Autism and ADHD Assessments

Caroline Nokes Excerpts

Monday 6th February 2023 Westminster Hall

[Elliot Colburn]

I am grateful to my hon. Friend for his intervention, and he is absolutely right. The delay in diagnosis also means a delay in treatment. We have debated this topic many times; just last week in this Chamber, my right hon. Friend the Member for Tatton (Esther McVey) led a powerful debate on waiting times. I thank colleagues who have shared their stories individually.

I want first to touch on ADHD as a neurodiverse condition, which is believed to impact over 3 million people in the UK. However, there is substantial evidence that it is vastly underdiagnosed.

[Caroline Nokes (Romsey and Southampton North) (Con)]

I was fortunate enough to chair the debate led by my right hon. Friend the Member for Tatton (Esther McVey). Does my hon. Friend the Member for Carshalton and Wallington (Elliot Colburn) agree that this is not just about delays and a lack of proper diagnosis? There is a real and crucial problem, which came out in last week’s debate, about women and girls being less likely to be diagnosed than their male peers.

[Elliot Colburn]

I am grateful to my right hon. Friend for her intervention; she has nicked a later part of my speech. I commend her for the amazing work she does chairing the Women and Equalities Committee, which has done amazing work looking at the impact on women and girls in the equalities space. She is absolutely right, of course.

There is a lack of understanding about what ADHD actually is, how it affects people and how it can be treated. The best example is the common stereotype that those with ADHD are all hyperactive. That is a common misconception; only about 15% of patients diagnosed with ADHD have hyperactive tendencies. GPs and teachers hold the responsibility, in essence, for being gatekeepers to assessments, but there are significant issues with training and awareness, which I will go into in more detail. The single biggest issue I have had feedback on from those who have briefed me is the complete lack of data on ADHD care.

When I met with ADHD UK last week, I asked about national data on assessment waiting times and the number of individuals diagnosed. The answer I got was, quite simply, “We don’t know,”—or, at least, the NHS and the Government do not know. ADHD UK has done an extraordinary job conducting its own extensive research and, as an independent charity, it can provide partial answers based on information it has gathered through freedom of information requests to integrated care boards. The Government, however, do not collect national data, and it is therefore hard to have true oversight of the state of waiting times for ADHD assessments in the UK. I know the Minister is very much aware of the problem, so I hope she will provide more information on the steps the Government are taking to gather and assess data on ADHD.

Based on the data available to us and the anecdotal evidence shared with us by those who have gone through the system, we know that ADHD waiting times are indeed in a poor state. The average adult assessment waiting times are believed to be around six months in Scotland, a year in England, nearly two years in Wales and four years in Northern Ireland.