Baby Loss Awareness Week

Debate between Alex Davies-Jones and Lilian Greenwood

Thursday 23rd September 2021 Commons Chamber

[Alex Davies-Jones (Pontypridd) (Lab)]

It is a privilege to speak in the debate and to follow the incredibly moving and personal contributions of so many hon. Members. I thank in particular the hon. Member for Truro and Falmouth (Cherilyn Mackrory) for her bravery and strength. By speaking out and helping to remove the stigma around these conversations, she will have helped thousands of families in all our constituencies. That is Lily’s legacy.

I have previously spoken in this place about the loss that I felt not having a child because of infertility. There was the pain that I felt whenever I saw a woman pushing a pram, the guilt of jealousy at every celebratory pregnancy announcement on social media, and my declining every baby shower invite I received. There was the shame of knowing that my body had failed me, but I also know how incredibly privileged I am because I did get my happy ending.

My husband and I always knew that the road to pregnancy would be difficult. After a miracle round of privately funded IVF—we were denied NHS funding because I was a stepmum—we were delighted to be pregnant with our first child. I was, hand on heart, absolutely ecstatic about the prospect of motherhood. I always knew that I was desperate to be a mother and, despite our difficulties, I loved every moment of being pregnant. However, as is often the case, life was more than ready to cause chaos.

When my son arrived two weeks early after an emergency caesarean, he stopped breathing. My beautiful child, my longed-for child, was whisked away to a neonatal intensive care unit where he spent two weeks fighting for survival while my husband and I were utterly beside ourselves with anxiety. Both of us were completely broken at the thought of losing our little one. I know that feeling is shared by so many parents across the country. Indeed, it is a common interest shared by members of the all-party parliamentary group on premature and sick babies, of which I am a proud vice-chair. I encourage colleagues speaking in the debate to sign up. We are a small group led by my friend the hon. Member for Glasgow East (David Linden), with a focused interest in how to support parents of babies who pass away or who are born premature or sick.

With that in mind, I must thank the many charities who support families such as ours who have been campaigning to change things for the better for many years. Bliss and the Baby Loss Awareness Week Alliance are just two of the fantastic groups doing brilliant work. I am grateful for their support in preparing for the debate.

[Lilian Greenwood (Nottingham South) (Lab)]

I very much welcome my hon. Friend’s speech. Will she join me in congratulating baby loss charity Forever Stars, based in Nottinghamshire, which successfully fundraised to provide improved facilities to support bereaved parents at both Nottingham’s hospitals, supports families with emotional support and practical advice and information, and this summer opened a remembrance garden at Highfields park?

[Alex Davies-Jones]

I congratulate my hon. Friend’s local charity on its fantastic work.

Research from Bliss suggests that every year more than 100,000 babies in this country are born needing neonatal care. Many of them will be like mine and will spend many weeks—even months—in neonatal care. As we all know, some will sadly never go home at all. Shockingly, the statistics are particularly bad for women who live in deprived areas: such cases have an 80% higher risk of stillbirth and neonatal death compared with women living in the least deprived areas. That is a devastating figure, made worse by not having significantly reduced between 2016 and 2018. We should be making progress, but instead, parents are still faced with little support when going through what can only be described as one of the most difficult experiences that a human can ever face.

Of course, we all recognise that, sadly, the coronavirus pandemic has only made this situation even bleaker for bereaved parents. Neonatal units across the country have been impacted, and pandemic restrictions that see parents and babies even more separated than usual are still in place, sadly, in many units. Indeed, Bliss’s recent report from May this year showed that only 30% of NHS trusts that took part in its study were allowing full access for both parents to ensure they could be with their baby together whenever they wanted, sometimes in the final moments of their short lives. The picture has slightly improved since then, in that only about 10% of neonatal units now do not offer parents full access. But some parents are still routinely locked out of their baby’s care, and for those who do not make it, the current system is utterly failing them.

I would like to say that the situation is better for those whose babies do survive, but, sadly, that is not the case either. When my own child was fighting for his life, I was still recovering from an emergency C-section, and I really had to rely on my husband in every way possible. This was only possible because my husband had a flexible employer, who allowed him to pool his annual leave to secure more paid time off work. It should not be this way. While I was pleased to see the Government recently announce plans to introduce neonatal leave that will cover up to 12 weeks when a baby is receiving neonatal care, this policy simply does not go far enough. The changes are unlikely to come into force until 2023 at the earliest, leaving about 300,000 families with babies who will be spending time in neonatal care alone in the next three years forgotten about once again.

I will say, however, that I raise these points not to be political—I know that is a rarity in this place—but instead because these barriers are ones that really do impact people across the country. We are all here today to raise awareness of baby loss, and awareness is important, but what is more important is action. While I recognise that health is an issue devolved to our Welsh Labour Government, it is fair to say that the UK Government need to lead the way in introducing a statutory leave entitlement for those impacted by premature births, infant loss and infertility.

To conclude, I urge the Minister to work with her colleagues across Government Departments and the devolved nations to take bold action to support future generations and tomorrow’s parents. I look forward to hearing from her an update on what steps the Government are taking to support parents across the UK who experience the unimaginable loss of losing their baby.