Baby Loss Awareness Week

Baroness Laing of Elderslie Excerpts

Tuesday 8th October 2019 Commons Chamber

[Anna Soubry (Broxtowe) (IGC)]

It is a real pleasure to follow the hon. Member for Brigg and Goole (Andrew Percy). My contribution to the debate will touch on a lot of what he said about the situation, which is undoubtedly true. It struck me again because of two constituents in particular who came to see me. I had my children at the Queen’s Medical Centre in Nottingham. My constituents went in there expecting, as most of us do when we go into hospital to give birth, that they would be taking their baby home after a safe delivery. Emily was their second child, and she died—she was a stillborn baby. That was at the end of 2013.

Until I met Richard and Michelle Daniels, I had not appreciated some of the issues we are talking about. When I gave birth to my babies, I had two wonderful deliveries, although they were very painful. However, I do not talk too much about the great pleasure, joy and magic I experienced in becoming a mother on those two occasions. I felt real shock when Richard and Michelle came to tell me that, although they got the most terrific care, love and support from the remarkable staff at the QMC when Emily was born dead, there was no facility at all, as the hon. Member for Brigg and Goole described.

It is true that there is nothing worse that could happen to any of us than to lose a child, but it must be even more heartbreaking to lose a child and then to be surrounded by people experiencing all the wonderful joy and celebration of a new birth and of having a new member of their family, but not to have somewhere to be able to say goodbye properly or to have quiet time. People also need the opportunity to bring in other members of the family so that they, too, can say goodbye. I was just blown away in my shock and horror when I heard that, in Nottingham, we had no such suite at all in the QMC or the City Hospital. That had been going on for many years, and one can only imagine how many people have suffered in that way, given all the touching speeches that hon. Members have made.

In early 2014, Richard and Michelle Daniels set up a charity called Forever Stars. They poured all their remarkable energy and dedication into making a great success of it, and they have raised over £400,000. Their first project was to install a serenity suite at the QMC—a place where a couple can go in the event of an unsuccessful delivery and the loss of a child. They can say goodbye properly, in the way that has been described, and siblings and other members of the family can come along. In due course, there was another serenity suite, at the City Hospital in Nottingham—again thanks to the Forever Stars charity that Richard and Michelle set up. That is now in operation.

By a remarkable coincidence, the hon. Members for Eddisbury (Antoinette Sandbach) and for Colchester (Will Quince) set up their all-party group in this place in 2015, and we had that first debate. I remember it distinctly. There were so many appalling stories that there was not a dry eye in this place, and that included your good self, Madam Deputy Speaker. All us were filled with a mixture of grief, horror and disbelief that so many people suffered baby loss with none of the proper facilities that they should have.

It is full credit to the Government of the time and to the former Secretary of State for Health, the right hon. Member for South West Surrey (Mr Hunt), that they did not mess about. They took up the campaign, and huge progress has undoubtedly been made. It is thanks to a lot of cross-party working and the considerable efforts of the former Secretary of State and his team, as well as those two hon. Members and others, that we have seen such marked progress.

The work of Forever Stars continues. As you can see, Madam Deputy Speaker, I am wearing pink and blue. That was not necessarily my first choice to put on this morning. It was a bit of a bet with Mr Richard Daniels that I would do it. However, I wanted to do it because Forever Stars is painting Nottingham, and indeed Broxtowe, pink and blue. Like so many other charities that have come out of so much tragedy and that are doing great work, Forever Stars is raising awareness, on top of the other work that it does. We have heard why that is so important.

I, too, join the calls in the report that the Baby Loss Awareness Alliance put out today—“Out of Sight, Out of Mind”—for specific work to be done to make sure we cater for grieving parents, siblings and other members of the family. I may one day be a grandparent, and it must be terrible for grandparents to see their own child and son-in-law or daughter-in-law suffer in the way that we know people do. We also know the effect these things have on siblings; we often forget them and how one explains things to them, and they often need support.

Forever Stars tells me that, in just the last 24 hours, it has had four calls from parents who have suffered a baby loss and who would very much like to be referred to the counselling or the psychological, and sometimes psychiatric, services that they desperately need. It is really important to ensure that those services are in place. I am told not only that 60% of parents surveyed want those services, but that nine out of 10 CCGs do not commission the talking therapies that the hon. Member for Ellesmere Port and Neston (Justin Madders) rightly spoke about.

Forever Stars continues in its great work and is now raising funds to create a serenity garden for parents in Nottingham. There will be a service every quarter when parents and, of course, other family members can go along to say goodbye again to a child or baby they have lost.

It is really important to recognise that this place does some terrific work when it comes together in this way. The APPG has done that terrific work on a cross-party basis. It is all too easy in the current political climate for people to criticise Parliament and set it up against the people, but that would be wrong in many ways. This is an example of why that is just not true, because this place can do genuinely great work that touches the lives of real people.

[Madam Deputy Speaker (Dame Eleanor Laing)]

The right hon. Lady is absolutely correct. When this House comes together and works properly, we do achieve what those who send us here expect us to achieve and hope that we will achieve. It is just such a pity that more people do not watch the proceedings on days like this instead of on days when the Chamber is crowded.

--- Later in debate ---

[Jim Shannon]

I thank the right hon. Lady for that intervention.

Let me read those words again:

“I carried you for every second of your life—and I will love you for every second of mine…Let sweet Jesus hold you until mummy and daddy can hold you—you have just reached heaven before I do.”

[Madam Deputy Speaker (Dame Eleanor Laing)]

I thank the hon. Gentleman for his excellent speech. The whole Chamber agrees with every word that he has just said and appreciates the way in which he said them.

