Parkinson’s Disease

Debate between Alison Bennett and Rachel Gilmour

Monday 17th November 2025 Westminster Hall

[Alison Bennett (Mid Sussex) (LD)]

It is a pleasure to serve under your chairship, Ms Lewell. I would like to begin by thanking the hon. Member for Colne Valley (Paul Davies) for securing this debate and for making such a well-articulated case for why more needs to be done to support people with Parkinson’s. I also thank him for mentioning the Big Sing, which brought to mind a brilliant event I went to in July: Picnic in the Park, hosted by the Parkinson’s UK Mid Sussex group. Their choir and their band were there, and we all had a brilliant singalong. I very much enjoyed it, and I pay tribute to the group for what it is doing—bringing people together and reducing isolation, both for those with Parkinson’s and their loved ones.

There are people like my constituent Sophie, whose mum Janet was diagnosed with Parkinson’s six years ago. Janet was active, spoke multiple languages and had an impressive career in business, but Sophie says that Parkinson’s has robbed Janet of much of who she is. Despite raising the loss of her sense of smell with her GP several times, as well as other symptoms such as increasingly small handwriting, it still took more than five years for Janet to get a diagnosis.

We know that Parkinson’s predominantly affects men, but much less is known or understood about Parkinson’s in women, including how symptoms might interact with menstrual cycles and the menopause. Sophie worries that the dismissive response Janet received when trying to get a diagnosis may be a very common experience for women across the board, and I think Sophie may be on to something here.

The e-petition bringing forward the Parky charter matters profoundly, and it makes a lot of sense. I will not spend time repeating many of the points that hon. Members have made in the past hour.

[Rachel Gilmour]

Does my hon. Friend agree that the challenges faced by those living with Parkinson’s are far from isolated, and that across neurological conditions such as Parkinson’s, multiple sclerosis, ME or chronic fatigue syndrome, there are calls for a joined-up neuro-optimal care pathway? A coherent national strategy is what is required.

[Alison Bennett]

My hon. Friend makes her point very well, and I agree with it.

Rather than repeat what other hon. Members have said, I will move to identifying the three or four main areas that the Liberal Democrats want to highlight, hopefully giving the Minister more time to address the many points that hon. Members have raised so far in the debate. Those issues are mental health, social care, work and medicines availability.

On mental health—and I think this is a critical point—nearly half of people with Parkinson’s experience anxiety or depression, and up to 60% will experience psychotic symptoms as the condition progresses. Yet mental health support remains inconsistent and inadequate generally, and specifically for people with Parkinson’s.

Universal Credit and Personal Independence Payment Bill

Debate between Alison Bennett and Rachel Gilmour

2nd reading
Tuesday 1st July 2025 Commons Chamber

[Alison Bennett]

I did not need to explain that to Sarah—she fully understands that—and I am about to address that point.

The Government’s last-minute climbdown has brought Sarah no comfort, because she never imagined she would be in a wheelchair. She never thought her life would change forever in an instant, and she knows that for thousands of people, that change is still to come. Life can turn on a sixpence—a single diagnosis, a single accident—and suddenly we find ourselves in a world we never imagined, up against barriers we never thought we would face. When that happens, the welfare system should be there to support us, not abandon us.

It is not just disabled people themselves who will be harmed by this Bill; it is also the millions of family carers—the unpaid carers—whose labour sustains our entire health and social care system.

[Rachel Gilmour (Tiverton and Minehead) (LD)]

Does my hon. Friend share my concern about the fate of unpaid carers, given that carer’s allowance hinges on a disabled person receiving PIP? With one in five people in my constituency who are disabled, which is well above the national average, should the Secretary of State commit to delinking carer’s allowance from PIP eligibility, or as a minimum, to providing automatic transitional payments during PIP reassessments, so that devoted carers are not left destitute while assessments drag on?

[Alison Bennett]

My hon. Friend makes a wise point. In my constituency of Mid Sussex, one in four carers are themselves disabled. Carers UK has warned in the clearest possible terms that the Bill still risks a severe and lasting financial impact on future unpaid carers and disabled people—people already facing significant hardship. Even after the Government’s partial concessions, around 81,000 future carers stand to lose support by 2029-30. That is not a small technical change; it is a decision that will push families closer to poverty, create a two-tier system of entitlements, and deepen inequalities.

Let me be clear: the Government have produced no impact assessment, no comprehensive evidence of what this will mean, and there has been no consultation with carers themselves. Carers have been ignored by the Government throughout this entire debacle, and their voice must now be heard loud and clear. The Liberal Democrats will continue to oppose the Bill, which risks stripping thousands of carers of vital assistance, and leaving some of the most vulnerable people in Britain without support. Yes, we agree that the welfare bill is too high, but if the Government were serious about bringing it down, they would be serious about fixing health and, critically, social care at pace, tackling chronic ill health at its root, rather than punishing those who live with its consequences.

Sarah told me that she wanted to speak up not for herself but for that future community of disabled people. In truth, most able-bodied people think that they understand disability, but until someone is there, they cannot comprehend the world of barriers that are thrown up. For many, that day will come after this Government’s reforms have been forced through. That is why I say to Ministers that they should pause the Bill and go back to the drawing board. They should consult the people whose lives they are about to upend, and show them the basic respect of listening before they legislate to take away their support. If we do not stand with disabled people and carers now, and if we do not insist on compassion and fairness at the heart of our welfare system, we will all pay the price later, not just in higher costs to the NHS and social care, but in the erosion of the values that bind our communities together.