World AIDS Day

Danny Beales Excerpts

Wednesday 27th November 2024 Westminster Hall

[Danny Beales (Uxbridge and South Ruislip) (Lab)]

I beg to move,

That this House has considered World AIDS Day.

It is an honour to serve under your chairmanship, Sir Mark. I am proud to have been elected on a manifesto commitment to end new cases of HIV in this country. Indeed, that goal, which crosses political divides, was a clear commitment from the last Government too. Only 20 years ago, that ambitious target would have been completely unthinkable. It has the power to change countless lives.

That such a goal is even possible is a testament to the long, hard work of thousands of activists and researchers, going back over 40 years. We are living in an era when HIV is no longer a death sentence, transmissions can be prevented and people with HIV live long, happy and healthy lives. We all stand on their shoulders.

[Jessica Morden (Newport East) (Lab)]

I apologise for intervening so early. Quite rightly, there will be many important policy asks in this debate, but on the point that my hon. Friend raises, can we take a moment to pay tribute to the grassroots campaigners who have been part of the history of the fight against HIV and AIDS? I am hugely privileged to have Martyn Butler, the co-founder of the Terrence Higgins Trust, as a constituent. He used his own home phone line as the first helpline for AIDS. As my hon. Friend rightly points out, we should pay tribute to those people.

[Danny Beales]

I definitely pay tribute to Martyn Butler and to everyone like him who has tirelessly campaigned for change. It is the perfect example of progress being made through the sheer determination of those affected by HIV and of their loved ones—those who unfortunately they left behind. My hon. Friend and I have had the pleasure of meeting many tireless campaigners and fantastic organisations such as THT.

Before entering Parliament, I worked for the National AIDS Trust, another fantastic organisation in the sector, campaigning to end new transmissions of HIV and improve the lives of those who are already living with HIV. That included working on a campaign for equal fertility rights for people living with HIV. I was delighted that just last month the law was finally changed to allow equal access to fertility treatment. That life-changing development means that people I met during that campaign can now have a family. It is not often that we can say that children will be born because of a statutory instrument, but in this case it is true. I thank the Minister for his swift leadership and action on the issue and every single person who campaigned to make that possible—thank you.

The first project that I worked on at the National AIDS Trust was a collaboration with the Elton John AIDS Foundation and the Terrence Higgins Trust: the independent HIV Commission. It heard from experts and from those with lived experience and toured the country to look at good practice. Its recommendations laid out a framework for turning into a reality the goal of ending new HIV cases in England by 2030. One of the independent commissioners was a little-known, shy and retiring Back-Bench Labour MP who is now my right hon. Friend the Member for Ilford North (Wes Streeting). He went on to somewhat bigger and better things in the world of healthcare.

A lot has changed since 2021 when the report was launched. Unfortunately, when it comes to progress on ending transmissions, a lot has not. To their credit, the last Government should be proud of the investment that they made in piloting opt-out HIV and hepatitis testing in emergency departments in London, Manchester and Brighton—the one key action in the last HIV action plan that was delivered on. That investment has changed many, many lives. In my constituency, opt-out testing at Hillingdon hospital has picked up 15 new cases of HIV, 28 of hepatitis C and 140 of hepatitis B. Those are people whose lives have been changed and who now have access to vital treatment. The story is the same across all the hospitals delivering that amazing programme.

The programme is working, but it is facing a funding cliff edge. I welcome the commitment to expand the programme further to other towns and cities, but I hope that the Government will commit to continuing the pilot where it is already in place and working.

We now know for certain that opt-out testing works. We cannot find everyone with undiagnosed HIV if we rely only on a system of people thinking that they may be at risk and then actively seeking out a test, navigating the complex system and overcoming the stigma of HIV to ask for a test. Instead, we must test, test, test. We need an opt-out testing programme that goes right across the health service and into primary care.

Unfortunately, the reality is that despite the success of the testing programme, overall progress towards ending HIV transmissions has been far too slow. Recent figures suggest that this year we are potentially moving backwards. Recent data showed an increase in cases; we have seen poor outcomes around late diagnosis; and the disproportionate outcomes for women and people from black and Asian backgrounds continue. The gap has not closed.

