this House has considered Parkinson’s awareness month.

I extend my gratitude to the Backbench Business Committee for granting me this debate, and I thank hon. Members for attending, especially given that local elections are taking place across some parts of the country—I know the pull of the doorsteps is strong for politicians, as can be the power of persuasion from party bosses and headquarters.

I thank hon. Members for supporting my application for the debate, including my hon. Friends the Members for Aldershot (Alex Baker), for Newcastle-under-Lyme (Adam Jogee), for Redditch (Chris Bloore) and for Weston-super-Mare (Dan Aldridge), who are sadly unable to be here but who I wanted to mention. I also thank the current and former chairs of the all-party parliamentary group on Parkinson’s, my hon. Friend the Member for Newcastle upon Tyne East and Wallsend (Mary Glindon) and Baroness Gale.

I found it surprising and, to be honest, a little shocking that there has never been a full debate in this Chamber on Parkinson’s, so I hope to lend my voice to the approximately 225 people in my constituency, and to the community of some 153,000 people across the UK, who are navigating life with Parkinson’s, along with their loved ones and the dedicated professionals who support them. Yesterday concluded Parkinson’s Awareness Month, but we must commit to doing much more than simply raising awareness; we must act. Awareness is not progress, and people with Parkinson’s can no longer afford to wait.

Parkinson’s is the fastest-growing neurological condition in the world, ironically due mainly to people living longer lives and being diagnosed in their later years. It is sometimes said that people do not die from Parkinson’s, but the condition is life-limiting, complex and relentless. It does not discriminate by postcode, profession, political affiliation or any other characteristic. It strips away not only physical ability, but voice, independence and identity. It affects not only those diagnosed, but their loved ones in profound and lasting ways. There is no cure, no treatment to slow or halt progress and no respite, yet there is hope. There is a path to change, and today I call on the Government and this House to walk that path with the urgency and compassion that the Parkinson’s community deserves.

When I was preparing for this debate, I was given a copy of a poem called “A Jump Too Far”, by Bobbie Coelho, a Parkinson’s UK campaigner who was diagnosed in 2002. I will read it out to put it on the record, because I feel that these words are important:

“I wish you could jump into my shoes for just an hour or so

To know just how I feel, for then you would know

The truth about PD, as far as it goes



I wish you could jump into my shoes when my face freezes

You can’t understand when I talk (I know it’s not easy)



To hear me called a miserable cow

How I wish I could talk happily as they’re doing now

I wish you could jump into my shoes when I can’t move across the floor.

How I admire your movements, so easy and so free

I just wish it could also be me



I wish you could jump into my shoes when I can’t walk down the street

And get stares from the people that I meet



I wish you could jump into my shoes when I can’t do anything at all

And, reluctantly, have to watch my husband do it all



I wish you could jump into my shoes to see a future I don’t want to see

With no cure in sight and I know there never will be



You hear about cancer there’s adverts all around

But awareness of PD there’s not a sound



If you could jump into my shoes

You would see how frightening PD can be”.

[Sir Edward Leigh (Gainsborough) (Con)]

The hon. Gentleman must be congratulated on bringing forward this most important debate. The charity Parkinson’s UK organises voluntary support groups across the country—the nearest ones to Gainsborough are in Doncaster, Brigg and Scunthorpe. Does he think that the Government and local authorities can do more to encourage people to volunteer? Voluntary action across the country is quite uneven, so that might be one step forward.

[Graeme Downie]

The right hon. Gentleman has anticipated a point that I will make later, but I could not agree more about the need for volunteer support. Increasing the awareness of that volunteer support at the point of diagnosis is absolutely key, and I will refer to that later in my remarks. I thank him for the intervention.

I found Bobbie’s poem so moving because it reflects precisely what I heard in preparing for this debate, which I suspect colleagues in the Chamber also hear, from constituents living with Parkinson’s. I have been truly touched by the willingness and openness of those constituents, supported by Parkinson’s UK and Cure Parkinson’s, to share their experiences and stories. They do so in the hope that their voices combined will be greater than the sum of their parts, and that together they can improve the journey for those following in their footsteps.

The reality of living with Parkinson’s can be harsh. Although it is categorised as a movement disorder, it can affect movement, speech, swallowing and cognition. It can cause hallucinations, depression and pain. For many, their condition fluctuates unpredictably throughout the day, so what might seem like a good morning can spiral very deeply into a challenging afternoon, and too many people still wait too long for a diagnosis.

I draw the attention of the House to the Movers and Shakers, a group of people with Parkinson’s whose outstanding contribution and production have been a beacon of support for those with Parkinson’s. Some of them are in the Gallery and will be familiar to many in this House, including Gillian Lacey-Solymar, Rory Cellan-Jones, Mark Mardell and Sir Nicholas Mostyn. I thank them for being here today.