Rare Cancers Bill

Amanda Hack Excerpts

Friday 11th July 2025 Commons Chamber

[Amanda Hack (North West Leicestershire) (Lab)]

I thank my hon. Friend the Member for Edinburgh South West (Dr Arthur) for his tireless work on the Bill. If anyone gets the opportunity to listen to the podcast he did a few weeks ago, it is well worth listening to—really insightful. He offers the opportunity to address the deep inequalities faced by people diagnosed with rare and less common cancers. In fact, this is the second debate on rare cancers that I have attended this week. The hon. Member for Esher and Walton (Monica Harding) mentioned the previous debate; I had the pleasure of sitting alongside my hon. Friend the Member for Truro and Falmouth (Jayne Kirkham) in that debate on myeloma—a rare blood cancer that affects just a few thousand people a year in the UK. However, there is a concern of the link between the condition and people flying helicopters in the military.

As we have heard, around 180,000 people are diagnosed with a rare or less common cancer every year. Last year, one of those was my constituent Isaac Wilton, and his story will be the basis of my speech. I had the pleasure of meeting Isaac last year. He was diagnosed with a grade 4 glioblastoma brain tumour at just 21—he had a seizure during a workout at the gym. His sister Harriet set up a fundraiser to pay for immunotherapy, and within the first six days they raised £144,000. Isaac and his family have organised various events to support the cause, including charity football matches and community events. Last October, family and friends joined Isaac to walk from Leicester City football club to Coalville clock tower, covering 13 miles—an extraordinary feat. The campaign is now at an incredible £193,000, just shy of its £200,000 goal to pay for Isaac’s treatment. His fundraising not only helps him access life-altering treatment, but raises vital awareness about the urgent need for more brain tumour research, which receives around just 1% of national cancer research funding.

Isaac’s voice matters much more than mine in this debate, and I would like to share something he has written with the House:

“The disease I’m fighting, that gives every single person diagnosed such a poor prognosis, only allows for a little hope. Living a life day to day almost waiting for the bad news. I’m one of the lucky ones. One of the lucky ones who was able to see a community of over 15,000 people come together. Some of which I knew and some from overseas…to raise enough money for me to at least explore other options that I cannot be given through the NHS. Options that might just give me a second chance. But me and others in this fight should be given a fair chance to win this battle because the chances right now are heartbreaking.”

This Bill will give hope to Isaac and others in his position. As we have heard, we are not talking about a minority. In the UK, 47% of cancer diagnoses and 55% of all cancer deaths are from rare and less common cancers. A system that leaves nearly half of cancer patients behind is not a fair system—not for Isaac, not for the father-in-law of my hon. Friend the Member for Edinburgh South West, and not for many others we have heard about today. I will support the Bill today, and I thank my hon. Friend for his incredibly dedicated hard work in bringing forward this change.