Brain Tumours

Debbie Abrahams Excerpts

Monday 18th April 2016 Westminster Hall

[Debbie Abrahams (Oldham East and Saddleworth) (Lab)]

It is a pleasure to serve under your chairmanship, Sir Edward. I pay tribute to my hon. Friend the Member for Warrington North (Helen Jones) for her exceptional speech and to the chair of the all-party group on brain tumours, the hon. Member for Castle Point (Rebecca Harris), for making such a moving speech.

As we have heard, brain tumours account for 40% of all cancers in children. They are the leading cause of male deaths for 20 to 29-year-olds and they are the biggest cancer killer for those under 40. We do not have a good survival rate for brain tumours; four out of five people will die within five years of being diagnosed. Brain tumours are on the increase. Twenty-nine people a day are diagnosed, reducing life expectancy by 20 years on average, which is the highest for any cancer.

Brain tumours are the largest cause of preventable or treatable blindness in children, and childhood brain tumour survivors are 10 times more likely to suffer long-term disability than well children. This accounts for 20,000 additional disabled life years for all children who are diagnosed each year. We have heard about the low base of research funding for brain tumours. The Minister has already been asked about that and I look forward to a favourable response.

Behind all the facts and figures are the personal stories. I was particularly moved by one of my constituents who wants to remain anonymous. He has a young family and he has had a difficult time. He told me he has gone from being a fit, healthy individual to one who struggles to do many of the everyday things that a dad wants to be able to do with his children. He was diagnosed last year at the age of 40 with a grade 2 oligodendroglioma. After an 11-hour craniotomy, during which he was awake, he has spent much of the past nine months fighting infection and undergoing extensive physiotherapy to help him to learn to walk again and to enable him to live a relatively normal life. He started radiotherapy at the Christie last month to try to control the regrowth of the tumour. Unfortunately, the nature of these things means that it is almost certainly regrowing, yet he says he is one of the lucky ones with, hopefully,

“a decent number of years ahead”

of him. However, he is taking nothing for granted. He has been lucky in terms of being awarded an Access to Work grant, which has been invaluable in helping him to stay in work.

I also want to mention a young man, Christopher Clarke, who was 18 when he died of his brain tumour. He was a lovely lad. He was so cheerful in spite of the diagnosis and prognosis. He had a profound effect on his circle of friends. Even 10 years after his death, they are still fundraising for the trust that was set up in his name.

Satvinder Uppal was 54 when she died of a brain tumour five years ago last week. The real issue for Satvinder’s family was the delay in diagnosis of the brain tumour, which we have heard is common. In spite of prolonged jaw pain, severe headaches and memory issues, the tumour was not picked up when she went on various occasions to visit her GP. It was not until she collapsed at home that she was finally diagnosed at A&E. As her family said,

“The specialist cancer centre was brilliant, but getting the diagnosis in the first place was the issue.”

What does the Government plan to do to extend brain tumour research from the current low level? What will the Minister do to ensure that clinical guidelines reflect the poor diagnosis rates?