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Departmental Publication (Transparency)
Home Office

Apr. 24 2023

Source Page: Non-technical summaries granted in 2022
Document: Non-technical summaries: projects granted in 2022, January to June (PDF)

Found: , myelodysplastic syndrome, acute myeloid leukaemia) as well as inherited blood diseases (e.g., sickle


Non-Departmental Publication (Statistics)
NHS England

Mar. 23 2023

Source Page: Q1 (1 April to 30 June 2022) ANNB and YPA screening KPI data
Document: (ODS)

Found: Q1 (1 April to 30 June 2022) ANNB and YPA screening KPI data


Non-Departmental Publication (Statistics)
NHS England

Mar. 23 2023

Source Page: Q1 (1 April to 30 June 2022) ANNB and YPA screening KPI data
Document: Q1 (1 April to 30 June 2022) ANNB and YPA screening KPI data (webpage)

Found: Q1 (1 April to 30 June 2022) ANNB and YPA screening KPI data


Non-Departmental Publication (Statistics)
NHS England

Mar. 23 2023

Source Page: Q1 (1 April to 30 June 2022) ANNB and YPA screening KPI data
Document: (ODS)

Found: Q1 (1 April to 30 June 2022) ANNB and YPA screening KPI data


Written Question
Sickle Cell Diseases: Training
Friday 17th March 2023

Asked by: Janet Daby (Labour - Lewisham East)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if he will make an assessment of the potential impact of redeploying staff to other parts of country on the ability of medical students to participate in sickle cell specialist practical training.

Answered by Neil O'Brien

No specific assessment has been made and there are no plans to do so. The standard of training for health care professionals is the responsibility of the health care independent statutory regulatory bodies such as the General Medical Council, the Nursing and Midwifery Council and Health and Care Professions Council, which are independent statutory bodies. These have the general function of promoting high standards of education and co-ordinating all stages of education to ensure that health and care students and newly qualified healthcare professionals are equipped with the knowledge, skills and attitudes essential for professional practice.

The healthcare regulators set the standards expected at undergraduate level and approve courses. In so doing, they play an important role in setting out the knowledge, skills and behaviours that healthcare professionals must be able to demonstrate. The Higher Education Institutes write and teach the curricula content that enables their students to meet the regulators standards.

Recent improvements have been made to the postgraduate haematology medical curriculum, with understanding sickle cell disease and thalassemia now described in the curriculum as core competencies.

Additional training is also available for medical trainees across England to receive specialist training to treat people with sickle cell disease. This includes an e-learning programme delivered by Health Education England which has specific courses such as the NHS Screening Programme and includes the Sickle Cell and Thalassaemia Screening Programme.


Written Question
Sickle Cell Diseases: Health Services
Tuesday 14th March 2023

Asked by: Janet Daby (Labour - Lewisham East)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the ability of NHS staff to identify when a patient is undergoing a Sickle Cell crisis.

Answered by Neil O'Brien

No assessment has been made. NHS England and Health Education England (HEE) have invested in raising awareness of sickle cell disease amongst medical staff. NHS England’s Health Inequalities improvement team launched a sickle cell awareness campaign ‘Can you tell it’s sickle cell’ in June 2022 and continues to promote and monitor its reach. A sickle cell disorder e-learning resource has also been developed and is now available across the National Health Service.

There have been recent improvements to the haematology medical curriculum, with understanding sickle cell and thalassaemia now described in the curriculum as core competencies. HEE has additionally held discussions with the Royal Colleges of Pathology and Physicians to ensure that this curriculum is deliverable across all four nations, in line with General Medical Council standards.

In addition to the above e-learning, HEE now provides two ‘e-Learning for healthcare’ programmes with sickle cell content, NHS Screening Programmes, including the Sickle Cell and Thalassaemia Screening Programme and the Maternity Support Worker Programme.


