My dearest friend sadly passed away from ovarian cancer but with no family history her doctor misdiagnosed her for 18 months. If more training and information was given to doctors or a BRCA test was done she might of still been here today and lived a life with her husband and little boy
The Government responsed to this petition on 11th June 2018 (View Full Response)Make Orkambi available on the NHS for people with Cystic Fibrosis
- Final Signatures: 118,034
Conventional CF treatments target the symptoms of CF, precision medicines like Orkambi tackle the cause of the condition. Though Orkambi is not a cure, it has been found to slow decline in lung function, the most common cause of death for people with CF, by 42%
Scheduled Debate: This petition is scheduled to be debated on 19th March 2018
The Government responsed to this petition on 7th February 2018 (View Full Response)EDS is an inherited connective tissue abnormality.People with EDS have no care within the NHS. Healthcarer's have no access to formal training, forcing patients to self fund private care with the few specialists available, in order to manage their multiple,painful & life threatening disabilities.
The Government responsed to this petition on 4th September 2018 (View Full Response)Make GMC a tax-payer funded organisation and not to be funded by doctors.
- Final Signatures: 25,378
The GMC has been an independent regulatory body which has been funded by doctors paying Annual retention fees. However, given that the main aim of the GMC is to protect patients whilst regulating practice of doctors, the GMC should be funded by the tax-paying public and not by doctors, like the HSE.
The Government responsed to this petition on 21st February 2018 (View Full Response)Ban the sale of high caffeine energy drinks to under 16s
- Final Signatures: 10,218
The label may state ‘not for children’ but 69% of teenagers / 24% of children under 10 are consuming high-caffeine energy drinks that lead to adverse health effects post consumption. With sales ever rising, we propose a ban on high-caffeine energy drinks containing over 150mg of caffeine per litre.
The Government responsed to this petition on 11th July 2018 (View Full Response)Shockingly, the UK has one of the worst survival rates in Europe for ovarian cancer. It’s too late for so many women like my mum, but we must do better. In 2015 the Chief Medical Officer called for an audit of ovarian cancer treatment & survival. Funding an audit is key to saving more women's lives.
The Government responsed to this petition on 15th August 2018 (View Full Response)Legalise cannabis oil for medicinal usage.
- Final Signatures: 14,600
Cannabis Oil is one of the oldest medicines known to Man. There has been numerous studies completed proving that cannabis oil can assist treating epilepsy, insomnia and even treat people suffering from cancer.
Cannabidiol (CBD) can be developed for use with low THC content therefor no high...
The Government responsed to this petition on 12th July 2018 (View Full Response)Give all women the choice of an Induction at 41 weeks of Pregnancy.
- Final Signatures: 42,652
Our son Archie was stillborn in June 2017 at 41+5. He had died only hours before I had gone into labour and was born a perfect 7lb11. Had I been induced with Archie at 41 weeks he most certainly would have been born a healthy baby boy. We now have to live everyday with the grief of losing our son.
The Government responsed to this petition on 17th April 2018 (View Full Response)If a child's hospital wish to turn off the life support of a child who has an undiagnosed condition, but there is an alternative hospital abroad willing to treat them and find a possible diagnosis, then the parents should legally be allowed to decide if the child should go. Parental rights!!
The Government responsed to this petition on 3rd May 2018 (View Full Response)There have been several cases in the media recently where hospitals have gone to court to get permission to remove life-support from children. This has been done on the premise that they would not live long after it was removed. This has not always been the case.
The Government responsed to this petition on 9th May 2018 (View Full Response)