Asked by: Dean Russell (Conservative - Watford)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what support exists for those with (a) Huntington’s disease and (b) other complex neurological conditions.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
Integrated care boards (ICBs) are responsible for commissioning most services for people with neurological conditions, including those with Huntington’s disease. At a national level, NHS England commissions the specialised elements of neurological care that patients may receive from 27 specialised neurological treatment centres across England. NHS England’s RightCare toolkit and Getting It Right First Time programme aim to improve care for people with neurological conditions, by reducing variation and delivering care more equitably across England.
New optimal clinical pathways for a range of neurological conditions were developed by the National Neurosciences Advisory Group, which ceased operation in 2022. These pathways set out what good treatment, care, and support should look like across a range of neurological conditions. They also help to guide and facilitate the commissioning of high-quality, effective neurology services by ICBs. The optimal clinical pathway for movement disorders outlines the care pathway that patients with Huntington’s disease should receive. Further information on the optimal clinical pathways are available at the following link:
https://www.nnag.org.uk/optimum-clinical-pathways
The Department funds research on neurological conditions through the National Institute for Health and Care Research (NIHR), and between 2018/19 and 2022/23, the Department spent £272.1 million on research into neurological conditions. This covers research into conditions such as Huntington’s disease, Parkinson’s disease, epilepsy, and multiple sclerosis. In 2022/23, the most recent year for which we have data, the Department, via the NIHR, spent £65.3 million on research into neurological conditions.
Asked by: Dean Russell (Conservative - Watford)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps she is taking to ensure that the Major Conditions Strategy includes additional material on mental health.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
Since announcing the Major Conditions Strategy in January 2023, we have been working with a range of stakeholders in the health and care system, including those representing mental health conditions. This is to identify what would make the most difference in tackling the six major condition groups, which includes mental health, that account for approximately 60% of ill-health and early death in England.
The strategy will consider how we can ensure that mental health is effectively integrated with physical health, as well as delivering preventative, proactive, and person-centred care across the major conditions. This strategy does not seek to describe everything that is being done or could be done to meet the challenges of individual conditions in isolation, it instead focuses on the changes likely to make the most difference across the six groups of major conditions.
Asked by: Dean Russell (Conservative - Watford)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment she has made of the effectiveness of Early Intervention Hubs.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
In July 2023, the Department secured just under £5 million from HM Treasury’s Shared Outcomes Fund, for a project to boost and evaluate the impact of 10 early support hubs. The Department has since provided an additional £3 million to increase the number of hubs being funded across the country to 24.
Crucially, alongside boosting 24 hubs, the funding is also being used to evaluate the impact of the services, and inform any potential expansion of the model in the future. The evaluation aims to report its findings by Summer 2025.
Asked by: Dean Russell (Conservative - Watford)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps her Department is taking to help support children with cerebral palsy.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The National Institute for Health and Care Excellence has published a range of guidance on care and support for children and young people and adults with cerebral palsy, to support healthcare professionals and commissioners. The guidance recommends service providers develop clear pathways that allow patients with cerebral palsy access to multi-disciplinary teams, specialist neurology services and regular reviews of their clinical and functional needs.
NHS England’s Getting It Right First Time Programme aims to improve care for people with neurological conditions, including those with cerebral palsy, by reducing variation and delivering care more equitably across the country.
The majority of services for people with cerebral palsy are commissioned locally by integrated care boards, which are best placed to make decisions according to local need. Nevertheless, at a national level, the Government is working closely with NHS England to continue to improve services for people with neurological conditions, including those with cerebral palsy.
The NHS Long-term Workforce Plan (LTWP) aims to grow the number and proportion of National Health Service staff working in mental health, primary and community care. The LTWP, published in 2023, sets out an ambition to grow these roles 73% by 2036/37, including plans to increase the community workforce specifically by 3.9% each year. By growing the community workforce, we will be better able to support people to participate in daily living, including those with cerebral palsy.
As set out in the LTWP, NHS England’s ambition is that, by 2028, no child or young person will be lost in the gaps between any children’s and adult services, and that their experience of moving between services is safe, well planned and prepared for so they feel supported and empowered to make decisions about their health and social care needs. The Department is working closely with NHS England to support this work, and the Children and Young People’s Transformation Programme has developed a national framework for transition which includes the key principles of a 0-25 model of care, including for young people with cerebral palsy.
Asked by: Dean Russell (Conservative - Watford)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps her Department is taking to help support adults with cerebral palsy.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The National Institute for Health and Care Excellence has published a range of guidance on care and support for children and young people and adults with cerebral palsy, to support healthcare professionals and commissioners. The guidance recommends service providers develop clear pathways that allow patients with cerebral palsy access to multi-disciplinary teams, specialist neurology services and regular reviews of their clinical and functional needs.
