Data (Use and Access) Bill [HL]

Debate between Earl of Erroll and Baroness Jones of Whitchurch

Committee stage
Wednesday 18th December 2024 Grand Committee

[The Earl of Erroll (CB)]

My Lords, I was involved in an ethics committee that looked at genomics and cancer research some years ago, and this is very important. If research could be done on different genomic and racial types, it could be used against us adversely at some point. So there is a lot of sense in this.

[Baroness Jones of Whitchurch (Lab)]

My Lords, I thank the noble Viscount, Lord Camrose, for moving this amendment, which raises this important question about our genomics databases, and for the disturbing examples that he has drawn to our attention. He is right that the opportunities from harnessing genomic data come with very real risks. This is why the Government have continued the important work of the UK Biological Security Strategy of 2023, including by conducting a full risk assessment and providing updated guidance to reduce the risks from the misuse of sensitive data. We plan to brief the Joint Committee on the National Security Strategy on the findings of the risk assessment in the new year. Following that, I look forward to engaging with the noble Viscount on its outcome and on how we intend to take these issues forward. As he says, this is a vital issue, but in the meantime I hope he is prepared to withdraw his amendment.