Oral Answers to Questions Debate
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Carla Lockhart
Main Page: Carla Lockhart (Democratic Unionist Party - Upper Bann)Department Debates - View all Carla Lockhart's debates with the Department of Health and Social Care
(4 days, 2 hours ago)
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Ashley Dalton
I thank my hon. Friend for raising this matter. Lily’s story really lays bare the heartbreak that rare diseases can bring and the vital role that early diagnosis can play. I am happy to meet my hon. Friend and Lily’s family. May I suggest that we meet when the UK National Screening Committee has completed its review, so that the Government have received advice on this important matter? We can then discuss that advice together.
Carla Lockhart (Upper Bann) (DUP)
In my constituency, there is a little boy called Teddy, who was diagnosed with MLD—one of the most cruel and degenerative diseases, which is now treatable if diagnosed at birth. Teddy was diagnosed too late because there was no screening. He has lost his ability to walk and talk, and he even fights to smile—a battle that no child should ever have to face. The Minister knows that the treatment is now available, yet MLD has not been added to the simple heel-prick screening tests. Will she also agree to meet Teddy’s family when she meets the family mentioned by the hon. Member for Hertford and Stortford (Josh Dean) to discuss this issue? It is too late for Teddy, but for so many other children it is not.