Medical Data Sharing Debate

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Medical Data Sharing

Lord Naseby Excerpts
Monday 1st June 2015

(9 years, 6 months ago)

Lords Chamber
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Baroness Chisholm of Owlpen Portrait Baroness Chisholm of Owlpen
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I thank the noble Lord for his kind words. I hope that your Lordships will have patience while I learn the ways of this House. Indeed, I feel that behind me my noble friend Lord Howe, who has indeed done an incredible job over the past 18 years, is sitting on his hands at the moment, longing to rush to the Dispatch Box, push me aside and take over this brief.

To answer the noble Lord’s question, the Secretary of State intimated that we are determined to guarantee that personal data are protected, and we are enthusiastic about reacting to the benefits of sharing them. Indeed, Professor Peter Weissberg of the British Heart Foundation stated:

“Locked inside our medical records is a mine of vital information that can help medical scientists make discoveries that can improve … and save lives”.

We must keep this at the forefront of our minds.

Lord Naseby Portrait Lord Naseby (Con)
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Is it not a tragedy that 700,000 patients have decided to opt out of this scheme? Is this not comparable to what happened with MMR, when mothers opted out but were subsequently found to have done so to the detriment of their children? Against that background, while of course one protects the rights of any individual to make their own decision, will the Government ensure that all publicity is put behind what my noble friend has said in her answers today?

Baroness Chisholm of Owlpen Portrait Baroness Chisholm of Owlpen
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My Lords, I think that is very true. It is important that we take the patients with us. We need to remember that an informed patient is not a panicked patient. That is why a pathfinder will be started first to ensure that we have everything in place before we roll out these data nationwide.