Data Protection Bill [HL]

Lord Patel Excerpts

Report stage (Hansard - continued): House of Lords
Monday 11th December 2017 Lords Chamber

[The Earl of Erroll (CB)]

My Lords, I will say a couple of things on this in full support of the proposition made by the noble Baroness, Lady Neville-Jones. These issues are very complicated. We tend to try to brush them aside and hope that they will be dealt with by the person who is enforcing and regulating. But that can be dangerous, because they will find it very difficult as well, and sometimes, if you do not have the intention in the Bill, it may just not happen.

This is important because, although I fully support the intention and objectives of the GDPR in the Data Protection Bill in front of us, which is there for all the right reasons, we have to be careful not to throw out the baby with the bathwater. This is one of those instances where, in trying overzealously to introduce a rules-based system in a complex world and a complex society, you find unexpected consequences. Some of them cannot be defined terribly easily in regulation, but I think it would be wise to put this in an amendment.

We in this House tend to think in principle much more than another place. To try to deal with this in another place when it gets there may be unwise in case they run out of time. It would be good to put something in the Bill in this House at Third Reading, if the Minister were so minded, and I would wholeheartedly support that.

[Lord Patel (CB)]

My Lords, I have already spoken on this at length and I do not intend to repeat myself, but I support the amendment from the noble Baroness, Lady Neville-Jones. This is a very important database. It is not just national but international, and it is difficult to collect. That is why I am glad that an accommodation has been made to support the amendment.

[Lord Stevenson of Balmacara]

My Lords, I add my voice in support of the noble Baroness’s amendment and wish it well. I suspect she has run into the logjam that constitutes the waiting list to see the Bill team and the Ministers, who have been worked so hard in the last few months. But I hope it will be possible, given that there is a bit of time now before Third Reading, for this matter to be resolved quickly and expeditiously before then.

--- Later in debate ---

The amendments have been developed in close liaison with the Wellcome Trust and I am grateful to it for its help. On that note, I hope my noble friend feels able to withdraw her amendment and that all noble Lords feel able to support the government amendments in the group.

[Lord Patel]

Before the Minister sits down, I thank him and his team immensely for taking on board the concerns that I and others expressed about the interventional medical research that the government amendments will now allow. It cannot be overstated: this will now allow important research, including clinical trials, to be undertaken that will advance medical research in the United Kingdom, making it an attractive place to do such research. I thank him immensely; I am most grateful.

[Baroness Neville-Jones]

My Lords, I am extraordinarily grateful to noble Lords who have spoken in support of my amendment, and for the comprehension that the Minister has shown for the work of the patient support groups. They will have greatly appreciated hearing how much the Government support what they do.

I very much hope that we can work on an amendment that will both meet the Government’s concerns and effectively cover the work of those organisations, which, as I think the Minister understands, work in difficult circumstances. They stand ready to participate with the Government in getting language that will both cover their concerns and ensure that we do not open the door to those for whom it is not intended. On that basis, I beg leave to withdraw the amendment.