Asked by: Lord Foulkes of Cumnock (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what steps they are taking to improve access to clinical trials for new disease-modifying dementia treatments; and how they will ensure that early and accurate diagnosis is prioritised.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
Government responsibility for delivering dementia research is shared between the Department of Health and Social Care, with research delivered via the National Institute for Health and Care Research (NIHR), and the Department for Science, Innovation and Technology, with research delivered via UK Research and Innovation.
The Department of Health and Social Care is committed to ensuring that all patients, including those with dementia, have access to cutting-edge clinical trials and innovative, lifesaving treatments.
As an example, the Department, via the NIHR, is investing nearly £50 million into the Dementia Trials Network, a coordinated network of trial sites across the United Kingdom, which will offer people with dementia the opportunity to take part in early phase clinical trials irrespective of where they live. This is complemented by the £20 million Dementia Trials Accelerator, designed to position the UK as the destination of choice for late phase clinical trials in dementia and neurodegenerative diseases.
In partnership with Alzheimer’s Society, Alzheimer’s Research UK, and Alzheimer Scotland, the NIHR also delivers Join Dementia Research, an online platform which enables the involvement of people with and without a dementia diagnosis, as well as carers, to take part in a range of important research, including studies evaluating potential treatments for dementia.
The Government’s Dame Barbara Windsor Dementia Goals programme, which is expected to have nearly £150 million of Government funding allocated to it, or aligned with it, aims to speed up the development of new treatments for dementia and neurodegenerative conditions by accelerating innovations in biomarkers, clinical trials, and implementation.
Our health system has struggled to support those with complex needs, including those with dementia. Under the 10-Year Plan, those living with dementia will benefit from improved care planning and better services. We will deliver the first ever Modern Service Framework for Frailty and Dementia to deliver rapid and significant improvements in quality of care and productivity. This will be informed by phase one of the independent commission into adult social care, expected in 2026.
We recognise the importance of a timely diagnosis, and remain committed to increasing diagnosis rates and ensuring that people can access any licensed and National Institute for Health and Care Excellence-recommended treatment and/or support they need.
Asked by: Lord Foulkes of Cumnock (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask Her Majesty's Government what discussions they have had with the Associated Retirement Community Operators on expanding housing-with-care.
Answered by Lord Kamall - Shadow Minister (Health and Social Care)
The white paper commits to incentivise the supply of supported housing, including housing-with-care and integrated retirement communities through the Care and Support Specialised Housing Fund, with £213 million available over the next three years. This is alongside a new £300 million investment to connect housing with health and care, increase the supply of supported housing and local expenditure on services for those in supported housing.
We will work with local authorities, housing providers and others to design and establish this new investment. Further detail on how this will be targeted and the impact we expect to deliver will be made available as it develops. We are engaging with stakeholders from the private and social sectors, including the Associated Retirement Community Operators, to inform future cross-Government action to stimulate a specialist housing market. This includes considering the merits of different engagement and delivery models, including proposals for a cross-Government taskforce.
Asked by: Lord Foulkes of Cumnock (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask Her Majesty's Government what assessment they have made of the proposal from the Associated Retirement Community Operators on setting up a cross-government task force on expanding housing-with-care.
Answered by Lord Kamall - Shadow Minister (Health and Social Care)
The white paper commits to incentivise the supply of supported housing, including housing-with-care and integrated retirement communities through the Care and Support Specialised Housing Fund, with £213 million available over the next three years. This is alongside a new £300 million investment to connect housing with health and care, increase the supply of supported housing and local expenditure on services for those in supported housing.
We will work with local authorities, housing providers and others to design and establish this new investment. Further detail on how this will be targeted and the impact we expect to deliver will be made available as it develops. We are engaging with stakeholders from the private and social sectors, including the Associated Retirement Community Operators, to inform future cross-Government action to stimulate a specialist housing market. This includes considering the merits of different engagement and delivery models, including proposals for a cross-Government taskforce.
Asked by: Lord Foulkes of Cumnock (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask Her Majesty's Government what form of cross-government work they are undertaking on expanding housing-with-care.
Answered by Lord Kamall - Shadow Minister (Health and Social Care)
The white paper commits to incentivise the supply of supported housing, including housing-with-care and integrated retirement communities through the Care and Support Specialised Housing Fund, with £213 million available over the next three years. This is alongside a new £300 million investment to connect housing with health and care, increase the supply of supported housing and local expenditure on services for those in supported housing.
We will work with local authorities, housing providers and others to design and establish this new investment. Further detail on how this will be targeted and the impact we expect to deliver will be made available as it develops. We are engaging with stakeholders from the private and social sectors, including the Associated Retirement Community Operators, to inform future cross-Government action to stimulate a specialist housing market. This includes considering the merits of different engagement and delivery models, including proposals for a cross-Government taskforce.
Asked by: Lord Foulkes of Cumnock (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask Her Majesty's Government what are the implications of the Adult Social Care Reform White Paper for (1) housing-with-care, and (2) integrated retirement communities
Answered by Lord Kamall - Shadow Minister (Health and Social Care)
The white paper commits to incentivise the supply of supported housing, including housing-with-care and integrated retirement communities through the Care and Support Specialised Housing Fund, with £213 million available over the next three years. This is alongside a new £300 million investment to connect housing with health and care, increase the supply of supported housing and local expenditure on services for those in supported housing.
We will work with local authorities, housing providers and others to design and establish this new investment. Further detail on how this will be targeted and the impact we expect to deliver will be made available as it develops. We are engaging with stakeholders from the private and social sectors, including the Associated Retirement Community Operators, to inform future cross-Government action to stimulate a specialist housing market. This includes considering the merits of different engagement and delivery models, including proposals for a cross-Government taskforce.
Asked by: Lord Foulkes of Cumnock (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask Her Majesty's Government whether they will publish separately a list of (1) all meetings between all health ministers and the private health care provider, Babylon, and (2) social and other events organised by Babylon attended by one or more health ministers.
Answered by Baroness Blackwood of North Oxford
Since the current Government came into office in 2017, there has been only one external meeting between a Departmental Minister and Babylon, as of June 2019. This was in March 2018 when the Minister of State for Care (Caroline Dinenage MP) attended a meeting where Babylon and other organisations’ representatives were present. Lists of Departmental external meetings are publicly available online.
Asked by: Lord Foulkes of Cumnock (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask Her Majesty’s Government how much has been spent on research into the causes of, and treatment and cure for, motor neurone disease by all publicly funded departments and bodies in each year since 2010.
Answered by Earl Howe - Shadow Deputy Leader of the House of Lords
The following table shows expenditure on research on motor neurone disease (MND) and amyotrophic lateral sclerosis (ALS - a sub type of MND) by the Medical Research Council and by the National Institute for Health Research (NIHR) through its research programmes, research centres and units, and research fellowships.
£ million
| 2010-11 | 2011-12 | 2012-13 | 2013-14 |
Medical Research Council | 7.5 | 4.2 | 4.1 | n/a |
National Institute for Health Research | 0.1 | 0.4 | 0.7 | 0.5 |
Total | 7.6 | 4.6 | 4.8 | n/a |
Total spend by the NIHR on MND/ALS is higher than this because expenditure by the NIHR Clinical Research Network (CRN) on this topic cannot be disaggregated from total CRN expenditure.