Endometriosis Education in Schools

Catherine McKinnell Excerpts

Tuesday 21st May 2024 Westminster Hall

[Catherine McKinnell (Newcastle upon Tyne North) (Lab)]

It is a pleasure to serve with you in the Chair, Ms Vaz. I congratulate the right hon. Member for Elmet and Rothwell (Sir Alec Shelbrooke) on securing this incredibly important debate on this incredibly important topic. He has campaigned tirelessly on the subject over many years, and he spoke incredibly passionately today, sharing very painful testimonies but really shining a spotlight on endometriosis and, in particular, highlighting how workplaces, Governments and schools can all provide better support to those experiencing the condition.

As the right hon. Gentleman rightly set out, endometriosis can be an incredibly challenging condition to live with and can impact every aspect of a person’s life. There is no way of preventing it, and its cause is not yet understood, yet it affects around one in 10 women in the UK. As he rightly pointed out, that means that on average at least one girl in every classroom will go on to experience it. The symptoms can start very early on in adolescence.

Thinking of the disease primarily as a barrier to pregnancy or as simply making a girl’s or woman’s periods more painful is a gross oversimplification and, in many cases, incredibly inaccurate, which is why this debate is so crucial. The disease can vary widely in severity in the way it manifests. For example, 12% of endometriosis cases target women’s lungs and can cause symptoms beyond chronic pain—symptoms that can shatter a woman’s confidence and have a debilitating effect on her mental health. Endometriosis can also cause chronic bowel and bladder-related symptoms. That can lead to depression, which the right hon. Gentleman has also highlighted.

[Sir Alec Shelbrooke]

It would be remiss of me not to mention the fact that endometriosis continues for many people after the menopause. It is not a disease just for women who menstruate; it can continue after the menopause, and it can start before menstruation. As the hon. Lady points out, this disease is not restricted to gynaecology.

[Catherine McKinnell]

The right hon. Gentleman once again demonstrates how incredibly knowledgeable he is about this issue, and how much that knowledge is lacking among the wider public and in this place. We are grateful to him.

It is so essential that young people are taught about their bodies in school, and that they learn about not just relationships and sex, but health and wellbeing. That must include what is and is not normal throughout puberty, the menstrual cycle and hormones, to set young girls and young people up to live healthy lives, both mentally and physically.

[Caroline Nokes]

The hon. Lady makes an important point about what is and what is not normal. When the Women and Equalities Committee did some work on women’s reproductive health, we got the message from various witnesses that they simply had no comprehension that their periods were not normal, because the message that they got from medics the whole time was, “You just have to get on with it.”

[Catherine McKinnell]

The right hon. Lady makes an important point—her Committee has done so much important work in this area—and it points to the importance of our education system in combating misunderstandings and providing people with the knowledge that they need to be armed with in order to manage what they and those around them will experience through life.

Sex education has been compulsory in English schools since 2017 and initially covered broad elements of sexual and reproductive health. After many years of campaigning, it was revised in 2020, and since then both boys and girls in state schools have been taught about periods and menstrual wellbeing. Of course, as with the rest of relationships, sex and health education, resources need to be tailored to the relevant age group. They need to be sensitive to a young person’s maturity and their needs.

The Government website states:

“Educating all pupils and students about periods is crucial to tackling the stigma which surrounds it.”

Labour very much agrees, and the next Labour Government will ensure that the curriculum taught in all state-funded schools reflects the issues and diversities of our society and ensures that all young people leave school ready for life.

We have already pledged to deliver, in government, an expert-led curriculum and assessment review, which will learn from international best practice and research across all areas, from history to health, to make sure that our curriculum is as strong and relevant as it can be. I look forward to hearing more from Members in this place and from stakeholders when the review gets started, to ensure that we pick up on the issues that have been identified in the debate today.

Part of that will require having enough teachers in the classroom to improve children’s outcomes and ensure that the curriculum can be delivered to every child as intended. Over the past few years, we have seen dire statistics on teacher recruitment, especially in secondary schools. That is why we have made tackling the recruitment and retention crisis a real focus and announced fully funded plans to deliver 6,500 more teachers to fill the gaps across the profession.

However, I recognise that education will only go so far. This is very much a health issue too, and one on which far too many women are being failed. Nearly as many women in the UK have endometriosis as have diabetes, yet it is unseen in everyday life. Women are waiting far too long for treatment; gynaecology waiting lists have seen the biggest increase of all specialisms in the NHS since the pandemic. As the right hon. Member for Elmet and Rothwell painfully set out, that leaves those experiencing endometriosis with years of unrelieved pain in the bowel or bladder, poor mental health, fertility problems—the list goes on.

I was glad to see the women’s health strategy published in 2022, but it must go further. We must address the NHS backlogs, bring waiting lists down and set out a plan to properly address the workplace challenges in the NHS. For those living with endometriosis who are impacted by poor mental health, Labour has committed to establish a mental health hub in every community. We will deliver mental health support in every secondary school and ensure that young people who are experiencing symptoms relating to such conditions, as well as all those struggling with their mental health, can access that support.

For too long, women’s health has been an afterthought. I am glad that debates like these are being held so that there is an opportunity to discuss these issues in Parliament. I reiterate my gratitude to the right hon. Member for Elmet and Rothwell for bringing forward the debate and for all his contributions on this subject. I also thank all the other hon. Members who have attended for their contributions. We have to get the education right. We have to ensure that young people have the information they need to live a healthy life. I look forward to hearing from the Minister what steps the Government will take to improve our education in this important area.