(2 days, 9 hours ago)
Commons Chamber
Chris McDonald
I thank the right hon. Gentleman for mentioning my hon. Friend the Member for Alloa and Grangemouth (Brian Leishman). I am sure that he would have liked to be here, but he was invited by the Secretary of State for Scotland to join him on the visit. He and I have spoken over the last few weeks. I assure the right hon. Member that I very much value my hon. Friend’s contributions, his relationship and his support, and I know that he is as pleased as I am by the announcement.
Euan Stainbank (Falkirk) (Lab)
People in Falkirk, Grangemouth and across Forth valley are delighted to see the decisive action taken by this Government to preserve 500 jobs in our community. The £120 million investment and £150 million deal are Labour’s industrial strategy in action. It protects our industrial community and keeps essential national infrastructure viable. I hope that there is a consensus in this House that that is a welcome, positive step. It is worth noting that, earlier this year, the head of external affairs for INEOS told the Scottish Affairs Committee that prior to the November 2023 announcement of the refinery’s closure,
“Both Governments were given the opportunity, the data and access to the data to make an investment decision, and neither Government chose to do that.”
Both the Tories and the SNP had the opportunity in government to support workers at Grangemouth, but they did not lift a finger. Contrast that with this Government’s approach to the ethylene plant, acting decisively before it was too late.
Our action today and further action support new industry, with the welcome announcement last week of MiAlgae bringing 400 jobs across Scotland. Grangemouth’s industrial future must move forward and the Labour Government are providing substantial further resources towards that. Will the Minister provide us with greater detail on what guarantees the Government have received from INEOS for the long-term viability of the ethylene site at Grangemouth and when Grangemouth can expect further funding announcements from the National Wealth Fund’s £200 million commitment, as well as the additional £14 million secured by Scottish Labour MPs in the Budget last month, to get announcements made soon?
Chris McDonald
I thank my hon. Friend for his continued support for his constituents and the Grangemouth site. He welcomes the announcement and, quite rightly, he then presses me for more funding too. Further to the remarks that my right hon. Friend the Prime Minister made to the Liaison Committee earlier this week, on the £200 million committed earlier this year for projects through the National Wealth Fund, those projects are being examined and shortlisted. I hope that they will come forward soon. I also take this opportunity to commend Siobhan Paterson, councillor for Upper Braes on Falkirk council, who has supported my hon. Friend in this work. I hope that when voters go to the polls for the Scottish parliamentary elections in Falkirk East and Linlithgow, they will recognise that and vote Labour too.
(6 months, 1 week ago)
Commons Chamber
Chris McDonald
Yes, my hon. Friend is absolutely right about that. Time is muscle, as she says. Sadly, because the drug is currently only available, in the areas where it is available, to lads who are ambulant, the waiting time has meant that some lads out there who would have qualified for the drug now no longer do so. That is, frankly, heartbreaking. Of course, the use of one’s legs is not the only thing people are concerned about. We need to be able to use our arms to be able to dress ourselves, feed ourselves and brush our teeth, and givinostat could help with that.
It is very disheartening that while coping with all of this, families, parents and carers and so on are having to fight for access to the drug on a trust by trust basis. They have done that with the support of all the Members in the Chamber tonight. I am very grateful for the fact that they have turned up, because I know families are watching.
I also want to mention some Members who have approached me who would have loved to have been here but cannot be due to other commitments in the House. My hon. Friend the Member for Newcastle upon Tyne East and Wallsend (Mary Glindon) has campaigned on this subject for many years and chaired the all-party parliamentary group. A constituent of my hon. Friend the Member for Basingstoke (Luke Murphy), who has the disease, visited Parliament on Monday and was so pleased to see on the Annunciator that we were having this debate. My hon. Friends the Members for Bury North (Mr Frith) and for Bury South (Christian Wakeford) worked together to ensure that Manchester university NHS foundation trust does now provide the drug to their constituents. William from Codicote, a constituent of my hon. Friend the Member for Stevenage (Kevin Bonavia), is living with Duchenne. The hon. Member for Chester South and Eddisbury (Aphra Brandreth) has been supporting Mr and Mrs Binns, whose son Jack has Duchenne. They do not yet have access to givinostat and are trying to get it. I have also had representations from my hon. Friend the Member for Beckenham and Penge (Liam Conlon), the hon. Member for Westmorland and Lonsdale (Tim Farron) and my hon. Friend the Member for Altrincham and Sale West (Mr Rand).
We can see that there is broad support across all parties in the House, with Members working with their constituents to try to secure this drug which is free of charge—free of charge—to the NHS. We have heard that provision is very patchy across England. There is some central co-ordination in Scotland, but no lad in Northern Ireland can access the treatment.
Euan Stainbank (Falkirk) (Lab)
I thank my hon. Friend for securing this debate. It is important to acknowledge quality of life with this drug, but we also have to acknowledge that many people with Duchenne are living with 24/7 care needs, including my constituent, Dylan Phillips, who lives at the excellent care home in Glenbervie. Does my hon. Friend agree that those living with Duchenne in Scotland should be protected as they would be in England under continuing healthcare schemes, rather than having to bear the cost of their social care and living on only £35.90 a week with universal credit and adult disability payment, as they do not qualify for continuing healthcare in Scotland?
Chris McDonald
The important thing for us to consider here is that with only 1,100 or 1,200 lads and young men in the country living with the disease, and only 500 boys eligible for the treatment, we could at least expect some consistency in approach across the whole of the United Kingdom.