Appropriate ME Treatment Debate
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Darren Jones
Main Page: Darren Jones (Labour - Bristol North West)Department Debates - View all Darren Jones's debates with the Department of Health and Social Care
Appropriate ME Treatment
Darren Jones Excerpts(5 years, 10 months ago)
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Darren Jones (Bristol North West) (Lab)
Given the very short period available, I will not be able to do justice to Karen, Carolyn, Nathalie, Anna, Emma or many of my other constituents by telling their stories today. Like my hon. Friend the Member for Ealing North (Stephen Pound), I tell my constituents and all those watching, “The House has heard you and your stories, and understands your plight.” The will of the House will make that very clear to those on the Government Front Bench.
It is clear from the stories we have heard today what a devastating and complex disease this is. When I was a young undergraduate in human bioscience, studying immunology, I heard this referred to in the labs as “Multiple Excuses”, and that was not so long ago. There is clear evidence that much more work is needed on the biomedical and biological processes behind this complex and devastating disease.
I am a member of the Science and Technology Committee, and we have recently completed an inquiry into research integrity. We have some concerns about reporting and transparency, especially in clinical trials. This goes to the concerns of many ME sufferers about what research is being done and how it is being done. Further to our Select Committee inquiry, I hope that the Minister will say what he will do to provide transparency in prospective registration, to deal with positive bias in journals—researchers are incentivised to find positive answers, as opposed to proving negatives, which is sometimes just as important—and perhaps to change the culture of that environment.
Lastly, on the delivery of care, about which we have heard from many hon. Members, the research must be recognised in the NICE guidelines, which lead to the delivery of care for many sufferers—children and adults—and to some of these heartbreaking situations. In my final 10 seconds, I pay tribute to the hon. Member for Glasgow North West (Carol Monaghan), a colleague on the Science and Technology Committee. I was pleased to support her application for this debate, and I hope the Government will respond in the significant way that is needed.