Asked by: Baroness Ritchie of Downpatrick (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government whether the Dementia and Frailty Modern Service Framework will establish a single national dementia care pathway, including end of life care and clear minimum service standards.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
We will deliver the first ever Frailty and Dementia Modern Service Framework to deliver rapid and significant improvements in the quality of care and productivity. This will be informed by phase one of the independent commission into adult social care, which is expected this year.
The Frailty and Dementia Modern Service Framework will seek to reduce unwarranted variation and narrow inequality for those living with dementia and will set national standards for dementia care and redirect National Health Service priorities to provide the best possible care and support.
In developing the Modern Service Framework for Frailty and Dementia, we will be considering existing guidance, including the D100 Pathway Assessment tool, which continues the work of the Dementia Care Pathway and covers all elements of the Well Pathway from prevention through to dying well.
Asked by: Baroness Ritchie of Downpatrick (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what plans they have to publish national dementia outcomes for neighbourhood health services requiring integrated care boards to demonstrate timely access to specialist, community-based dementia support.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
In developing the Modern Service Framework for Frailty and Dementia, we are engaging with a wide group of partners to understand what should be included to ensure the best outcomes for people living with dementia. As part of this exercise, we are considering all options to help reduce variation, including reviewing metrics and targets.
The Neighbourhood Health Service will be the driving force behind our new Genomics Population Health Service; and data will increasingly allow Neighbourhood Health Services to deliver genuinely predictive and pre-emptive care, transforming our care model entirely.
NHS England already collect and publish data about people with dementia at each general practice in England, to enable National Health Service general practitioners and commissioners to make informed choices about how to plan their dementia services around patients’ needs.
The Office for Health Improvement and Disparities Dementia Intelligence Network has also developed a tool for local systems, which includes an assessment of population characteristics such as rurality and socio-economic deprivation. This enables systems to investigate local variation in diagnosis and take informed action to enhance their diagnosis rates. The tool is available via the NHS Futures Collaboration platform.
Asked by: Baroness Ritchie of Downpatrick (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what steps they will take to publish national guidance on the proportion of families accessing specialist dementia support within a defined period following diagnosis.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
The Government wants a society where every person with dementia receives high-quality, compassionate care from diagnosis through to the end of life.
We will deliver the first ever Frailty and Dementia Modern Service Framework to deliver rapid and significant improvements in quality of care and productivity. This will be informed by phase one of the independent commission into adult social care, which is expected this year.
The Frailty and Dementia Modern Service Framework will seek to reduce unwarranted variation and narrow inequality for those living with dementia and will set national standards for dementia care and redirect National Health Service priorities to provide the best possible care and support.
In developing the Frailty and Dementia Modern Service Framework, we are engaging with a wide group of partners to understand what should be included, to ensure the best outcomes for people living with dementia and their families and carers. As part of this exercise, we are considering all options to help reduce variation, including reviewing metrics and targets.
Asked by: Baroness Ritchie of Downpatrick (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what steps they plan to take to ensure that dementia is explicitly designed into the neighbourhood health model at a national level and to prevent local discretion and variable commissioning decisions in relation to such services.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
This Government is empowering local leaders with the autonomy they need to provide the best services to their local community, including those with dementia. This is why we have published the D100: Assessment Tool Pathway programme, which brings together multiple resources into a single, consolidated tool. This will help simplify best practice for system leaders and help create communities and services where the best possible care and support is available to those with dementia.
We will deliver the first ever Modern Service Framework for Frailty and Dementia to deliver rapid and significant improvements in quality of care and productivity, informed by phase one of the independent commission into adult social care, which is expected this year. The framework will seek to reduce unwarranted variation and narrow inequality for those living with dementia.
Neighbourhood Health provides the unifying framework that brings together what is already underway across primary care, community services, urgent care, prevention, digital, estates and population health into a single, coherent model focused on improved access, experience and outcomes.
Asked by: Baroness Ritchie of Downpatrick (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what steps they plan to take to ensure that every neighbourhood health service in England includes dementia specialism within multidisciplinary teams, with dementia specialist nursing as a core component.
Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)
Neighbourhood Health Services will bring together integrated neighbourhood teams of professionals and partners closer to people’s home, including nurses, doctors, social care workers, pharmacists, health visitors, employment support, children’s services, and more, to work together to support people and places to improve their health and wellbeing.
Neighbourhood Health provides the unifying framework that brings together what is already underway across primary care, community services, urgent care, prevention, digital, estates and population health into a single, coherent model focused on improved access, experience and outcomes.
The provision of dementia health care services is the responsibility of local integrated care boards (ICBs) and may include specialist nurses. We expect ICBs to commission services based on local population needs, taking account of National Institute for Health and Care Excellence guidelines.
Asked by: Jim Shannon (Democratic Unionist Party - Strangford)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to improve dementia care in hospitals.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
We want a society where every person with dementia, and their families and carers, receive high-quality, compassionate care, from diagnosis through to end of life.
That is why the Government is committed to improving dementia care and is empowering local leaders with the autonomy they need to provide the best services to their local community, including those with dementia.
We have published the D100: Assessment Tool Pathway programme, which brings together multiple resources into a single, consolidated tool. This will help simplify best practice for system leaders and will help create communities and services where the best possible care and support is available to those with dementia. The tool can be found at the following link:
We will also deliver the first ever Frailty and Dementia Modern Service Framework to deliver rapid and significant improvements in quality of care and productivity. This will be informed by phase one of the independent commission into adult social care, which is expected this year.
The Frailty and Dementia Modern Service Framework will seek to reduce unwarranted variation and narrow inequality for those living with dementia, it will set national standards for dementia care and redirect National Health Service priorities to provide the best possible care and support.
Asked by: Liz Jarvis (Liberal Democrat - Eastleigh)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether he has made an assessment of the potential merits of publishing national dementia outcomes for neighbourhood health services and requiring integrated care boards to demonstrate timely access to specialist, community-based dementia support.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
NHS England already collect and publish data about people with dementia at each general practice in England, to enable National Health Service general practitioners (GPs) and commissioners to make informed choices about how to plan their dementia services around patients’ needs.
The Office for Health Improvement and Disparities Dementia Intelligence Network has also developed a tool for local systems, which includes an assessment of population characteristics such as rurality and socio-economic deprivation. This enables systems to investigate local variation in diagnosis and take informed action to enhance their diagnosis rates. The tool is available via the NHS Futures Collaboration platform.
This Government is empowering local leaders with the autonomy they need to provide the best services to their local community, including those with dementia. That is why we have published the D100: Assessment Tool Pathway programme, which brings together multiple resources into a single, consolidated tool. This will help simplify best practice for system leaders and help create communities and services where the best possible care and support is available to those with dementia. The D100: Pathway Assessment Tool is available at the following link:
We are making progress on building a National Care Service based on higher quality of care, greater choice and control, and joined-up neighbourhood services, with around £4.6 billion of additional funding available for adult social care by 2028/29 compared to 2025/26.
We are strengthening join-up between health and social care services, so that people experience more integrated and person-centred care, by developing neighbourhood health services and reforming the Better Care Fund. This will be fortified by improved national data and digital infrastructure to ensure health and care staff can access real-time information to improve the safety and quality of care.
Asked by: Andrew Mitchell (Conservative - Sutton Coldfield)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help improve the availability of clinical trials for dementia patients.
Answered by Zubir Ahmed - Parliamentary Under-Secretary (Department of Health and Social Care)
Government responsibility for delivering dementia research is shared between the Department of Health and Social Care (DHSC), with research delivered via the National Institute for Health and Care Research (NIHR), and the Department for Science, Innovation and Technology, with research delivered via UK Research and Innovation.
DHSC is committed to ensuring that all patients, including those with dementia, have access to cutting-edge clinical trials and innovative, lifesaving treatments.
DHSC funds research and research infrastructure through the NIHR which supports National Health Service patients, the public, and NHS organisations across England to participate in high-quality research, including clinical trials into dementia
As an example, DHSC, via the NIHR, is investing nearly £50 million into the Dementia Trials Network, a coordinated network of trial sites across the United Kingdom, which will offer people with dementia the opportunity to take part in early phase clinical trials irrespective of where they live. This is complemented by the £20 million Dementia Trials Accelerator, designed to position the United Kingdom as the destination of choice for late phase clinical trials in dementia and neurodegenerative diseases.
