Question to the Department of Health and Social Care:

To ask His Majesty's Government what steps they are taking to improve access to clinical trials for new disease-modifying dementia treatments; and how they will ensure that early and accurate diagnosis is prioritised.

Government responsibility for delivering dementia research is shared between the Department of Health and Social Care, with research delivered via the National Institute for Health and Care Research (NIHR), and the Department for Science, Innovation and Technology, with research delivered via UK Research and Innovation.

The Department of Health and Social Care is committed to ensuring that all patients, including those with dementia, have access to cutting-edge clinical trials and innovative, lifesaving treatments.

As an example, the Department, via the NIHR, is investing nearly £50 million into the Dementia Trials Network, a coordinated network of trial sites across the United Kingdom, which will offer people with dementia the opportunity to take part in early phase clinical trials irrespective of where they live. This is complemented by the £20 million Dementia Trials Accelerator, designed to position the UK as the destination of choice for late phase clinical trials in dementia and neurodegenerative diseases.

In partnership with Alzheimer’s Society, Alzheimer’s Research UK, and Alzheimer Scotland, the NIHR also delivers Join Dementia Research, an online platform which enables the involvement of people with and without a dementia diagnosis, as well as carers, to take part in a range of important research, including studies evaluating potential treatments for dementia.

The Government’s Dame Barbara Windsor Dementia Goals programme, which is expected to have nearly £150 million of Government funding allocated to it, or aligned with it, aims to speed up the development of new treatments for dementia and neurodegenerative conditions by accelerating innovations in biomarkers, clinical trials, and implementation.

Our health system has struggled to support those with complex needs, including those with dementia. Under the 10-Year Plan, those living with dementia will benefit from improved care planning and better services. We will deliver the first ever Modern Service Framework for Frailty and Dementia to deliver rapid and significant improvements in quality of care and productivity. This will be informed by phase one of the independent commission into adult social care, expected in 2026.

We recognise the importance of a timely diagnosis, and remain committed to increasing diagnosis rates and ensuring that people can access any licensed and National Institute for Health and Care Excellence-recommended treatment and/or support they need.