[David Burton-Sampson (Southend West and Leigh) (Lab)]

My hon. Friend is quite right: a disproportionate number of black, Asian and minority ethnic individuals are becoming infected with HIV. Does my hon. Friend think that it is right to raise awareness of things like PrEP in communities that may be disproportionately affected, so that we can put them in the same position as the majority of the country, whose infection rates are declining?

[Danny Beales]

I thank my hon. Friend for that vital point. HIV is a condition that knows no boundaries. It does not affect any one type of person: there is no one community that is alone affected by HIV. It knows no boundaries; it affects everyone.

After 14 difficult years for the health service, we are not on track to reach the 2030 goal. At every single stage of the HIV treatment process, we are missing critical opportunities to get people on PrEP, test for HIV and ensure that everyone living with HIV has the support that they need.

Pre-exposure prophylaxis—we can see why it is called PrEP for short—is an incredible advance in HIV prevention. It is a simple daily pill, now in generic form and therefore incredibly cheap, that prevents HIV completely if taken correctly. I have spoken before about how life-changing a drug it is in removing the fear and stigma of HIV. As a gay man who grew up in the 90s and noughties, the legacy of HIV has always weighed on me and, I am sure, on many others like me. Our sense of self, our sexuality and our relationships were always intertwined with the stigma and presence of HIV. Being able to take PrEP is game-changing, and not just for the individual and their wellbeing: it has a massive public health benefit. It has driven the significant falls in new transmissions, particularly among gay men, who have largely been the people who have accessed the drug to date.

It is unacceptable that the drug is not being accessed by everyone who could benefit. The average wait list for this preventive medicine is 12 weeks. We know from research that people have acquired HIV while waiting to access the drug. That is a significant failure that I hope the new HIV action plan will address, as well as turbocharging access outside sexual health services—the only place where it can currently be accessed. It is entirely wrong that NHS silos are holding back access to PrEP in primary care, including in pharmacy and other settings.

It is also unacceptable that people cannot get a postal test for HIV and sexually transmitted infections in 30% of rural England. It makes no sense that my borough of Hillingdon—not so rural, but on the edge of London—has a completely different postal testing system from the 30 other London boroughs that have their own system. Far too often, the patient is left to navigate complex systems. What test they get will vary depending on where they live. In vast swathes of the country, there is no option to test at home, although sexual health services are often inaccessible and chronically overwhelmed. Far too often, the individual has to fight for an appointment, and only those with the sharpest elbows, or persistence, get access to the sexual health services that they need.

[Lloyd Hatton (South Dorset) (Lab)]

I thank my hon. Friend for making such an eloquent speech. The point he makes is really important: in rural and coastal communities, testing services and public health awareness can often feel particularly remote. Looking at how we use primary care, particularly community hospitals and GP surgeries, will be essential to improving testing and public awareness. Does my hon. Friend agree that pushing this out into communities is essential to ensuring that take-up is just as good in a rural or coastal community as it is in a big town or city?

[Danny Beales]

I completely associate myself with my hon. Friend’s comments. Particularly in rural settings, if getting to a sexual health service means travelling for miles and sometimes for hours, a lot of people, especially on the lowest incomes, will put off getting the test until another day. Unfortunately, we are seeing persistent rates of late diagnosis and of undiagnosed HIV outside major cities. I completely agree with my hon. Friend.

What about those who make it through the complex online systems—the 8 am call queues, only on a Thursday—and actively go out and seek a test, or those who are fortunately now being found in our amazing opt-out testing pilot? If they are diagnosed with HIV, they are not always getting the support that they need to access HIV treatment in the long term.

We have some of the best—if not the best—HIV treatment and specialists in the world. HIV is now a treatable long-term health condition. “U = U. Undetectable = untransmittable.” We need to say that over and over again. In simple terms, it means that when someone is on HIV treatment, they cannot pass HIV on. That is a powerful and life-changing message. Despite the advances, 14,000 people living with HIV in England are essentially lost to the health system. They have been diagnosed with HIV but are not being seen by their clinic because of stigma, poverty and other barriers that are holding them back from getting that life-changing treatment.

[Florence Eshalomi (Vauxhall and Camberwell Green) (Lab/Co-op)]

I thank my hon. Friend for calling this debate and for his powerful speech. Does he share my concern that the communities that we need to come forward are the very same communities that are not accessing treatment because of that stigma? Organisations like the Fast-Track Cities network, Sophia Forum and One Voice Network are doing fantastic work reaching black women and other black and minority ethnic groups.

