Asked by: Rachael Maskell (Labour (Co-op) - York Central)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps her Department is taking to help ensure that people receive a good standard of hospice care if they reside in an area covered by an integrated care board that provides less than the national average level of funding for hospices.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
Whilst the majority of palliative and end of life care is provided by National Health Service staff and services, we recognise the vital part that voluntary sector organisations, including hospices, also play in providing support to people, and their families, at end of life. Most hospices are charitable, independent organisations who receive some statutory funding for providing NHS services. Charitable hospices are autonomous organisations that provide a range of services which go beyond that which statutory services are legally required to provide. Consequently, the funding arrangements reflect this.
In July 2022, NHS England published statutory guidance for commissioners on palliative and end of life care, setting out the considerations required for integrated care boards (ICBs), in order to meet their legal duties. This can be found at the following link:
NHS England has also published service specifications, for both adults and children and young people, which provide guidance on undertaking assessments to enable high-quality commissioning of services that meet both the population need and preferences. These can be found at the following link:
The Department is in ongoing discussions with NHS England about the oversight and accountability of NHS palliative and end of life care commissioning. We remain committed to improving patient access to, and quality of, palliative and end of life care, and are working with NHS England to reduce disparities in the standard of palliative and end of life care across the country.
From April 2024, NHS England will include palliative and end of life care in the list of topics for its regular performance discussions between national and regional leads. These national meetings will provide an additional mechanism for supporting ICBs in continuing to improve palliative and end of life care for their local population. Additionally, NHS England has commissioned the development of a palliative and end of life care dashboard, which brings together relevant local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of those in their local population, enabling ICBs to put plans in place to address and track the improvement of health inequalities.
Asked by: Karin Smyth (Labour - Bristol South)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, how she plans to distribute the £25 million committed to children’s hospices in 2024-25.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
NHS England currently supports palliative and end of life care for children and young people through the Children and Young People’s Hospice Grant. Last year, NHS England confirmed that it will be renewing the funding for 2024/25, once again allocating £25 million of funding for children’s hospices, using the same prevalence-based allocation approach as in 2022/23 and 2023/24. This prevalence-based approach ensures funding matches local need.
The distribution of the 2024/25 funding to children’s hospices will be via integrated care boards (ICBs), in line with the wider move to a devolved National Health Service, in which ICBs are best placed to meet the health and care needs of their local population.
Asked by: Karin Smyth (Labour - Bristol South)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if she will make an assessment of the potential merits of publishing a long-term strategy for supporting the palliative care needs of children and young people.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
While the National Health Service has always been required to commission appropriate palliative and end of life care services to meet the reasonable needs of the population, palliative care services were added to the list of services an integrated care board (ICB) must commission, promoting a more consistent national approach and supporting commissioners in prioritising palliative and end of life care. To support ICBs in this statutory duty, NHS England has published statutory guidance on palliative and end of life care, and a service specification for children and young people.
Asked by: Karin Smyth (Labour - Bristol South)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether she has had discussions with NHS England on the adequacy of (a) regional planning and (b) accountability for children’s palliative care.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
The Department is in ongoing discussions with NHS England about the oversight and accountability of National Health Service palliative and end of life care commissioning.
From April 2024, NHS England will include palliative and end of life care in the list of topics for its regular performance discussions between national and regional leads.
NHS England has commissioned the development of a palliative and end of life care dashboard, which brings together relevant, all-age local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of those in their local population, including children, enabling integrated care boards to put plans in place to address and track the improvement of health inequalities.
Asked by: Peter Gibson (Conservative - Darlington)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether she has made an assessment of the potential merits of guaranteeing the children's hospice block grant for three years.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
No specific assessment has been made of the potential merits of ring-fencing the funding for children’s hospices, or of the potential merits of guaranteeing the children’s hospice funding for three years. Details of 2025/26 funding will, however, be confirmed in due course.
We recognise the vital part that voluntary sector organisations, including hospices, play in the availability and delivery of high-quality, personalised palliative and end of life care for people of all ages, and their loved ones.
As made clear in the Health and Care Act 2022, it is the statutory duty of integrated care boards (ICBs) to commission palliative and end of life care services in response to the needs of their population, including for children and young people.
NHS England currently supports palliative and end of life care for children and young people through the Children and Young People’s Hospice Grant. Last year, NHS England confirmed that it will be renewing the funding for 2024/25, once again allocating £25 million of funding for children’s hospices, using the same prevalence-based allocation approach as in 2022/23 and 2023/24. This prevalence-based approach ensures funding matches local need.
NHS England has worked closely with sector experts and sector representatives in establishing the current prevalence-based approach to deciding allocations, as well as in determining the proposed mechanism for continued funding in 2024/25.
Funding in 2024/25 will be distributed via ICBs, in line with National Health Service devolution. All ICBs in England will be formally notified of the distribution method to be used very shortly. The Department and NHS England hope to be able to provide the greater clarity that the sector is seeking on this important funding stream to children’s hospices, in the coming weeks.
Asked by: Peter Gibson (Conservative - Darlington)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether she has made an assessment of the potential merits of ring-fencing the block grant for children's hospices.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
No specific assessment has been made of the potential merits of ring-fencing the funding for children’s hospices, or of the potential merits of guaranteeing the children’s hospice funding for three years. Details of 2025/26 funding will, however, be confirmed in due course.
We recognise the vital part that voluntary sector organisations, including hospices, play in the availability and delivery of high-quality, personalised palliative and end of life care for people of all ages, and their loved ones.
