Asked by: Lord Freyberg (Crossbench - Excepted Hereditary)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what assessment they have made of the potential benefits of technology investments, including optical character recognition and natural language processing, to automate manual processes in clinical audit and registry submission across NHS England; whether businesses cases for that investment have been prepared; if so, in which disease areas or audit programmes those cases were prepared; and what were the outcomes of those cases.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
NHS England is exploring a range of functionality to automate manual data processes aligned to clinical improvement, including for our Outcomes & Registries Programme, National Disease Registration Service, frontline digitisation and the promotion and adoption of new technology across provider systems. Our central data and digital transformation business cases are primarily focused on the adoption of the technical capabilities and innovations, applicable in many areas, rather than focusing within specific individual audits or registries alone. Some business cases have been accepted and moved forward.
Asked by: Lord Freyberg (Crossbench - Excepted Hereditary)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what proportion of health technology assessments submitted to the National Institute for Health and Care Excellence in the past five years have related to cancer; and what assessment they have made of the importance of up-to-date national registry data to those evaluations.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
In the financial years 2021/22 to 2025/26, to date, the National Institute for Health and Care Excellence (NICE) has made 429 technology appraisal recommendations. Of these appraisals, 218 relate to cancer medicines. The Department has not made any assessment of the importance of an up-to-date national registry on those evaluations. NICE works with companies and wider stakeholders throughout the appraisal process to ensure that its appraisals take into account the available evidence.
Asked by: Lord Freyberg (Crossbench - Excepted Hereditary)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what is the current average time from test request to result for tests provided by NHS England's genomic medicine laboratories; and what assessment they have made of the impact of those turnaround times on patient access to appropriate treatment for (1) SOD1 testing in motor neurone disease, (2) germline BRCA1/2 testing in hereditary female cancers, and (3) homologous recombination deficiency testing in breast cancer and ovarian cancer.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
In December 2025, the average turnaround time for genomic tests processed through the NHS Genomic Laboratory Hubs were 42 days for the test code which includes SOD1 analysis for motor neuron disease, as well as other clinical indications, 37 to 42 days for germline BRCA1/2 testing, and 22 days for homologous recombination deficiency (HRD) testing for ovarian carcinomas. These are within the national targets of 42 days for the test code which includes SOD1 analysis for motor neuron disease and BRCA1/2 and 28 days for HRD, supporting timely clinical decision‑making. As genomic results directly inform treatment choices for motor neurone disease, hereditary female cancers, and ovarian carcinoma, maintaining these turnaround times is essential to ensuring patients can access appropriate therapies without delay.