Women’s Health Strategy: Endometriosis and Fibroids Debate
Full Debate: Read Full DebateAbena Oppong-Asare
Main Page: Abena Oppong-Asare (Labour - Erith and Thamesmead)Department Debates - View all Abena Oppong-Asare's debates with the Department of Health and Social Care
(1 day, 6 hours ago)
Commons ChamberEndometriosis, fibroids and related gynaecological conditions ruin the lives of millions of women, yet these conditions remain undiagnosed, misdiagnosed, dismissed or mistreated within the health system. Women are told to shut up and stop complaining. We are fobbed off. We experience shameful delays. We are left in pain. My argument today is simple. We need the forthcoming women’s health strategy to address these conditions head-on, listen to women, tackle the taboos, and create timely and effective treatment.
One in 10 women suffer from endometriosis. It is a painful, debilitating condition, found in every community, workplace and family. That statistic means that at least 20 women Members in this current Parliament could be suffering from endometriosis. Despite being widespread, it remains misunderstood and dismissed, yet it ruins women’s ability to learn, earn, have sex, have children and live a normal, healthy life. It destroys mental health. In recent years, there has been greater awareness and a wider discussion of the impact of the condition, led by public figures such as the BBC’s Emma Barnett, and sparked by this year’s BAFTA-winning short film, “This Is Endometriosis”, which I hope to host a screening of in Parliament soon. In this House, I commend the great work of the chair of the all-party parliamentary group on endometriosis, my hon. Friend the Member for Bathgate and Linlithgow (Kirsteen Sullivan), and the Chair of the Women and Equalities Committee, my hon. Friend the Member for Luton North (Sarah Owen).
Millions of women, however, are still being failed by the NHS and wider society. There is still a lack of appreciation of the true nature of the disease, a lack of suitable support throughout the worlds of education and work, and stigma associated with the symptoms, which include heavy bleeding and intense, blinding pain. The average wait for diagnosis is nine years and four months, according to the latest report, launched this week, by the charity Endometriosis UK. The report highlights that diagnosis times are getting worse, not better. March is Endometriosis Action Month. It is vital that we use this opportunity to act now for the benefit of those suffering today, and those who will suffer long into the future. Sadly, even with a diagnosis, there is no cure—just pain management.
Olly Glover (Didcot and Wantage) (LD)
I thank the hon. Member for taking time for this intervention on her passionate speech about the huge number of women who suffer from endometriosis. Given the challenges with diagnosis, and the enormous pain and suffering that she has outlined, does she agree that far more money and Government support need to go into research, so that we can better understand this condition and how to diagnose and treat it?
It is nice to have a male ally in the Chamber—in fact, a few male allies. I think the issue is even wider than that. The Government are looking to publish the women’s health strategy quite soon. I will talk about this in more detail, but the data on the delays is already out there. We need to recognise the signs and make sure that people get the help they need. I will talk in detail about some of the work I have done, particularly in my constituency, to highlight the issue.
It has been often said, though it is worth repeating, that if these conditions were suffered by one in 10 men, there would be research into a cure, fast diagnosis, effective treatment, time off work, and a sympathetic, understanding reaction from all other men. If only women got the same reaction at work, or in the health system. Endometriosis UK found that 39% of its respondents had to visit the GP 10 or more times before endometriosis was suspected, and 46% were sent home from hospital without treatment. That is simply outrageous. To respond to what the hon. Member for Didcot and Wantage (Olly Glover) said, people are visiting GPs repeatedly before the condition is recognised.
When I surveyed my constituents, one told me:
“I had to go to my GP three times and leave an utterly desperate comment begging for help until they took me seriously.”
Another said:
“It was a condition I had never even heard of until it started to affect me.”
And another said the
“pain was so excruciating that it felt worse than birth pain”.
That is just so common. That is the experience of millions of women down the decades. Women of colour suffer the double whammy of facing misogyny in the NHS, as well as the racism that tells us that we have a higher pain threshold, or that “black women can handle it.” The recent interim report on maternity services by Baroness Amos last week highlighted the structural racism in the NHS, which leads to worse health outcomes for women of colour. The Endometriosis UK report says that for women of colour, the average wait for diagnosis is now 11 years. That is a grave injustice. This is not just a question of equitable health provision, but a question of social justice for women.
It of course makes no sense for the NHS, with stretched resources and overworked staff, to have millions of women who repeatedly present with their symptoms being sent away, returning in pain, and making complaints for years on end. Getting it right first time matters. I welcome the new NHS Online, a virtual hospital in England due to launch in 2027. Menstrual health conditions, including endometriosis, will be one of the priority areas. The NHS Online hospital will use the NHS app to triage patients and provide fast access to specialist clinicians online. Where needed, specialists will be able to arrange local testing for women. I invite the Minister to comment further on how NHS Online will help women with these conditions.
The forthcoming women’s health strategy affords us a huge opportunity to move forward. I know the Minister will not be divulging its contents to the House today, and that we have to wait to read the strategy in full, but both the Minister and her ministerial colleague in the other place, who is responsible for women’s health, get it. She knows that a range of conditions affecting so many millions must be front and centre in the strategy. The strategy must address early diagnosis and faster, effective treatment. It must tackle the stigma and taboos. Most of all, it must address the way that doctors are trained, so that endometriosis, fibroids and similar conditions are identified fast. We have made great progress in the early identification of sepsis, for example. We must do the same for endometriosis and fibroids.
Will the Minister give us an assurance that training for doctors will form a key part of the strategy? Will she work with the Royal College of GPs and NHS training providers to ensure that these conditions are central to the syllabus, and that every newly qualified doctor has the knowledge to identify endometriosis when a woman presents with the symptoms? Early diagnosis means early treatment, and that saves a huge amount of pain, dismay and taxpayers’ cash down the line. It really is a common-sense approach, given the huge number of women involved.
I long for the day when we have a cure. With proper medical research, which the hon. Member for Didcot and Wantage alluded to, I am sure that day will come. In the meantime, does the Minister agree that women should not be waiting for years in unnecessary pain, and that the women’s health strategy can and must offer women in pain a real sense of hope?