As made clear in the Health and Care Act 2022, it is the statutory duty of integrated care boards (ICBs) to commission palliative and end of life care services in response to the needs of their population, including for children and young people.
NHS England currently supports palliative and end of life care for children and young people through the Children and Young People’s Hospice Grant. Last year, NHS England confirmed that it will be renewing the funding for 2024/25, once again allocating £25 million of funding for children’s hospices, using the same prevalence-based allocation approach as in 2022/23 and 2023/24. This prevalence-based approach ensures funding matches local need.
NHS England has worked closely with sector experts and sector representatives in establishing the current prevalence-based approach to deciding allocations, as well as in determining the proposed mechanism for continued funding in 2024/25.
Funding in 2024/25 will be distributed via ICBs, in line with National Health Service devolution. All ICBs in England will be formally notified of the distribution method to be used very shortly. The Department and NHS England hope to be able to provide the greater clarity that the sector is seeking on this important funding stream to children’s hospices, in the coming weeks.
Asked by: Lord Hunt of Kings Heath (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government whether integrated care boards (ICBs) have been informed of the details of the Children’s Hospice Grant for children’s palliative care, including (1) the amounts awarded to each ICB, and (2) the distribution method to be used.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
NHS England currently supports palliative and end of life care for children and young people through the Children and Young People’s Hospice Grant. Last year, NHS England confirmed that it will be renewing the funding for 2024/25, once again allocating £25 million of funding for children’s hospices using the same prevalence-based allocation approach as in 2022/23 and 2023/24. This prevalence-based approach ensures funding matches local need. Funding will be distributed via integrated care boards (ICBs) in line with National Health Service devolution.
All ICBs in England, including those in the West Midlands, were notified of the amount of funding that each ICB will receive during week commencing 19 February 2024. Additionally, all ICBs in England, including those in the West Midlands, will be notified of the distribution method to be used very shortly.
The Department and NHS England hope to be able to provide the greater clarity that the sector is seeking on this important funding stream to children’s hospices in the coming weeks.
Asked by: Lord Hunt of Kings Heath (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government when integrated care boards (ICB) in the West Midlands can expect to be informed of the details of the Children’s Hospice Grant for children’s palliative care, including (1) the amounts to each ICB, and (2) the distribution method to be used.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
NHS England currently supports palliative and end of life care for children and young people through the Children and Young People’s Hospice Grant. Last year, NHS England confirmed that it will be renewing the funding for 2024/25, once again allocating £25 million of funding for children’s hospices using the same prevalence-based allocation approach as in 2022/23 and 2023/24. This prevalence-based approach ensures funding matches local need. Funding will be distributed via integrated care boards (ICBs) in line with National Health Service devolution.
All ICBs in England, including those in the West Midlands, were notified of the amount of funding that each ICB will receive during week commencing 19 February 2024. Additionally, all ICBs in England, including those in the West Midlands, will be notified of the distribution method to be used very shortly.
The Department and NHS England hope to be able to provide the greater clarity that the sector is seeking on this important funding stream to children’s hospices in the coming weeks.
Asked by: Fleur Anderson (Labour - Putney)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what recent steps her Department has taken to improve (a) services for children who require end of life care, (b) services for children with life threatening conditions and (c) services for children with life limiting conditions.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
Integrated care boards (ICBs) are responsible for determining the level of National Health Service funded palliative and end of life care for children locally, and they are responsible for ensuring that the services they commission meet the needs of their local population.
At a national level, in line with the NHS Long Term Plan, NHS England has provided approximately £12 million of match-funding to participating ICBs, and formerly CCGs, between 2020/21 and 2023/24. This was committed to invest in children and young people’s palliative and end of life care, giving a total investment of £24 million. In addition, NHS England supports palliative and end of life care for children and young people through the Children and Young People’s Hospice Grant. NHS England has confirmed that it will be renewing the funding for 2024/25, once again allocating £25 million of funding for children’s hospices using the same prevalence-based allocation approach as in 2022/23 and 2023/24. This prevalence-based approach ensures funding matches local need.
The Department is in ongoing discussions with NHS England to explore improving oversight and accountability of all-age NHS palliative and end of life care commissioning. Additionally, The Department, through the National Institute for Health and Care Research, is investing £3 million in a new Palliative and End of Life Care Policy Research Unit. This will help build the evidence base on all-age palliative and end of life care to inform policy making in this vital area.
NHS England’s palliative and end of life care team has recently engaged with 24 ICBs to understand how to better support commissioners, and has also reviewed all 42 ICB Joint Forward Plans for their inclusion of palliative and end of life care.
From April 2024, NHS England will include palliative and end of life care in the list of topics for regular performance discussions between national and regional leads. Additionally, NHS England has commissioned the development of a palliative and end of life care dashboard, which brings together all relevant data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of their local population, including children, enabling ICBs to put plans in place to address and track the improvement of health inequalities.
Asked by: Lord Hunt of Kings Heath (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government whether they will extend the Children’s Hospice Grant for children’s palliative care in England beyond 2024–25.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
The Department and NHS England recognise the important role children and young people’s hospices play in the delivery of high-quality, personalised palliative and end of life care for children, young people, their families and those important to them.
At a national level, NHS England supports palliative and end of life care for children and young people through the Children and Young People’s hospice grant. It has confirmed that it will be renewing the grant for 2024/25, once again allocating £25 million of funding for children’s hospices, using the same prevalence-based allocation approach as in 2022/23 and 2023/24. Details of 2025/26 funding will be confirmed in due course.