Type 1 Diabetes: Infant Testing

Debate between Sharon Hodgson and Victoria Atkins

Monday 9th March 2026 Westminster Hall

[The Parliamentary Under-Secretary of State for Health and Social Care (Mrs Sharon Hodgson)]

It is a pleasure to serve under your chairmanship from the Dispatch Box, Sir Alec. I thank my hon. Friend the Member for North Ayrshire and Arran (Irene Campbell) for opening this important debate, following the petition related to funding for infants to receive type 1 diabetes testing and routine care. I am grateful to all hon. Members who have taken part and for all the heartfelt speeches that we have been privileged to hear.

I am not surprised at all that the petition received 120,000 signatures after it was started, following—as we know—the tragic death of two-year-old Lyla Story from diabetic ketoacidosis mere hours after seeing her GP. I was deeply affected when I heard that a child so young had been taken so cruelly by a condition as common and manageable as type 1 diabetes. I thank and pay enormous tribute to Lyla’s parents, John and Emma Story, who have campaigned so passionately and powerfully at a time of such unimaginable grief. It is truly inspiring, and we hope that it will help to ensure that no other families will suffer as they have. I am so sorry, and I offer Mr and Mrs Story my deepest sympathies. No child or their family should be let down in this way.

We have started to make improvements to raise awareness, and this debate forms a very important part of that. During World Diabetes Day in November 2025, NHS England made a big push to raise awareness of the four Ts, which, as we have heard today, are the main symptoms of type 1 diabetes: thirst, tiredness, thinning, and an increased need to go to the toilet. This work was channelled via social media and a cascade to clinical networks, as well as by updating the nhs.uk pages to make them clearer. A RightCare toolkit was also published by NHS England, which is designed to support integrated care systems to design, plan and deliver high-quality treatment and care for children with all types of diabetes.

[Victoria Atkins (Louth and Horncastle) (Con)]

I warmly welcome the Minister to her place. I should declare that I was diagnosed with type 1 diabetes at the age of three, so I cannot begin to imagine the pain that Mr and Mrs Story, and other affected families who are in the Public Gallery or watching this debate online, have felt—particularly my constituent Levi, who lost her beloved son Eli at the age of two after five misdiagnoses of viruses and infection. Will the Minister undertake to ensure that future guidance will be drafted to emphasise to clinicians that infections and viruses can be not only a symptom, but sometimes a trigger of type 1 diabetes, so that clinicians will have, we hope, the understanding to avoid the tragic losses that we have heard about today?

[Mrs Hodgson]

I thank the former Secretary of State for Health for her important intervention. I was not aware that she was type 1 diabetic herself, and the case of Levi that she mentioned is so pertinent to what we are discussing. Mr Story has been working with NICE, and that guidance is currently being updated. As the right hon. Member says, it is so important to get that information out there, so that all GPs are brought up to date and know that infections and viruses can be a trigger, so I thank her for that intervention.

The RightCare toolkit that is being brought forward also contains important information for clinicians in setting out what good quality diabetes care looks like for children and includes guidance on timely and accurate diagnosis. However, we recognise that more needs to be done, and that is why NHS England is working on how we can better support NHS staff to diagnose patients as quickly as possible and raise awareness of symptoms for parents and families.