NHS England’s Getting It Right First Time Programme aims to improve care for people with neurological conditions, including those with cerebral palsy, by reducing variation and delivering care more equitably across the country.
The majority of services for people with cerebral palsy are commissioned locally by integrated care boards, which are best placed to make decisions according to local need. Nevertheless, at a national level, the Government is working closely with NHS England to continue to improve services for people with neurological conditions, including those with cerebral palsy.
The NHS Long-term Workforce Plan (LTWP) aims to grow the number and proportion of National Health Service staff working in mental health, primary and community care. The LTWP, published in 2023, sets out an ambition to grow these roles 73% by 2036/37, including plans to increase the community workforce specifically by 3.9% each year. By growing the community workforce, we will be better able to support people to participate in daily living, including those with cerebral palsy.
As set out in the LTWP, NHS England’s ambition is that, by 2028, no child or young person will be lost in the gaps between any children’s and adult services, and that their experience of moving between services is safe, well planned and prepared for so they feel supported and empowered to make decisions about their health and social care needs. The Department is working closely with NHS England to support this work, and the Children and Young People’s Transformation Programme has developed a national framework for transition which includes the key principles of a 0-25 model of care, including for young people with cerebral palsy.
Asked by: Dean Russell (Conservative - Watford)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to publish a dental recovery plan.
Answered by Neil O'Brien
We are currently working on a plan for dentistry, to be published shortly, to improve access to dental care across England. There are several fronts where we need to take further action to support and recover activity in National Health Service dentistry, to improve access to care for all ages.
Our plan for dentistry will build upon the first package of reforms agreed in July 2022, which included changes to banding and the introduction of a minimum Units of Dental Activity value, and the NHS Long Term Workforce Plan, which committed to increasing dentistry training places by 40% so that there are over 1,100 places by 2031/32.
Our plan will address how we continue to improve access, particularly for new patients, and how we make NHS work more attractive to ensure NHS dentists are incentivised to deliver more NHS care.
Asked by: Dean Russell (Conservative - Watford)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department has taken to provide support for people with (a) Corticobasal Degeneration and (b) Progressive Supranuclear Palsy.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
While the Department is not taking steps to ensure early diagnosis of Corticobasal Degeneration and Progressive Supranuclear Palsy specifically, the 2021 UK Rare Diseases Framework aims to improve the awareness of all rare diseases which includes these conditions. England’s second Rare Diseases Action Plan, published in February 2023, reports on progress made to help patients get a final diagnosis faster and outlines new actions such as commissioning research on how best to measure the diagnostic odyssey.
An individual with Corticobasal Degeneration and Progressive Supranuclear Palsy can be affected in many ways, therefore support available will depend on individual need. Patients with these conditions would typically be supported through the usual range of commissioned health and social care services, including neurology services. There is not a separately commissioned service for this diagnosis.
Asked by: Dean Russell (Conservative - Watford)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help ensure early diagnosis of Corticobasal Degeneration and Progressive Supranuclear Palsy.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
While the Department is not taking steps to ensure early diagnosis of Corticobasal Degeneration and Progressive Supranuclear Palsy specifically, the 2021 UK Rare Diseases Framework aims to improve the awareness of all rare diseases which includes these conditions. England’s second Rare Diseases Action Plan, published in February 2023, reports on progress made to help patients get a final diagnosis faster and outlines new actions such as commissioning research on how best to measure the diagnostic odyssey.
An individual with Corticobasal Degeneration and Progressive Supranuclear Palsy can be affected in many ways, therefore support available will depend on individual need. Patients with these conditions would typically be supported through the usual range of commissioned health and social care services, including neurology services. There is not a separately commissioned service for this diagnosis.
Asked by: Dean Russell (Conservative - Watford)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what support is in place for people with psychosis.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
It is for individual integrated care boards to commission mental health services, including those for people with psychosis, in order to meet the needs of their local population.
We have introduced waiting times standards for early intervention in psychosis services and are expanding and transforming National Health Service mental health services, backed by additional investment of £2.3 billion a year by March 2024 to enable an extra 2 million people in England to access NHS funded mental health support.
Asked by: Dean Russell (Conservative - Watford)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department are taking to support people with (a) Huntington's Disease and (b) other complex neurological conditions.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
Specialised elements of neurological care are provided through the 25 specialised neurological treatment centres across England. NHS England’s neuroscience transformation programme (NSTP) is developing several optimal pathways for neurology services, which includes Huntington's disease. The NSTP is also developing a new definition for ‘specialised’ neurology. The NSTP will provide integrated care systems with the tools, information and resources they will need to drive the transformation in their neurology services.
In addition, the neuropsychiatry service specification is in development, which will outline the multi-disciplinary approach to caring for patients with complex neurological conditions.