(1 week, 5 days ago)
Lords ChamberMy Lords, I support Amendment 134 from the noble Baroness, Lady Grey-Thompson. She has highlighted that there is a glaring gap in our welfare system. It fails to provide adequate, immediate support for parents whose children fall seriously ill. Although the Neonatal Care (Leave and Pay) Act rightly recognised the need for non-means tested leave and pay when a child is critically ill at or shortly after birth, that protection vanishes as the child grows older. Parents whose children fall seriously ill beyond the neonatal period are left navigating benefits that are not suited to the immediate support they require.
Currently, there are only three options available for parents seeking that financial support. The first is universal credit, which is means tested and not easily accessible. The second, disability living allowance, was mentioned by the noble Baroness, Lady Grey-Thompson. It can only be applied for three months after a diagnosis and then takes an additional 20 weeks—approaching half a year altogether—to process. DLA is also a requirement for claiming a blue badge—just to give an example of how long this process takes. The third option is 18 weeks of unpaid parental leave taken in four-week blocks within a calendar year.
So, there is a gap from day one to day 90 before a parent can apply for financial help. In these cases, it appears families face an impossible choice—financial insecurity or being at their child’s side during the most traumatic moment of their young lives. This amendment addresses that gap, providing a grant to the parents of a chronically sick child from day one. The grant will be limited to the first one to three months, and approved quickly by the consultant, with a renewal every month.
According to data from the Treasury, there are approximately 4,000 children each year who could be expected to have a hospital stay of two months or more. The cost of caring for a chronically ill child is estimated to be around £750 per month. According to estimates by the charity It’s Never You, if the Government were to provide two months of support during this gap period, it would cost around £6 million—a significant amount, but at the lower end of national spending in revenue terms compared with many of the options talked about today.
This amendment seeks to extend the principles of the Neonatal Care (Leave and Pay) Act to children up to the age of 16 in cases of serious illness. It builds on a clear precedent and introduces a compassionate, practical solution—non-means tested support—at that moment of crisis.
The impact on employers will be minimal, affecting, as I have stated, only a few thousand families a year. But the benefit to those families would be profound. This is precisely the kind of change where legislation can make a life-changing difference at very little cost. I urge the Government to consider this amendment, which is in keeping with the spirit of this legislation.
My Lords, before I deliver my remarks in relation to the amendments that I have signed, I will add my support to the amendment on miscarriage leave from the noble Lord, Lord Brennan of Canton. My Plaid Cymru colleagues in the other place also supported that amendment, so I am glad to see that it has made its way to this House, too.
Amendment 135, tabled by the noble Lord, Lord Palmer, would establish carer’s leave as a paid entitlement. I will keep my remarks brief, but I speak from lived experience. I became an unpaid carer at the age of 12. I know what it means to juggle education, work and caring responsibilities while having to repeat my story to NHS staff, college tutors, employers and the DWP. The obstacles I faced are not unique. I know that a number of carers who I spoke to in the past, and continue to do so, continue to face these obstacles. Those experiences led me to campaign on those issues, and I am proud to have influenced positive policy changes in Wales that make life a little easier for young carers trying to stay in education.
Amendment 135 would help build a safety net for the millions of people with unpaid caring responsibilities —people like I once was. The Government have made it clear that getting people back into work is a priority, and they also recognise that unpaid carers’ inability to work costs the economy £37 billion a year. Supporting carers to enter and stay in employment must therefore be seen not only as a social priority but an economic one. Introducing paid carer’s leave is not an expensive proposal. Modelling by Carers UK suggests it would cost between £5.5 million and £32 million per year, depending on the rate of compensation. Set against the cost of lost productivity, high turnover and pressure on health and social care systems, this is a modest and worthwhile investment.