[Danny Beales]

I thank my hon. Friend for that comment and for her leadership on the all-party parliamentary group on HIV, AIDS and sexual health, on which I know she has been championing that issue and many others; I think she helped to host the important meeting and discussion about the recent report on disproportionality by the One Voice Network and the National AIDS Trust. If we look at the figures, the disproportionality of HIV is stark. We have made so much progress, including in access to PrEP, testing or treatment, but not all communities are benefiting in the same way. Particularly among black African and Caribbean communities in the UK, the rate of late diagnosis is far too high and the rate of accessing PrEP is far too low. It is completely unacceptable. We have to take on that disproportionality, those inequalities and the stigma that persists in holding people and communities back from accessing those vital measures.

From a public health perspective, the people who are not accessing successful treatment are potentially also passing on HIV and are at risk of getting seriously ill. Many already are. The rates of people not in treatment and not going to their clinic appointments have increased through the covid period. I hope that the future action plan will fill in the gaps in the last plan. One major omission was action on that very challenge.

There are already lots of examples of successful local projects that we can learn from, such as amazing outreach services with nurses going out to find patients lost to care. The value of consistent peer support comes through, time and again, from people living with HIV. We must ensure that every HIV team is proactively finding everyone lost to care and supporting them in a holistic way to overcome the barriers to continue with HIV treatment.

All of this, it must be said, takes place against the backdrop of a wider crisis in our national health service, which is putting historic strain on health services and affecting outcomes across the board. Our task is an immense challenge, but it is not insurmountable. Although we are not on track, it is still possible to end the epidemic in this country by 2030. We already have all the tools we need. This week, my old colleagues at the National AIDS Trust released a report with THT and the Elton John AIDS Foundation with some clear recommendations for the new HIV action plan in England. I am pleased that the Minister has already engaged with them, welcomed them and attended the report launch, which I am sure was much appreciated. It is a clear sign of leadership on the issue.

None of this is rocket science. We are talking about simple, deliverable actions. First, there should be a nationwide, year-round online HIV and STI postal testing service, which would be cheaper than the current patchwork of services that vary from place to place. Secondly, opt-out testing in all emergency departments should be expanded to other health settings, such as GP practices and termination-of-pregnancy services, and elsewhere so that we can find everyone living undiagnosed with HIV. Thirdly, we should broaden access to PrEP beyond sexual health services, starting with a digital service to ensure that those on long-term prescriptions get timely access to the medication. That will then reduce demand on sexual health services for appointments. Fourthly, we need an NHS England programme to find everyone already living with HIV and support them back into care, with proper care co-ordination, peer support and appropriately trained staff. None of this is unprecedented: it is happening or being piloted somewhere. We have all the tools we need; we must now implement them everywhere consistently.

I emphasise that it would be an incredible achievement to meet our 2030 goal and become the first country in the world to end new HIV cases. Of course, that achievement would occur in the context of a deeply concerning global picture—with 1.3 million new cases in 2023 and 650,000 deaths from what is now a treatable long-term condition, as has been said. Much more work clearly needs to be done on the international front, so international development funding is vital.

Ending new cases in England would make a remarkable contribution to the global effort to eradicate HIV by providing a replicable road map to prevent transmission elsewhere—learnings that can be exported and shared. It would also simply show that it is possible. Britain has historically been a world leader on HIV treatment and sexual health. Now let us be a world leader on this too.

One of this Government’s key missions is to rebuild our NHS so it is there for everyone when they need it. Fixing HIV care and ending new transmissions must be an integral part of that vision. I am pleased that the public health Minister is already working on a new HIV action plan. I have seen at first hand the passion and determination of those working to make this happen—from campaigners to clinicians and MPs across the House. We now need that same determination from the new Government. The Government have a unique opportunity to make history, and I hope that they will seize it.

[Several hon. Members rose—]

--- Later in debate ---

[Danny Beales]

Thank you, Sir Mark. I will be brief, because I have to be. I thank the Minister and everyone who contributed. It is clear there is cross-party support for this action. The Minister will have our full backing in taking this plan forward.

Question put and agreed to.

Resolved,

That this House has considered World AIDS Day.