Asked by: James Naish (Labour - Rushcliffe)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help support people with short and long-term spinal cord injuries.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
Our 10-Year Health Plan will have profound and positive impacts on care for patients with spinal cord injury. More tests and scans are delivered in the community, better joined-up working between services, and greater use of technology will all support people in the management of long-term conditions, including spinal cord injuries.
In March 2025, NHS England published the Spinal Services Clinical Network Specification, which establishes expectations for spinal clinical networks to standardise pathways and reduce variation, with the aim of improving access to care for patients.
The Getting It Right First Time (GIRFT) Programme for spinal services is also driving service improvements and better care for patients with spinal cord injuries. GIRFT has worked with National Health Service trusts to showcase examples of best practice which other services can then learn from.
In October 2025, the National Institute for Health and Care Excellence published new guidance on rehabilitation for chronic neurological disorders, which includes rehabilitation for spinal cord injury.
Asked by: Lee Pitcher (Labour - Doncaster East and the Isle of Axholme)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure equitable access England to (a) diagnosis, (b) treatment and (c) specialist rehabilitation services for patients with Functional Neurological Disorder.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
The majority of services for people with neurological conditions, including functional neurological disorder (FND), are commissioned locally. Integrated care board (ICB) commissioners are best placed to configure services for their populations and are supported by clinical guidance.
More widely, NHS England’s Neuroscience Transformation Programme is supporting ICBs to deliver the right service, at the right time for all neurology patients, which includes providing care closer to home.
NHS England’s Getting It Right First Time Programme for Neurology and RightCare Toolkits, including the Progressive Neurological Conditions Toolkit, the Headache and Migraine Toolkit, and the Epilepsy Toolkit, aim to improve care for patients with neurological conditions by reducing variation.
On 15 October 2025, the National Institute for Health and Care Excellence published new guidance, titled Rehabilitation for chronic neurological disorders including acquired brain injury. The guideline covers rehabilitation in all settings for children, young people, and adults with a chronic neurological disorder, neurological impairment, or disabling neurological symptoms resulting from acquired brain injury, spinal cord injury, peripheral nerve disorder, progressive neurological disease, or FND. Further information is available at the following link:
https://www.nice.org.uk/guidance/indevelopment/gid-ng10181
Asked by: Daisy Cooper (Liberal Democrat - St Albans)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve access to (a) services and (b) support for people affected by Functional Neurological Disorder.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
The majority of services for people with neurological conditions, including functional neurological disorder (FND), are commissioned locally. Integrated care board (ICB) commissioners are best placed to configure services for their populations, supported by clinical guidance.
NHS England’s Neuroscience Transformation Programme is supporting ICBs to deliver the right services, at the right time for all neurology patients, which includes providing care closer to home.
NHS England’s Getting It Right First Time Programme for Neurology and RightCare Toolkits, including the Progressive Neurological Conditions Toolkit, the Headache and Migraine Toolkit, and the Epilepsy Toolkit, aim to improve care for patients with neurological conditions by reducing variation.
The National Institute for Health and Care Excellence is currently developing the guidance Rehabilitation for chronic neurological disorders including acquired brain injury, which is expected to be published in October 2025. The guideline covers rehabilitation in all settings for children, young people, and adults with a chronic neurological disorder, neurological impairment, or disabling neurological symptoms resulting from acquired brain injury, spinal cord injury or peripheral nerve disorder, progressive neurological disease, or FND. Further information is available at the following link:
https://www.nice.org.uk/guidance/indevelopment/gid-ng10181
Asked by: Laura Kyrke-Smith (Labour - Aylesbury)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment he has made of the effectiveness of the national spinal cord injury database.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
The effectiveness of the National Spinal Cord Injury Database (NSCID) is kept under review and is subject to small incremental improvements to reflect changes to spinal cord injury services, and to maintain compliance with legislation. NHS England has been working with spinal cord injury charities to provide them with data within the parameters of information governance, UK General Data Protection Regulation (GDPR), data security, and data protection legislation, and data sharing agreements are in place.
