(11 years ago)
Grand CommitteeMy Lords, I wish to support the noble Baroness, Lady Pitkeathley, in this amendment. The Minister is right in saying that the framework is there in the present legislation or, at least, it should be there. The difficulty is that, because the focus among those who make assessments is split between adults and children and we do not have holistic family assessments, often the parents are lost. A family whom I met recently had just, after many years, been given a period of respite care, but the parent carers had not realised that that would make the difference in their being able to continue to care for their son, an extremely difficult young man. A series of workers had never suggested to them that their needs might be met in order to meet the needs of their child. That is the important message that front-line workers need to understand. This amendment would help them to understand that, unless you meet the needs of parents, you do not meet the needs of children.
I, too, had this query when I heard that it had been commented that to assess parents would undermine the rights of children. Assessing parents enhances the rights of children. Many of us who have worked in this field and continue to work with and meet families see it regularly. We also see when people fail to notice that parent carers are beginning to fail, simply because of their exhaustion and the fact that they have had no relief and no assessment for any kind of services, sometimes quite small ones that would make all the difference to their being able to continue.
I support this because we should have a family approach whereby children with disabilities will be maintained in their own homes rather than having to go into caring facilities because their parents are unable to look after them. I am losing my power of speech, like most of us at this time of night, so I leave it there. My only other point is that the noble Baroness, Lady Tyler, made a passionate speech about integration, which I think we all feel should happen.
My Lords, I welcome the opportunity to debate the important issue raised by the noble Baroness, Lady Pitkeathley. I recognise the tremendous job that parent carers of disabled children do and the challenges that it can bring. It is right that children’s legislation is the place to address this. I am pleased that the Minister for Children and Families will be meeting Paul Burstow to discuss this further.
We are confident that there is a strong framework of support in place to support parent carers of disabled children. Parent carers’ needs can be assessed as part of assessing the needs of children in need under the Children Act 1989. Local authorities can provide services to the family members of a child in need with a view to safeguarding or promoting the child’s welfare.
As parents, and as adults caring for children, parent carers are in a very different position from adults caring for adults or young carers. We should be wary of simply replicating arrangements that are in place for those other carers without understanding the interrelationship with other legislation and the potential for unintended consequences. Unlike for young carers, where we have responded to specific concerns and substantial evidence, there is a lack of evidence for the need to change the type of support or the way in which it is provided for parent carers of disabled children. That is not to say that everything is perfect, nor to underplay the challenges that parents of disabled children face, nor to claim that all parent carers receive the support that they need. However, it is not clear that specific changes to legislation are the answer.