--- Later in debate ---

[Ms Dorries]

What I will say to my hon. Friend in response is that, in the long-term plan, the NHS commits to

“improve access to and the quality of perinatal mental health care for mothers, their partners and children”.

We have committed in the long-term plan that an additional 24,000 women will have access to specialist perinatal mental health support, including more support for fathers and partners. That is part of the £2.3 billion investment in mental health that this Government recently announced. I will say it again: £2.3 billion. That is over half the annual prisons budget. Of course, some of that money has to be directed towards mothers in this situation.

My hon. Friend the Member for Banbury (Victoria Prentis) made an important point about infant mortality in other countries around the world. The Secretary of State for International Development announced a £600 million reproductive health supplies programme to help end preventable deaths of mothers, newborn babies and children in the developing world by 2030. It will give 20 million women and girls access to family planning, prevent 5 million unintended pregnancies each year up to 2025 and focus on the most vulnerable women, including FGM survivors. We are committed to working with Gavi, the Vaccines Alliance, to vaccinate a further 300 million children in the world’s poorest countries by 2025.

My hon. Friend also talked about making maternal mortality a never event. I am not sure that that will be an achievable objective, but NHS England is supporting the establishment of maternal medicine networks, which ensure that women with acute and chronic medical problems have timely access to special advice and care at all stages of their pregnancy.

The hon. Member for Ellesmere Port and Neston (Justin Madders) spoke about grief. Grief, for me, is the last taboo; it is the one thing that people still do not talk about. People still do not talk about how grief affects them, and I hope that some of the investment we are putting into mental health services and community services will help people to address grief.

My hon. Friend the Member for Brigg and Goole (Andrew Percy) spoke about somebody who works in his office who has raised funds for the Cherished suite, and the right hon. Member for Broxtowe (Anna Soubry) spoke about the serenity suite. Over 50% of hospitals now have such suites, which are so important. I do not want to reiterate what anybody has said, but the fact that babies are born in a part of a hospital that is traditionally filled with joy is incredibly difficult. My hon. Friend the Member for Colchester has told me that it makes such a difference if people have somewhere to go and even to stay overnight with their baby, and where the family can go. Over 50% of hospitals in the UK have these suites, and I am going to ask that these suites are made available in the maternity areas at all the 40 new hospitals that are being built. [Hon. Members: “Hear, hear.”] I will ask; I will certainly push.

I want to continue with the points raised, and please pull me up if I miss anybody out. The hon. Member for Strangford (Jim Shannon) spoke so passionately—thank you. I know he has spoken in every baby loss debate we have had, and he has also spoken in the past about the important role that chaplains play in such situations. I would like to thank him for his incredible contribution. He asked about the pregnancy loss review. It is currently working with key partners to make recommendations to the Government about improving the care and support that women and families receive when experiencing a pre-24 week gestation baby loss. We are hoping the report will be published in due course and not too long from now.

I would like to speak about an area that I have particularly focused on, which is group B strep support. I have spoken about this many times, and I had my own Adjournment debate on it before I was a Minister. When I arrived in the Department, I set five key priorities, and this is No. 1 in the key priority areas because this in itself will prevent infant mortality. Group B strep is a leading cause of bacterial infection in newborn babies—just to put that on the record. I fully support the review that is taking place, and I hope that it has some further information so that we can make progress on this in, I hope, the not-too-distant future.

The hon. Member for Rotherham (Sarah Champion) spoke about hospices. I have Keech Hospice in my own constituency. I think hospices and their role is slightly outside the debate, bearing in mind the level of investment that we are putting into mental health services and counselling services. Somebody mentioned improving access to psychological therapies and the importance of talking therapies. I hope that any mother or family who needs mental health counselling as a result of baby loss will in future be able to access those services. I will write to her about the role of hospices in this particular area.

I appreciate the support from Members on both sides of the House in relation to the maternity safety ambition. I echo your words, Madam Deputy Speaker, about the tone of this House in such important debates. One of the most important things to come out of the debate today is the importance of learning for improvement and what we are beginning to learn through the perinatal mortality review tool and the Healthcare Safety Investigation Branch, which I have mentioned, that was introduced by the former Secretary of State.

I would like to remind Members that the NHS is still—and the NHS in the UK is still—the safest place in the world to have a baby: 0.7% of all births result in a stillbirth or a neonatal death. Having said that, on a day like today, 12 babies in England and 15 across the UK will be stillborn or die soon after birth, and many more families will lose a baby through miscarriage, ectopic pregnancy and other causes. We are, however, making progress: in 2015, the figure was 17 babies a day. Maternity and neonatal safety initiatives are beginning to improve outcomes, with most of the anticipated impacts still to be realised, as safety improvements are embedded in maternity and neonatal services and as we learn more from research and investigations about which babies die and why.

Finally, as we have discussed, the theme of Baby Loss Awareness Week 2019 is psychological support for those bereaved parents who need it. I understand that a working group is being convened to support the development of maternity outreach clinics that will integrate maternity reproductive health and psychological therapy for women experiencing mental health difficulties arising from and directly related to the maternity experience. I will undertake to ask this working group if it could consider extending the maternity experience to those who have lost a child in pregnancy, during labour and childbirth in the neonatal period.

I would like to finish by thanking all the midwives, doctors and healthcare support workers who do such a fantastic job in delivering more than 600,000 babies successfully every year and in helping the parents who, sadly, do not experience the happiness of a healthy baby.

[Madam Deputy Speaker (Dame Eleanor Laing)]

Thank you. What an excellent, calm and constructive debate.

Question put and agreed to.

Resolved,

That this House has considered baby loss awareness week.