Autism

Debate between Jim Shannon and Angela Watkinson

Tuesday 20th November 2012 Commons Chamber

[Jim Shannon]

I thank my hon. Friend for that comment. We want to exchange our ideas and to ensure that if something is not working right, we do it better. Ministers in Northern Ireland would be more than happy to be involved.

I want to highlight some of the elements that must form the foundations of any autism legislation and that have been implemented in Northern Ireland. The Autism Act (Northern Ireland) 2011, unlike the English autism legislation, is equality driven and lifelong focused. We look at the child at an early stage and as they work their way through school and into jobs, which each of the Members who have spoken have mentioned.

The 2011 Act amends the Disability Discrimination Act 1995 to include those with social communication disabilities such as autism. That supersedes the Equality Act 2010 in Great Britain, which provides recognition only in guidance, not in the primary legislation. We have taken that a stage further. The 2011 Act changes the definition of disability in the 1995 Act so that the entitlement to services of people with autism is no longer measured solely by their IQ or their physical ability. Some of the things that a child or young person is asked, such as whether they can walk from A to B, are ridiculous when trying to assess disability. Access to services and benefits also now relates to a person’s level of social and communication impairment or function.

Previously, disability living allowance was disallowed because autism did not clearly fit into the protections and the definition in the 1995 Act. That is no longer the case. I suspect that all Members in the Chamber have fought DLA appeals for young people who have autism. Ten years ago, it was sometimes extremely difficult to explain to the DLA panel that a certain young fellow or girl needed more care and attention than their brother or sister who did not have autism. It is easier now, because there is a better understanding of autism. We have tried to address that issue in Northern Ireland.

We have placed a duty on the Department of Health, Social Services and Public Safety to act as the lead Government body in producing, reviewing and implementing a cross-departmental strategy for autism. Currently, cross-departmental co-operation is only discretionary. However, we have a strategy in place that brings all the Government bodies together and ensures that they all focus on what it is important to do. We have placed a duty on all Departments to agree a data-collection system to calculate the current and future need for services for people with autism and their families. That helps us to plan for the long term.

[Angela Watkinson]

Does the hon. Gentleman agree that any autism strategy should include respite care for the family?

[Jim Shannon]

Absolutely. Anyone who knows such families knows that that is critical. One just has to see the boisterousness of the young person and the distressed look of the mother to know that the mum just needs a bit of respite care to get a break for a wee while. That is an important factor that perhaps we have not mentioned. I thank the hon. Lady for raising it.

In Northern Ireland, we have also placed a duty on the DHSSPS to detail clearly how the needs of families and carers are to be addressed. There is a clear directive in the strategy on the development of family support services. We have placed a duty on the Government of Northern Ireland to implement an effective autism awareness campaign, for example using information websites and poster campaigns. It is important that we take the five points of that strategy together.

It is my belief that the rest of the UK should handle the issue of autism in a similar manner to Northern Ireland. I urge the Minister to interact with Ministers in Northern Ireland to exchange ideas, understand how our system works and find out how the legislation can be improved. If we can do that, we will have achieved a lot.

I also believe that we should implore all those involved to look carefully at the work and outcome of the Autism Act (Northern Ireland) 2011. When the Government consider their draft legislation, to which the hon. Member for South Swindon referred in his introductory remarks, I believe there is no better system, at least to start with, than that in Northern Ireland.

To be forewarned is to be forearmed. Figures indicate that the number of children with autism in Northern Ireland is rising—as in the rest of the United Kingdom—and we sense the effect that is having on society and individuals. It also impacts on people’s financial circumstances as there is a drain on the moneys necessary to deal with this condition. We must prepare and set moneys aside for that purpose.

We all know families who are affected by this issue, and they do not ask for too much or more than they are entitled to. We are being asked to give only what they need and what we can provide, which I believe is support. Above all, we need to help those children and families to have an acceptable quality of life. That has not yet been achieved, but hopefully it will be once the draft legislation is introduced.