Plans to enable patients to connect with charities are in development, which will require working in close collaboration with clinicians who will discuss the option of connecting the patient with a charity at the appropriate moment in their treatment pathway. NHS England has processes in place which enable stakeholders to request access to data held in the NSCID. These processes are compliant with existing information governance, UK GDPR, data protection, and data security legislation and policies. Each request for access to data is assessed in accordance with legislation and accompanying policies.
Asked by: Laura Kyrke-Smith (Labour - Aylesbury)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether he has made an assessment of the potential merits of providing access to the national spinal cord injury database to (a) charities and (b) other stakeholders.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
The effectiveness of the National Spinal Cord Injury Database (NSCID) is kept under review and is subject to small incremental improvements to reflect changes to spinal cord injury services, and to maintain compliance with legislation. NHS England has been working with spinal cord injury charities to provide them with data within the parameters of information governance, UK General Data Protection Regulation (GDPR), data security, and data protection legislation, and data sharing agreements are in place.
Plans to enable patients to connect with charities are in development, which will require working in close collaboration with clinicians who will discuss the option of connecting the patient with a charity at the appropriate moment in their treatment pathway. NHS England has processes in place which enable stakeholders to request access to data held in the NSCID. These processes are compliant with existing information governance, UK GDPR, data protection, and data security legislation and policies. Each request for access to data is assessed in accordance with legislation and accompanying policies.
Asked by: Amanda Hack (Labour - North West Leicestershire)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what recent progress he has made on ensuring that (a) patients and (b) families affected by brain aneurysms receive adequate (i) screening, (ii) treatment, (iii) care, (iv) long-term monitoring and (v) rehabilitation.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
It is the responsibility of integrated care boards (ICBs) to make available appropriate provision to meet the health and care needs of their local population, including services for people with brain aneurysms, as they are best placed to make decisions according to local need. The process of commissioning services should take into account best practice guidance, including that published by the National Institute for Health and Care Excellence (NICE).
Nationally, there are several initiatives that are supporting improvements to neurological services more generally. NHS England’s Getting It Right First Time Neurology Programme aims to reduce unwarranted variation and improve efficiency across neurological services, through data-driven analysis and best practice sharing. Additionally, NHS England’s Neurology Transformation Programme is supporting integrated care systems to transform neurology services by promoting integrated care, prevention, and early intervention.
NICE is currently developing the guidance Rehabilitation for chronic neurological disorders including acquired brain injury, which is expected to be published in September 2025. The guideline covers rehabilitation in all settings for children, young people, and adults with a chronic neurological disorder, neurological impairment, or disabling neurological symptoms resulting from acquired brain injury, spinal cord injury or peripheral nerve disorder, progressive neurological disease, or functional neurological disorder. Further information is available at the following link:
https://www.nice.org.uk/guidance/indevelopment/gid-ng10181
NICE has also published the guidance Subarachnoid haemorrhage caused by a ruptured aneurysm: diagnosis and management. The guideline focuses on the diagnosis and management of individuals who are suspected of having a subarachnoid haemorrhage (SAH) caused by ruptured aneurysm and includes recommendations on follow-up care and support for patients, their families, and carers.
This guidance also covers familial aneurysms in the context of SAH and recommends that that individuals with two or more first-degree relatives who have had a SAH may be offered screening to detect potential aneurysms. This guidance is available at the following link:
https://www.nice.org.uk/guidance/ng228
The Government expects the healthcare system and commissioners to take NICE guidelines fully into account when designing services for their local population, and to work towards their implementation over time.
Our 10-year health plan will make the three big shifts the National Health Service needs to be prepared for future challenges, from hospital to community care, from analogue to digital, and from sickness to prevention. We are committed to expanding community-based access to tests and scans, promoting a more collaborative service delivery, and enhancing the use of apps and wearable technology. These changes will help people manage their long-term conditions, including brain aneurysms, more effectively and closer to their homes. Earlier diagnosis will play a key role in preventing disease progression and improving outcomes.
Asked by: Amanda Hack (Labour - North West Leicestershire)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that brain aneurysms are (a) recognised and (b) dealt with (i) in the NHS ten-year plan and (ii) by his Department.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
It is the responsibility of integrated care boards (ICBs) to make available appropriate provision to meet the health and care needs of their local population, including services for people with brain aneurysms, as they are best placed to make decisions according to local need. The process of commissioning services should take into account best practice guidance, including that published by the National Institute for Health and Care Excellence (NICE).
