Welfare Reform Bill

Baroness Wilkins Excerpts

Tuesday 17th January 2012 Lords Chamber

[Baroness Wilkins]

My Lords, I strongly support the amendment, which has the support of many disability organisations and thousands of disabled people and their families who face losing help under the Government’s plans.

The noble Baroness, Lady Grey-Thompson, has already outlined the numbers of people affected by the Government’s proposals. These people are not fakers and scroungers. Of current low-rate care claimants, DWP statistics show that 20,000 are blind, 57,000 have learning disabilities, 94,000 have arthritis, and more than 100,000 experience psychosis or psychoneurosis. These are some of the people affected, and these conditions are clearly not fake. These are the people who the Government suggest should lose support.

Disabled people have told the Government exactly what losing low-rate care could mean. Examples include people who categorically state the clear health and social care consequences of cutting DLA, as the noble Baroness, Lady Grey-Thompson, outlined. I shall cite examples of people who have commented. One said:

“If DLA was reduced or removed then I would be unable to attend doctors and hospital appointments due to the cost of getting to and from them, and my health would be severely put at risk due to not having enough money to either keep myself warm and/or fed”.

Another said:

“We would be in crisis—end of story … my son would start self-harming again”,

and that even,

“prescriptions would be out of the question”.

The amendment could help prevent an explosion of avoidable NHS and social care needs, as the noble Baroness said. Will those needs of the disabled people who are losing help be met elsewhere? I fear that no support may be available from any other public service for many of the 400,000 who will lose all their DLA. The past decade has seen a shrinking of council social care service provision through the tightening of eligibility criteria. More than 80 per cent of councils in England now help only people with critical or substantial needs. The people losing DLA may very well not be able to access care services until crises develop. This leaves families, friends and neighbours to care for them. We already have one of the highest economic inactivity rates due to informal care provision. By not accepting this amendment the Government risk ignoring the impact on carers—especially on women aged between 46 and 64 who are more likely to have to take up caring responsibilities in lieu of formal services or benefit provision.

In proposing to abolish low-rate care provision, the department appears to fail to understand or, worse, to wilfully ignore the genuine needs of disabled people and carers. The amendment would help the Government ensure that they did not simply end the lifeline of DLA for disabled people and families who are unable to access alternative help until they receive expensive NHS treatment or residential care. Accepting the amendment and devising a fairer way to share the burden of the proposed dramatic cut in DLA resources would also help the Government ensure that they do not permanently undermine disabled people and the trust and confidence of carers. I hope that the Government really mean what they have said—that we are all in this together.

[Lord McKenzie of Luton]

My Lords, I will speak just briefly on this. It seems to me that the importance of this amendment has been heightened by the documentation we got just yesterday from the DWP, which emphasised that half a million people are going to miss out under the new system compared with the current arrangements. In passing, I might say that it would have been more helpful had we had that documentation a little earlier so we could have studied it in more detail, although clearly the noble Baroness, Lady Grey-Thompson, has delved into it more deeply than I have had the chance to do.

There must be an onus on the Government to undertake some sort of assessment of the consequences for those half a million people who are not going to be able to benefit under the new system. Some of the consequences have been spelt out, such as extra pressure on social services and the health service. We know there will be loss of income tax and national insurance because DLA helps many people to stay in work or to work longer than they otherwise would. All those consequences are quite apart from the worst feature which is the human cost for people who are going to miss out who had been able to rely on funding and not just at the lower rate. It may be that most of those who fall out of the system are currently on the lower rate of DLA, but that certainly is not the case for all of them.

It seems to me that this approach reinforces the perception that is too prevalent that if you claim these benefits then somehow you are not worthy and you do not really deserve them. Half a million people will come out of the system under these proposals. What are the consequences for them? What assessment have the Government undertaken of their needs as a consequence of falling out of the system? Have they or will they look at the sort of proposal that this amendment covers so that there is some basis for bringing some redress for those people who, on any analysis, are bound to suffer as a result of these proposed changes?

--- Later in debate ---

[Baroness Thomas of Winchester]

My Lords, that was a most moving contribution from the noble Baroness. I think we were all very touched by it. I declare an interest at this point, as I receive DLA.

