Employment Rights: Terminal Illness

Edward Leigh Excerpts

Wednesday 18th December 2024 Westminster Hall

[Lee Barron]

One of the things that has always got me is the number of personal stories people tell about what they have faced. We cannot remove those stories and those situations. I cannot imagine the distress, and I do not know if anybody else in here can. All I know is that I have met people who have gone through this experience, and that should never happen in our society. I have always said that the compassion and values that we hold as a society should not end at the front door of the workplace; they should be part and parcel of the workplace. That is why it is so important that we discuss issues like this.

Most people will never have to think about the implications of working with a terminal diagnosis. Those who receive a terminal diagnosis and their families should not have to worry about paying the bills or about their job, on top of everything else. The reality is that not all terminal illnesses are treated equally under the law. The prior part of employment, when people fall under the Disability Discrimination Act 1995, is protected. It is when they get a terminal diagnosis, and when capability comes into it, that they are not protected. That is the part that needs to be protected; that is the loophole in the law.

I met a lady who worked for Nottinghamshire county council. The council signed up to the Dying to Work charter on a Thursday, although she had passed away on the Friday of the previous week. She had decided that she wanted to stay at work because that was where her friends—her social outlet—were; she did not want to sit at home, bouncing off the walls. She took that decision for herself, and her employer did the right thing by saying, “We’ll give you the freedom as far as that decision is concerned.”

Many people are proud of the work they do. They often wake up early to work long, hard days to provide for themselves and their loved ones. They greet and talk to their colleagues, who they see almost every day. They deserve dignity and respect, and they deserve our support.

Some terminally ill people may want to continue working as long as they can, finding peace and distraction in their professional lives. Others may decide to step away, prioritising their family and themselves. While the Government are rightly levelling up workers’ rights, we must seize the moment to ensure those with terminal illness are treated with fairness, compassion and the respect they deserve in the workplace. Protections like those enshrined in our Dying to Work charter should be universal, not optional. Legislation must be introduced to best protect vulnerable people in our workplaces. In the meantime, it is essential that we persuade as many employers as possible, including Government Departments, to sign up to the Dying to Work charter to protect as many workers as possible. Dignity at work is not a privilege; it is a right.

Some organisations do have death in service payments, but if a person is fired, they and their family are no longer entitled to any of those benefits. Every worker deserves to know that they will not be forced out of their job when they need it most. People at the end of their life should be able to decide whether they want to continue to work.

I was delighted to hear that the Government will be implementing the Dying to Work charter as best practice in Departments, but we need to go further. We need to review the Equality Act 2010 so that there are not gaps in rights for those who are terminally ill. We need to protect people’s employment when they are ill. We need to give the most vulnerable people in our society the right to choose and the right to dignity. We need to implement new legislation to protect these workers.

Protecting employment for those who are terminally ill means that they can focus on what truly matters, whether that is continuing to contribute to work or stepping away to spend their remaining time with their loved ones. Ultimately, that choice should be theirs and theirs alone, and if we need to we should protect that choice in law.

[Sir Edward Leigh (in the Chair)]

Order. I remind Members that if they wish to speak, they must bob.