Summer Adjournment

David Linden Excerpts

Thursday 20th July 2017 Commons Chamber

[David Linden (Glasgow East) (SNP)]

I echo the comments of the hon. Member for Redditch (Rachel Maclean) about the warm welcome that has been extended to new Members. I pay particular tribute to our staff in the SNP Whips Office, who have supported me in my meteoric rise to deputy assistant junior Whip.

I want to mention the proposed closures of Parkhead and Easterhouse jobcentres within my Glasgow East constituency. These proposed closures are ill-thought-out and will have a deeply damaging impact on some of the most vulnerable communities in Glasgow’s east end where access to transport and digital connectivity are major barriers. Ministers on the Treasury Bench would do well to come to Glasgow and see for themselves the havoc that these proposals would cause to an already fragile community. My main subject today is a difficult and deeply upsetting one. I must confess, I even thought twice about whether to speak about it at all, but it is incumbent on me to speak up because those who I want to speak for cannot speak up for themselves. They are the children and babies with life-threatening and life-limiting conditions, children who never live long enough to go to nursery or school.

Many right hon. and hon. Members will have experienced the joy of becoming a parent. Most, if they are lucky, will have a trouble-free pregnancy and a safe delivery. Some of us have gone through a difficult pregnancy, and the child is born prematurely or in dangerous circumstances. My own son Isaac was born prematurely and spent the first two weeks of his life in an intensive care and special care unit. We are indebted to the staff at NHS Greater Glasgow and Clyde for all of the care, love and support they provided to him during that time.

Isaac eventually left hospital, and he is a happy, if cheeky, little boy. However, on or before birth, some parents have to face the sobering, tragic reality that they will outlive their children, which is utterly unimaginable, yet, sadly, a reality for the families of approximately 50,000 children on these islands.

In preparing for this debate, I was incredibly grateful to my constituent and friend, Louise Gillan from Springboig, who shared with me her personal experience of having a child with complex health needs. Her daughter, Erin, was diagnosed with a rare condition at the age of two.

Across the UK, there is a mixed picture when it comes to the funding of children’s palliative care. Together for Short Lives quite rightly wants the UK Government to follow the lead of the Scottish Government, who have allocated £30 million over five years to children’s hospices, so that there is parity of funding with adult hospices. Children in England, Wales and Northern Ireland deserve the same recognition, opportunity and support as those in Scotland.

At this juncture, I want to pay tribute to the hon. Members for Colchester (Will Quince) and for Eddisbury (Antoinette Sandbach) for speaking so personally and movingly about their own experiences of being bereaved of a child. The hon. Gentleman did excellent work in the last Parliament to build interest and momentum around the concept of parental bereavement leave, which both Labour and the Conservatives included in their election manifestos. I am pleased that, in the past 24 hours, the Government have committed to introducing bereavement leave and supporting the private Member’s Bill of the hon. Member for Thirsk and Malton (Kevin Hollinrake).

The main issue I want to raise today is the cruel anomaly of not paying the mobility component of Disability Living Allowance for children under three years old. This has been dubbed the baby benefit bar. Children under three with life-shortening conditions often depend on ventilators and large equipment to stay alive. Some babies and children have permanent wheelchairs, as they are not able to use buggies suitable for well children of the same age. The wheelchairs are heavy because of the equipment needed to secure them to a vehicle.

All this leads me to conclude that exclusion from the mobility component of DLA is as inherently unfair as it is illogical. Calling on the UK Government to include the under threes in the mobility component of DLA is a small ask, but it is one that could enormously support and transform the lives of the families of children with short lives. These additional mobility needs are already recognised in other areas of Government policy. Children under three who depend on bulky medical equipment, or need to be near their vehicle in case they need emergency medical treatment, are already eligible for a blue parking badge, so excluding them from the DLA component is clearly an anomaly.

What we are talking about here is the difference of just £58 a week, which is a drop in the ocean for the Government when we consider just how few families this will affect, but it will have the potential to move some of those families away from unnecessary poverty.

I want to share with the House this testimony from a parent of a child receiving palliative care. They told us:

“My daughter has had a tracheotomy with a ventilator attached 24/7 since the age of eight months. She needs these for an undiagnosed neuromuscular condition. She cannot support herself at all. Carrying her, her vent, her suction machine, her oxygen, her emergency equipment to our car and back for two years was extremely difficult. We ended up selling our family car and purchasing a wheelchair accessible vehicle privately as it just became too hard to carry her as she grew.”

Time is not on the side of these families. The best that we can do is to be on their side.