There is a real fear among so many disabled people who have contacted us that the migration to PIP is going to be like a horrid game of musical chairs, because they all know that the Government want a 20 per cent cut, wherever that comes. They all think that when the music stops, they will be the one without a chair. They also know that DLA, for all its faults, has the lowest incidence of fraud, and many of them say they feel demonised in the press for being scroungers. Would it not be nice if some of the screaming headlines in tabloid newspapers were about the way in which many people receiving DLA are able to live independently, contributing hugely to society in many different ways, rather than the other way around?

On the low level of DLA fraud, we have to acknowledge that my noble friend, coming to this whole subject with a fresh eye, reckons not that the wrong people are claiming the benefit but perhaps that the net has so small a mesh that it tends to pick up everyone who has any level of disability rather than picking up only those with the greatest need. Therefore, his argument goes, you do not have to resort to fraud in order to get DLA; it is so loosely drawn that almost anyone can get it if they know how to fill in a long and complex form in the right way. Taxpayers are entitled at this point to ask why medical reports are looked at in only around half the cases, which I for one find quite inexplicable, but we will come to that in our debate on a later amendment.

However, it is the phrase

“those with the greatest need”

that is most worrying. It could mean many things and is most closely associated with those who are entitled to means-tested benefits, which we know is not the case for PIP, and long may this last. Among the arguments that the Minister deployed when he rejected this amendment in Grand Committee were that it was too widely drawn; would be too expensive; would lead to too long an assessment, which would be too intrusive; and too complex. The noble Baroness, Lady Campbell, countered this by saying that the proposed points-based tick box descriptors approach will not capture enough information about the barriers and costs faced by disabled people on a daily basis. Both are right, which is why this issue is so difficult. It would be almost impossible to translate this amendment into a points-based assessment in a meaningful way, although in an ideal world that is exactly what is required.

I wonder whether there is any way in which the sense of this admirable amendment, or elements of it, could somehow be incorporated into the assessment process. I shall be most interested in my noble friend’s reply.

[Baroness Wilkins]

My Lords, I support the amendment, which seeks to ensure that the assessment for the new entitlement is fit for purpose and fulfils the Government’s commitment to the social model of disability. As has already been noted, DLA occupies a unique space in the welfare benefits system as it recognises that disabled people face a plethora of extra, often prohibitive, costs as a result of living in our society with a condition or impairment.

We should all warmly welcome the Government’s repeated commitment to the social model of disability, for which, as many of your Lordships know, disabled people have fought long and hard. At the heart of the social model is the recognition that it is our society, not just their bodies, that disables people with health conditions and impairments. However, I fear that the proposed assessment for the new entitlement does not reflect this commitment. Despite the Government’s assurances in Grand Committee, the Minister admitted that the proposed test,

“is not a full social model assessment; it is not intended to be”.—[Official Report, 14/11/11; col. GC 199.]

I ask the Minister in his response to clarify to the House and disabled people why such a commitment was ever made in the first place.

The second draft of the PIP assessment criteria includes some small improvements from the first. However, it does not go nearly far enough. By assuming that a medical assessment will capture social and environmental barriers to independence, the Government risk homogenising the diverse difficulties that disabled people face in their everyday lives. The new threshold document makes many mentions of extra costs and barriers, but only a few of these will be captured by an assessment that looks exclusively at impairment.

It is with this in mind that I support the amendment of the noble Baroness, Lady Grey-Thompson. The assessment for the new entitlement must consider the real social, practical and environmental barriers faced by disabled people with impairments living in our society. I, along with disability charities such as Scope, disabled people’s organisations and disabled people across the country, voice great concern that the Government are reneging on their commitment to the social model of disability. Doing so would undo decades of campaigning for and progress towards a better and more equal society.

[Baroness Hollins]

My Lords, I thank the noble Baroness, Lady Browning, for her honest and enlightening contribution. I speak as a doctor and as a mother; I have two adult children who are in receipt of disability living allowance.

I wish to talk about the medical approach to disability. As a doctor, I have often been accused of being very “medical model”, usually by disabled people. The medical model to disability is reductionist. Many doctors and other health professionals do not understand the social model; they do not understand the social, practical and environmental barriers that people with physical and mental impairments face. I support the amendment, but it would require skilled and sensitive assessments to be available and they would need to be delivered by people who understand the social model.