Nationally, there are several initiatives that are supporting improvements to neurological services more generally. NHS England’s Getting It Right First Time Neurology Programme aims to reduce unwarranted variation and improve efficiency across neurological services, through data-driven analysis and best practice sharing. Additionally, NHS England’s Neurology Transformation Programme is supporting integrated care systems to transform neurology services by promoting integrated care, prevention, and early intervention.
NICE is currently developing the guidance Rehabilitation for chronic neurological disorders including acquired brain injury, which is expected to be published in September 2025. The guideline covers rehabilitation in all settings for children, young people, and adults with a chronic neurological disorder, neurological impairment, or disabling neurological symptoms resulting from acquired brain injury, spinal cord injury or peripheral nerve disorder, progressive neurological disease, or functional neurological disorder. Further information is available at the following link:
https://www.nice.org.uk/guidance/indevelopment/gid-ng10181
NICE has also published the guidance Subarachnoid haemorrhage caused by a ruptured aneurysm: diagnosis and management. The guideline focuses on the diagnosis and management of individuals who are suspected of having a subarachnoid haemorrhage (SAH) caused by ruptured aneurysm and includes recommendations on follow-up care and support for patients, their families, and carers.
This guidance also covers familial aneurysms in the context of SAH and recommends that that individuals with two or more first-degree relatives who have had a SAH may be offered screening to detect potential aneurysms. This guidance is available at the following link:
https://www.nice.org.uk/guidance/ng228
The Government expects the healthcare system and commissioners to take NICE guidelines fully into account when designing services for their local population, and to work towards their implementation over time.
Our 10-year health plan will make the three big shifts the National Health Service needs to be prepared for future challenges, from hospital to community care, from analogue to digital, and from sickness to prevention. We are committed to expanding community-based access to tests and scans, promoting a more collaborative service delivery, and enhancing the use of apps and wearable technology. These changes will help people manage their long-term conditions, including brain aneurysms, more effectively and closer to their homes. Earlier diagnosis will play a key role in preventing disease progression and improving outcomes.
Asked by: Richard Tice (Reform UK - Boston and Skegness)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether his Department has made an assessment of the adequacy of access to spinal services for patients in Boston and Skegness constituency; and what steps he is taking to ensure that residents can access (a) timely and (b) geographically appropriate spinal care.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
The local acute trust in Lincolnshire, United Lincolnshire Teaching Hospitals NHS Trust (ULTH), does not have a spinal service. Emergency services take non-complex patients with potential spinal issues to the closest accident and emergency within Lincolnshire to be treated or stabilised, but if the patient is assessed at scene as having a spinal injury they will be transported directly to the Tertiary Centre at Nottingham University Hospital (NUH). NUH also provides a spinal consultant who supports ULTH on a weekly basis.
General practitioners in the Skegness and Boston area can refer patients to a local spinal assessment service which completes a full assessment of the patient’s condition with appropriate diagnostics. There are then two pathways for spinal services based on clinical need. Non-complex patients will be offered choice of local acute services and complex patients are offered a choice of the tertiary centres at NUH & Sheffield.
NHS England’s Midlands Regional Team has developed and implemented a network model of care for spinal cord injury (SCI) patients. Specialist clinicians in SCI provide acute care, intervention and training including outreach to local hospitals for patients who need SCI rehabilitation whilst they are waiting for a bed at a specialist SCI centre. SCI rehabilitation for Lincolnshire patients is primarily delivered via the specialist SCI centre in Sheffield. For Lincolnshire, NHS England has recognised that there is a significant clinical gap in these patients being managed locally whilst waiting for a specialist SCI rehabilitation bed. NHS England has allocated funding as part of the Network Model of Care for a post to be based at Lincoln Country Hospital to provide specialist support for Lincolnshire residents. Currently, this post is vacant, but NHS England and the trust are working towards successful recruitment.