The NIHR also funds research infrastructure which supports patients and the public to participate in high-quality research, including research on dementia. For example, the aim of the University College London Hospitals’ Biomedical Research Centre’s dementia theme is to develop novel treatments through precision medicine.
In partnership with Alzheimer’s Society, Alzheimer’s Research UK, and Alzheimer Scotland, the NIHR also delivers Join Dementia Research, an online platform which enables the involvement of people with and without a dementia diagnosis, as well as carers, to take part in a range of important research, including studies evaluating potential treatments for dementia.
The NIHR also provides an online service called 'Be Part of Research', which promotes participation in health and social care research by allowing users to search for relevant studies, including those with dementia, and register their interest.
The Government’s Dame Barbara Windsor Dementia Goals programme, with up to £150 million expected to be allocated to, or aligned with it, aims to speed up the development of new treatments for dementia and neurodegenerative conditions by accelerating innovations in biomarkers, clinical trials, and implementation.
Asked by: Richard Burgon (Labour - Leeds East)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help ensure the accurate identification, collection and annual publication of data on the number of people living with young onset dementia.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
The dementia diagnosis rate for patients aged 65 years old and over is calculated and published monthly via the Primary Care Dementia Data publication, which is available at the following link:
https://digital.nhs.uk/data-and-information/publications/statistical/primary-care-dementia-data
While the dementia diagnosis rate is not calculated for patients aged under 65 years old, the publication does include a monthly count of the number of patients aged 65 years old and under who do have a dementia diagnosis on their patient record, and this is expressed as a raw count and as a percentage of registered patients aged between zero and 64 years old.
Data quality is generally considered to be very good for all General Practice Extraction Service (GPES) extracts. Between 90 and 100% of practices in England participate each month. Data collected is 100% complete, as it is automated extract GPES extracts data for all patients who have specified codes on their record. Further information about the data quality for the statistical publication can be found at the following link:
We will deliver the first ever Modern Service Framework for Frailty and Dementia to deliver rapid and significant improvements in quality of care and productivity. This will be informed by phase one of the independent commission into adult social care, which is expected this year.
In developing the Modern Service Framework for Frailty and Dementia, we are engaging with a wide group of partners to understand what should be included to ensure the best outcomes for people living with dementia. As part of this exercise, we are considering all options to help reduce variation, including reviewing data, metrics, and targets.
Asked by: Jim McMahon (Labour (Co-op) - Oldham West, Chadderton and Royton)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment has been made of the adequacy of public service response to support for missing from home dementia patients.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
Tackling this issue requires a multi-agency response and co-ordination across a range of policies and operational partners including the health care sector, local authorities and the police.
The provision of specific dementia health care services is the responsibility of local integrated care boards (ICBs). We expect ICBs to commission services based on local population needs, taking account of National Institute for Health and Care Excellence guidelines.
Many police forces are now participating in the Herbert Protocol, with partner agencies, to assist in locating missing vulnerable people living with dementia. The Herbert Protocol is a national scheme by police forces in partnership with other agencies which encourages carers to compile useful information which could be used in the event of a vulnerable person, living with dementia, going missing. Carers, family members and friends can complete in advance, a form recording vital details, such as medication required, mobile numbers, places previously located, a photograph etc. In the event of a person going missing this information can then easily be provided to the police to assist them in searching for the person, saving valuable time.
The Government is harnessing digital technology to transform adult social care, helping people to stay independent in their homes, joining up services and improving the quality of care provided.
In January, ministers announced immediate steps the Department is taking to improve adult social care. These reforms build upon progress over the last four years to drive adoption of digital social care records by registered care providers to 80%, from a start point of 41% in December 2021, and to test, scale and evaluate innovative care technologies.
In the next year, the Government will set new national standards for care technologies and produce trusted guidance, so that people can confidently buy and use technology which supports them or the people they care for.