Welfare Reform Bill

Debate between Baroness O'Loan and Lord Wigley

Monday 14th November 2011 Grand Committee

[Baroness O'Loan]

My Lords, I support the noble Baroness, Lady Campbell. The proposal to amend Clause 75 by changing the name “personal independence payment” to “disability living costs allowance” is intended to clarify the purpose of the payment. However, it does not reflect the way in which understanding of that issue has been developed. “Personal independence payment” has come to suggest that the disabled person is or will become independent as a consequence of the payment. That will not happen. What will happen is that the person will be able to finance the inevitable additional costs that are consequential on their disability or disabilities and the various barriers which hinder full participation.

Independence is about not being reliant on others. The reality for those with disabilities is that they will always need assistance for a range of activities. The cost of that assistance is an additional resource which the disabled person needs. The DLA provides for those costs, and under these arrangements the payment of these additional costs will be enabled, not independence itself.

We are acutely aware of the extent to which people entitled to benefits are unable to claim because of lack of knowledge and understanding of their rights. That is a proven fact, despite the coverage to the contrary. It is most important that the name of this benefit does not have the capacity to add further confusion for the beneficiary. It has been recognised by government that people do not fully understand what DLA is for. It has also been recognised that disability benefit entitlement should be easier for people to understand. I therefore believe that the term “personal independence payment” is not adequate or appropriate.

The aim of the DLA was always to enable a disabled person to experience as full a life as possible and to provide for the additional costs. That approach recognised the reality that independence as others experience it is never going to be a reality for a person with a range of disabilities unless additional funding is made available to enable the access to education, to social and political life, to employment or, indeed, to membership of this House if that is what the person aspires to.

I travel regularly by plane, train, underground, bus and all forms of transport which are profoundly difficult and sometimes inaccessible for those with disabilities. Access to transport continues to be at a very low level, and therefore the use of taxis or cars involving significant additional costs is the only option available in many circumstances. Access to some buildings is still impossible for people with mobility problems. I share an office with someone who has a disability and so I am aware of the endless conversations that ensue on an invitation. Those questions include, “Can I get access to the building? Can I get into the event? How will I get up the steps?”. Other problems arise for those who suffer from deafness and learning disabilities in terms of access to the content of material. That has to be provided for and it costs money. Surely we should recognise this and make quite clear what the allowance is intended to enable: simply, the payment of additional costs.

[Lord Wigley]

I rise with some humility to follow the noble Baronesses who have moved and spoken to these amendments. Reference has been made to the battles that took place in the 1970s, the 1980s and the 1990s to try to make progress on this issue. A number of noble Lords here today were involved in the various stages. I look across the Committee Room and see the noble Lord, Lord Newton, who was very much involved from the Government’s point of view and was there when progress was made. The battles were partly with regard to the substance and content of the legislation to ensure that resources were available for those in need. However, alongside that, there was a battle to ensure that the terminology was appropriate. We know that in so many areas of disability there have been changes in the conventional acceptance of terminology. To a very large extent that has been driven by those with disabilities themselves. Many of us have had to adapt to that terminology, coming to realise what it means. The terminology is important not only to disabled people themselves but to the rest of society because of the perception society has of the challenges of disability. One therefore wants to make sure not just that the terminology is neutral but that it works positively to help those most affected by it.

The noble Baroness, Lady Lister, referred a moment ago to the fact that the amendment is not asking the Government to make an expensive provision. We have heard from the Minister speaking to many, many amendments in this Committee that the cost has to be a factor and we all understand that. In this instance, it does not appear that the cost has to be a factor and if the Minister can find some way to accommodate the terms of these amendments, I believe it would do an awful lot of good at very little cost.