Asked by: Gill Furniss (Labour - Sheffield Brightside and Hillsborough)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that women with spinal cord injuries receive adequate (a) breast feeding assistance, (b) breast feeding assistance and (c) other postnatal support.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
The Government will prioritise women’s health, placing women’s equality at the heart of our agenda and ensuring women’s health is never again neglected. Spinal cord injury centres provide life-long services and support, providing ongoing advice and management for those under their care. They provide advice to general maternity services in managing pregnancy in line with individual need, as well as information, advice, and support to women regarding the practical elements of breast feeding, as required.
The Three-Year Delivery plan for Maternity and Neonatal services sets out the vision for women to experience personalised, joined-up, high-quality care right through to the postnatal period with handover to health visiting services and general practices (GPs). According to NHS England guidance, all women who have given birth should be offered a check-up with their GP six to eight weeks after giving birth. The check-up will cover a range of topics such as mental health, physical recovery, breastfeeding, and support with family planning. Women should be provided with practical support and information that reflects how they choose to feed their babies. Providers should ensure that, for women with spinal cord injuries, care is tailored to their individual needs.
NHS England is also rolling out perinatal pelvic health services to reduce rates of perineal tears, and maternal mental health services to provide additional mental health support and improve outcomes for women.
The Department is working closely with 75 local authorities across England, including Sheffield, to improve their infant feeding services, including breastfeeding support, through the Family Hubs and Start for Life programme. These services are helping families to access face-to-face and virtual infant feeding support whenever they need it, and in a location that suits them. This could be at home, in their family hub, or in a hospital setting.
At a national level, families across the United Kingdom can access round-the-clock support and advice on breastfeeding through the National Breastfeeding Helpline.
Asked by: Gill Furniss (Labour - Sheffield Brightside and Hillsborough)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure access to (a) comprehensive healthcare guidance and (b) specialised gynaecological support for people with spinal cord injury including (i) management of menstruation, (ii) contraception options and (iii) safe pregnancy care.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
NHS England Specialised Commissioning has a Clinical Reference Group (CRG) for specialised women’s services that provides clinical advice and leadership for complex obstetrics and maternity, and complex gynaecology and fertility preservation services. Specialist gynaecological services are commissioned in line with the service specification published by the CRG.
Furthermore, there is a CRG for rehabilitation and complex disability and spinal cord injury services. Specialist services for spinal cord injuries are commissioned in line with the service specification published by the CRG. The National Institute for Health and Care Excellence also has guidance on the assessment and early management of spinal cord injuries, which is available at the following link:
https://www.nice.org.uk/guidance/ng41.
Spinal cord injury centres provide life-long services and support, providing ongoing advice and management for those under their care. The service provides advice to general maternity services in managing pregnancy in line with individual need.
We recognise that having a spinal cord injury can create additional challenges for women and girls when it comes to managing their period. Women with spinal cord injuries are provided with menstruation and contraception information and advice during their first inpatient episode of care, and details are included in their discharge plan, which is shared with their general practitioner (GP) or primary care team. Through the spinal cord injury centres and voluntary sector, women have access to female discussion forums.
Both the Multidisciplinary Association of Spinal Cord Injury Professionals and the Spinal Injuries Association have provided free webinars for staff and those with spinal cord injuries, called Menstruation to Menopause.
The Royal College of General Practitioners (RCGP) has published a Women’s Health Library, which brings together educational resources and guidelines on women’s health from the RCGP, the Royal College of Obstetricians and Gynaecologists, and the Faculty of Sexual and Reproductive Healthcare. This resource is continually updated to ensure GPs and other primary healthcare professionals have the most up-to-date advice, to provide the best care for their patients.
The Government will continue to work with the NHS as it delivers its three-year maternity and neonatal plan to grow our maternity workforce, develop a culture of safety, and ensure women and babies receive safe, compassionate care. In the three-year delivery plan for maternity and neonatal services, NHS England set out their ambition that all women should receive personalised, joined-up, high-quality care during pregnancy, birth, and the postnatal period, including access to specialist care when required. Providers should ensure that women with spinal cord injuries have a personalised care and support plan that is tailored to their specific needs and choices and made in conjunction with appropriate specialist input.