Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department has taken to provide support for people with (a) Corticobasal Degeneration and (b) Progressive Supranuclear Palsy.

While the Department is not taking steps to ensure early diagnosis of Corticobasal Degeneration and Progressive Supranuclear Palsy specifically, the 2021 UK Rare Diseases Framework aims to improve the awareness of all rare diseases which includes these conditions. England’s second Rare Diseases Action Plan, published in February 2023, reports on progress made to help patients get a final diagnosis faster and outlines new actions such as commissioning research on how best to measure the diagnostic odyssey.

An individual with Corticobasal Degeneration and Progressive Supranuclear Palsy can be affected in many ways, therefore support available will depend on individual need. Patients with these conditions would typically be supported through the usual range of commissioned health and social care services, including neurology services. There is not a separately commissioned service for this diagnosis.