Down’s Syndrome

Damian Hinds Excerpts

Wednesday 19th March 2025 Westminster Hall

[Damian Hinds (East Hampshire) (Con)]

It truly is a pleasure to see you in the Chair, Mr Turner, and it truly is a pleasure and a privilege to follow the hon. Member for Thurrock (Jen Craft)—I do not know if I can. There are times in this place when it is a real privilege to have heard from a colleague, particularly when they share something very personal that helps to inform our democracy, and she has just done that many times over, and I thank her. Indeed, I am sure we all thank her very much for it.

I also thank and commend my right hon. Friend the Member for Beverley and Holderness (Graham Stuart) for securing this important debate. As the hon. Lady said, we are coming up to World Down Syndrome Day. It is already Down’s Syndrome Awareness Week, so it is particularly apt that we should be having this debate.

It is my honour to co-chair, with the hon. Member for Mid Cheshire (Andrew Cooper), the all-party parliamentary group on down syndrome. Down syndrome was not something I knew a lot about beforehand; it just so happens that the co-founders of the National Down Syndrome Policy Group, Ken and Rachael Ross, happened to be constituents of mine. But my God, through that link I have come into contact with the community that the hon. Member for Thurrock was just talking about, which is the most enormously wonderful thing. We had an event a couple of weeks ago over in Portcullis House. There was a flash mob in Portcullis House, there was dancing and there was singing, but there were also challenging speeches from members of the Down syndrome community, who it is always important to hear from directly.

In the APPG, we have heard a number of testimonies about people’s frustration with the education system. I am pleased that Down syndrome is now included as a category in the school census, which means that it is possible to take a more targeted approach, but those issues carry on into employment, as my right hon. Friend the Member for Beverley and Holderness said.

There is so much work to be done, but the Down Syndrome Act 2022, which was carried through by Sir Liam Fox, was a really important milestone and a really important achievement to build on. I do not really have time to say it all, so I will just very quickly commend Sir Liam again for the work he did then and for his continued advocacy today.

I also want to recognise the work of Ken and Rachael and everything they did to support the Act through Parliament, and everything they have done since. That includes their work locally with Portsmouth hospitals on a Down-specific maternity pathway, which I know as a constituency MP; in a completely different way, their work with the British Academy of Film and Television Arts to make sure that the voices of people with Down syndrome are heard in mainstream films; and also their work on special schools and making sure that more children with Down syndrome can be in a mainstream setting when that is right for them. I also want to recognise the work of all the MPs involved, including the Minister, who was on the Bill Committee with Sir Liam Fox to consider his private Member’s Bill.

As my right hon. Friend the Member for Beverley and Holderness said, it is now several years since that Bill was enacted. It is really important that we press on with the guidance and that it is specifically about Down syndrome. That is not in any way to reduce the issues faced by people with a broader set of learning difficulties or disabilities, but this is specifically the Down Syndrome Act 2022, to look at those particular issues and challenges. We need that ministerial cross-departmental taskforce, to make sure that the guidance is as sound as it can be and is produced as quickly as it can be.

I also thank the Minister’s colleague, the Minister for Care, the hon. Member for Aberafan Maesteg (Stephen Kinnock), for his continued engagement. We continue to extend an invitation to him, and to the Minister, to join us in the APPG when they can, to hear further from members of the community about how important all this work is to them.