Question to the Department of Health and Social Care:

To ask His Majesty's Government what assessment they have made of Action 6(iii) in the report, A Bolder, Braver Approach for Organ Donation in the UK, published by the Organ Donation Joint Working Group on 21 January, to change the Human Tissue Authority Code of Practice and NHS Blood and Transplant processes so that families are approached for information to support donation proceeding using affirmative language.

Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)

The Department has not held discussions with the Human Tissue Authority (HTA) regarding the final report of the Evaluation of the Organ Donation (Deemed Consent) Act 2019.

The Organ Donation Joint Working Group, jointly chaired by the Department and NHS Blood and Transplant (NHSBT), made recommendations which ministers have noted, and which action owners are working together to implement. As part of this work, the Department, NHSBT, and HTA have met to discuss the report’s findings and actions. The HTA is currently at an early stage of reviewing its current statutory codes of practice and will revise them where necessary to ensure they remain clear, up to date, and effective.

NHSBT is actively progressing work to ensure that their family approach processes use clear, affirmative language that supports a family’s understanding of their loved one’s recorded donation decision. As part of this, NHSBT are reviewing their operational guidance and training materials for specialist nurses in organ donation to strengthen support offered to families by focussing on building trust and rapport with the family to explore the patient’s beliefs and values as a central reference point for the donation decision, rather than focusing on any last known expressed wishes.

Question to the Department of Health and Social Care:

To ask His Majesty's Government what discussions they have held with the Human Tissue Authority regarding the final report of the Evaluation of the Organ Donation (Deemed Consent) Act 2019, published by McLaughlin et al on 1 January 2024.

Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)

The Department has not held discussions with the Human Tissue Authority (HTA) regarding the final report of the Evaluation of the Organ Donation (Deemed Consent) Act 2019.

The Organ Donation Joint Working Group, jointly chaired by the Department and NHS Blood and Transplant (NHSBT), made recommendations which ministers have noted, and which action owners are working together to implement. As part of this work, the Department, NHSBT, and HTA have met to discuss the report’s findings and actions. The HTA is currently at an early stage of reviewing its current statutory codes of practice and will revise them where necessary to ensure they remain clear, up to date, and effective.

NHSBT is actively progressing work to ensure that their family approach processes use clear, affirmative language that supports a family’s understanding of their loved one’s recorded donation decision. As part of this, NHSBT are reviewing their operational guidance and training materials for specialist nurses in organ donation to strengthen support offered to families by focussing on building trust and rapport with the family to explore the patient’s beliefs and values as a central reference point for the donation decision, rather than focusing on any last known expressed wishes.