Terminally Ill Adults (End of Life) Bill

Lord Carter of Haslemere Excerpts

Friday 9th January 2026 Lords Chamber

[Lord Carter of Haslemere (CB)]

My Lords, I speak to the six amendments in my name in this group. I do not need to explain what they say because they are all replicated by other amendments in the group, so I can be very brief. All these amendments are intended to ensure that a person seeking assistance to end their life first be referred to a registered medical practitioner who specialises in palliative, hospice and other care for the purpose of a full assessment—the operative word being “assessment”, not necessarily treatment. The Bill currently requires merely that a medical practitioner “offer” a referral to a specialist palliative care practitioner. This is inadequate in relation to such critical decisions as choosing whether to live or seek a state-assisted death.

It is important to note that all these amendments are based on evidence. In countries with assisted dying—Oregon has been referred to—experts say that patients who request help to die often change their minds if provided with proper palliative care. Yet the Government’s impact assessment confirms that fewer than half of dying people have input from a specialist palliative care team in the last three months of their life. It seems hard to dispute the case, therefore, for the Bill requiring that persons seeking a state-assisted death be given a full palliative care assessment, with the opportunity to choose to experience modern specialist palliative care at its very best. It is about doing everything humanly possible to keep people alive with as little pain and suffering as possible, and giving priority to life over death wherever possible.

Recalling our debate yesterday about which amendments the noble and learned Lord, Lord Falconer, might be prepared to accept, the amendments in this group are, like the previous group, pivotal to the decision a dying person will have to make if this Bill is enacted. It would save much time on Report if the noble and learned Lord could indicate now whether he can accept one or more of them. The Government would then have a responsibility to ensure that adequate palliative care specialists are available.

I recall, as I did at Second Reading, the wise words of the Minister, the noble Baroness, Lady Merron, who, in answer to an Oral Question in this House on 4 September 2024, said that the Government’s

“commitment is to ensure that any debate on assisted dying … takes place in a broader context of access to high-quality palliative and end-of-life care”.—[Official Report, 4/9/24; col. 1151.]

The amendments in this group would help to ensure that a person at least has a real choice of whether to access that palliative and end-of-life care or whether to seek a state-assisted death.

[Baroness Brown of Silvertown (Lab)]

My Lords, my Amendment 51 and others would require the providers of assisted dying services to ensure that all persons seeking such services have discussed the range of end-of-life options available to them with a palliative care specialist.

The Government and proponents of the Bill have promised that end-of-life care will not suffer in order to accommodate assisted dying. I have significant reservations about whether this would be possible, and I fear a push factor, particularly for those who are vulnerable, those who are without family and, to be absolutely frank, those who are poor and cannot fund their own care. When done right, as we know, palliative care can provide a dignified end of life and alleviate the desire to hasten one’s death. Equitable access to options for end-of-life care must be a cornerstone for this Bill, which is why I have laid these amendments. I want to ensure, as far as humanly possible, that all people have and know that they have equal access to palliative care, to treatments that may extend life and to specialist teams to manage the symptoms and pain and to provide dignity.

This Committee must accept that equal access to these services, as for many public services, is not guaranteed and is rarely delivered. I give just one example, due to time. A Liverpool resident with the terrible asbestos-related mesothelioma cancer can undergo a specialist injection that has a high chance of abolishing the pain, whereas a resident of the Midlands, who may be unfit to travel to Liverpool, simply cannot because there are so few specialists trained to take this work on. Therefore, access is obviously limited.

Clauses 5 and 12 require doctors to have discussions about disease prognosis, treatments and symptomatic alleviation with patients. Clause 5 includes an offer to refer them to a specialist. Although these are important discussions, which must be had, they have to be conducted by somebody properly trained and experienced in such matters. For conditions that are specialist care cases, such as motor neurone disease, most doctors will have minimal involvement in the management of that condition and will likely not have the skills and training to adequately fulfil the duties that the Bill places on them. A specialist referral is absolutely necessary to that ensure patients are able to reach an informed decision about their care with somebody who properly understands the disease, how that disease will progress and what can be put in place to alleviate their distress and pain.

A person seeking assisted dying will be worried about their future, losing their independence and dignity and placing a huge burden on their families. A dedicated palliative care specialist would have the expertise, skill and training to provide the highest level of information and support, tailored to the individual needs of each patient, and have specialist knowledge of the condition that the patient is experiencing. Clause 1 requires that a person

“has a clear, settled and informed wish to end their own life”.

I believe that you can ensure a settled and informed wish and reach an informed decision only after properly exploring all available care and treatment options with dedicated palliative care specialists and having those options available to you. My amendment would therefore create a duty on all people involved in the provision of assisted dying services to ensure that those discussions have occurred, covering care options including symptom management and home care provision.

I welcome the amendments tabled by other colleagues that would ensure a dedicated palliative care assessment is part of the assisted dying process and I believe that my amendment can work alongside theirs. My amendment would also cover consultations with palliative care specialists that occur prior to a person seeking assisted dying, providing they cover the criteria outlined in the amendment. You can reach a clear, informed decision to end your own life only after having the advice and support to truly be able to weigh your options. That guarantee should absolutely be in the Bill.