Parkinson’s Disease

Alison Bennett Excerpts

Wednesday 21st May 2025 Westminster Hall

[Alison Bennett (Mid Sussex) (LD)]

It is a pleasure to serve under your chairmanship, Mr Stuart. I thank the hon. Member for Colne Valley (Paul Davies) for securing today’s debate. As hon. Members in the Chamber have noted, Parkinson’s does not just affect movement; it affects every part of life. It disrupts eating, swallowing, sleeping, mental wellbeing and independence. Although more than 40 symptoms are recognised, each person’s experience is different—as unique as their fingerprint.

I want to focus a little on one group today: the experience of women with Parkinson’s is often more complex, more misunderstood and more neglected. That was brought to my attention by a constituent of mine in Mid Sussex, whose mother was diagnosed six years ago; it took her mother five years to get an accurate diagnosis. Women are more likely to be misdiagnosed, and more likely to be underdiagnosed. They are more likely to experience delays in treatment and to have their symptoms dismissed or attributed to anxiety or the menopause. Some research even suggests that women’s Parkinson’s symptoms may fluctuate more dramatically due to hormonal cycles, but we do not yet fully understand that because, historically, as in so many other contexts, women have been under-represented in clinical trials. Women with Parkinson’s are also more likely to carry the invisible burdens of being carers themselves, all the while struggling with a progressive neurological disease.

We need gender-specific research, treatment strategies and clinical training. We need health professionals who understand that Parkinson’s in women is a critical gap in care that we must close. When I submitted a written parliamentary question about that recently, the response revealed that the National Institute for Health and Care Excellence has no specific guidelines for Parkinson’s that reflect those gender differences. We need, as a society, to realise how differently the disease can present in and affect women.

Across the board, people with Parkinson’s face long waits for specialist care, delays in diagnosis and difficulty in accessing essential treatments. I recently talked to Richard, a constituent of mine in Mid Sussex who has Parkinson’s. He spoke of the profound difference that such treatments can make; he told me that they make life-changing differences to him. Yet for too many they are inaccessible due to postcode lotteries, which hon. Members have mentioned, and a lack of trained staff. What is perhaps worse is that some patients in hospitals are not even receiving their medication on time. For people with Parkinson’s, that delay can mean the difference between mobility and being bedbound, between clarity and confusion, and between dignity and indignity. We have to do better.

We must also talk about mental health. Nearly half of all people with Parkinson’s experience anxiety and depression. As the disease progresses, up to 60% develop psychotic symptoms, and they are up to six times more likely to develop dementia. Those are staggering figures.

What needs to change? We Liberal Democrats are calling for urgent reform, starting with a full review of the medicine supply chain, to ensure that no person has to live in fear of running out of vital medication. We want a faster approval process for new treatments through an expansion of the Medicines and Healthcare products Regulatory Agency’s capacity—not slashing it, as the Government have done by cutting 40% of its workforce. Every person with Parkinson’s or other long-term conditions needs access to a named GP, because continuity of care should not be a luxury. We also need to restore the importance of mental health in NHS planning. The Government’s decision to let the share of NHS funding going to mental health to fall and to scrap targets for dementia and mental health was wrong and totally short-sighted.

We also know that family carers are at breaking point. I thank the hon. Members for Aberdeenshire North and Moray East (Seamus Logan) and for Strangford (Jim Shannon), as well as my hon. Friend the Member for Tewkesbury (Cameron Thomas), for raising the issue of the personal independence payment. According to the Government’s own assessment, 150,000 family carers are going to be impacted by 2029-30 as a result of the proposals on PIP, and that is on top of the 800,000 people losing PIP. Has the Minister pressed his colleagues in the Department for Work and Pensions on that point when it comes to conditions such as Parkinson’s?

People with Parkinson’s should be supported not only to live, but to live with independence and dignity. Parkinson’s is cruel: it steals movement, independence and, far too often, hope. But we can fight back with the right policies, the right funding and the right political will. We can make a difference. Let us listen to the voices of people living with Parkinson’s—including women, whose voices and needs have been overlooked for far too long.