Written Question
Sickle Cell Diseases: Health Services
Tuesday 14th March 2023

Asked by: Janet Daby (Labour - Lewisham East)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to increase awareness of Sickle Cell amongst healthcare professionals outside of London.

Answered by Neil O'Brien

No assessment has been made. NHS England and Health Education England (HEE) have invested in raising awareness of sickle cell disease amongst medical staff. NHS England’s Health Inequalities improvement team launched a sickle cell awareness campaign ‘Can you tell it’s sickle cell’ in June 2022 and continues to promote and monitor its reach. A sickle cell disorder e-learning resource has also been developed and is now available across the National Health Service.

There have been recent improvements to the haematology medical curriculum, with understanding sickle cell and thalassaemia now described in the curriculum as core competencies. HEE has additionally held discussions with the Royal Colleges of Pathology and Physicians to ensure that this curriculum is deliverable across all four nations, in line with General Medical Council standards.

In addition to the above e-learning, HEE now provides two ‘e-Learning for healthcare’ programmes with sickle cell content, NHS Screening Programmes, including the Sickle Cell and Thalassaemia Screening Programme and the Maternity Support Worker Programme.


Deposited Papers

Feb. 16 2023

Source Page: A phase 1/2/3, placebo-controlled, randomized, observer-blind, dose-finding study to evaluate the safety, tolerability, immunogenicity, and efficacy of SARS-CoV-2 RNA vaccine candidates against COVID-19 in healthy individuals. (3 docs).
Document: Clinical_Study_Report_Part_2.pdf (PDF)

Found: randomized, observer-blind, dose-finding study to evaluate the safety, tolerability, immunogenicity, and


Written Question
Sickle Cell Diseases: Prescriptions
Wednesday 26th October 2022

Asked by: Baroness Benjamin (Liberal Democrat - Life peer)

Question to the Department of Health and Social Care:

To ask His Majesty's Government, further to the All Party Parliamentary Group for Sickle Cell and Thalassaemia report No One's Listening: An Inquiry into the Avoidable Deaths and Failures of Care for Sickle Cell Patients in Secondary Care, published on 15 November 2021, what assessment they have made of the impact of prescription charges for people with sickle cell disease.

Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)

No specific assessment has been made and there are no current plans to review or extend the prescription charge medical exemptions list to include long term conditions, such as sickle cell disease.

Approximately 89% of prescription items are currently dispensed free of charge and there are a range of exemptions from prescription charges for which those with sickle cell disease may meet the eligibility criteria and be in receipt of free prescriptions. To support those who do not qualify for an exemption from prescription charges, the cost of prescriptions can be capped by purchasing a prescription pre-payment certificate, which can be paid for in instalments. A holder of a 12-month certificate can get all the prescriptions they need for just over £2 per week. Additionally, those on a low income who do not qualify for an exemption from prescription charges can also seek help under the NHS Low Income Service, which provides help with health costs on an income-related basis.


Written Question
Sickle Cell Diseases: Training
Wednesday 19th October 2022

Asked by: Janet Daby (Labour - Lewisham East)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether her Department is taking steps to help ensure that medical trainees receive specialist practical training to treat people with sickle cell disease in (a) London and (b) the South East.

Answered by Robert Jenrick

Each medical school sets its own undergraduate curriculum, which must meet the standards set by the General Medical Council (GMC) in its Outcomes for Graduates. The GMC would expect that, in fulfilling these standards, newly qualified doctors are able to identify, treat and manage any care needed, including relating to sickle cell disease.

Recent improvements have also been made to the postgraduate haematology medical curriculum, with understanding sickle cell disease and thalassemia now described in the curriculum as core competencies.

Additional training is also available for medical trainees across England, including London and the South East, to receive specialist training to treat people with sickle cell disease. This includes an e-learning programme delivered by Health Education England which has specific courses such as the NHS Screening Programme and includes the sickle cell and thalassaemia Screening Programme.