Data (Use and Access) Bill [HL]

Debate between Lord Russell of Liverpool and Lord Tarassenko

Committee stage
Wednesday 18th December 2024 Grand Committee

[The Deputy Chairman of Committees (Lord Russell of Liverpool) (CB)]

My Lords, before we proceed, I draw to the attention of the Committee that we have a hard stop at 8.45 pm and we have committed to try to finish the Bill this evening. Could noble Lords please speak quickly and, if possible, concisely?

[Lord Tarassenko (CB)]

My Lords, I support my noble friend Lady Kidron’s Amendment 211, to which I have put my name. I speak not as a technophobe but as a card-carrying technophile. I declare an interest as, for the past 15 years, I have been involved in the development of algorithms to analyse NHS data, mostly from acute NHS trusts. This is possible under current regulations, because all the research projects have received medical research ethics approval, and I hold an honorary contract with the local NHS trust.

This amendment is, in effect, designed to scale up existing provisions and make sure that they are applied to public sector data sources such as NHS data. By classifying such data as sovereign data assets, it would be possible to make it available not only to individual researchers but to industry—UK-based SMEs and pharmaceutical and big tech companies—under controlled conditions. One of these conditions, as indicated by proposed new subsection (6), is to require a business model where income is generated for the relevant UK government department from access fees paid by authorised licence holders. Each government department should ensure that the public sector data it transfers to the national data library is classified as a sovereign data asset, which can then be accessed securely through APIs acting

“as bridges between each sovereign data asset and the client software of the authorized licence holders”.

In the time available, I will consider the Department of Health and Social Care. The report of the Sudlow review, Uniting the UK’s Health Data: A Huge Opportunity for Society, published last month, sets out what could be achieved though linking multiple NHS data sources. The Academy of Medical Sciences has fully endorsed the report:

“The Sudlow recommendations can make the UK’s health data a truly national asset, improving both patient care and driving economic development”.


There is little difference, if any, between health data being “a truly national asset” and “a sovereign asset”.

Generative AI has the potential to extract clinical value from linked datasets in the various secure data environments within the NHS and to deliver a step change in patient care. It also has the potential to deliver economic value, as the application of AI models to these rich, multimodal datasets will lead to innovative software products being developed for early diagnosis and personalised treatment.

However, it seems that the rush to generate economic value is preceding the establishment of a transparent licensing system, as in proposed new subsection (3), and the setting up of a coherent business model, as in proposed new subsection (6). As my noble friend Lady Kidron pointed out, the provisions in this amendment are urgently needed, especially as the chief data and analytics officer at NHS England is reported as having said, at a recent event organised by the Health Service Journal and IBM, that the national federated data platform will soon be used to train different types of AI model. The two models mentioned in the speech were OpenAI’s proprietary ChatGPT model and Google’s medical AI, which is based on its proprietary large language model, Gemini. So, the patient data in the national federated data platform being built by Palantir, which is a US company, is, in effect, being made available to fine-tune large language models pretrained by OpenAI and Google—two big US tech companies.

As a recent editorial in the British Medical Journal argued:

“This risks leaving the NHS vulnerable to exploitation by private technology companies whose offers to ‘assist’ with infrastructure development could result in loss of control over valuable public assets”.


It is vital for the health of the UK public sector that there is no loss of control resulting from premature agreements with big tech companies. These US companies seek privileged access to highly valuable assets which consist of personal data collected from UK citizens. The Government must, as a high priority, determine the rules for access to these sovereign data assets along the lines outlined in this amendment. I urge the Minister to take on board both the aims and the practicalities of this amendment before any damaging loss of control.