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Arms Length Body Publication (In consultation)
NICE

Sep. 19 2024

Source Page: Fosdenopterin for treating molybdenum cofactor deficiency type A [ID6264]
Publication Type: Evaluation consultation
Document: Committee papers PDF 5.95 MB (webpage)

Found: Neurologist £382.16 Neurology appointment.


Written Question
Migraines: Medical Treatments
Monday 16th September 2024

Asked by: John Hayes (Conservative - South Holland and The Deepings)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure the adequacy of access to (a) specialist care and (b) NICE-approved treatments for patients with migraine.

Answered by Andrew Gwynne - Parliamentary Under-Secretary (Department of Health and Social Care)

NHS England is responsible for allocating funding to the integrated care boards (ICBs), which are in turn responsible for commissioning specialist migraine services that meet the needs of their populations, subject to local prioritisation and funding.

The process of commissioning services should take into account best practice guidance, such as the National Institute for Health and Care Excellence’s (NICE) guidance on the diagnosis and management of headaches in over 12-year-olds, which was updated in December 2021. The NICE’s guideline provides recommendations on principles of care for people with a migraine, which may include a multidisciplinary approach to care, based on clinical need, and involving access to a range of health professionals, including specialist neurology nurses, neurologists, and pain management specialists. Whilst NICE guidelines are not mandatory, the Government expects the healthcare system to take them fully into account when designing services.

Through its Technology Appraisals Programme, the NICE has recommended a number of calcitonin gene-related peptide inhibitors for the treatment of migraines, and these have been made routinely available to eligible National Health Service patients in England. Commissioners have a statutory responsibility to make funding available for a drug or treatment recommended by the NICE’s Technology Appraisals Programme within 90 days of publication of guidance, unless specified in the guidance.


Departmental Publication (Research and Statistics)
Department of Health and Social Care

Sep. 12 2024

Source Page: Independent investigation of the NHS in England
Document: (PDF)

Found: maxillo- facial surgery General Medicine Gastroenterology Cardiology Dermatology Thoracic Medicine Neurology


Scottish Government Publication (FOI/EIR release)
Chief Operating Officer, NHS Scotland Directorate

Sep. 09 2024

Source Page: Communications regarding Long Covid: FOI release
Document: FOI 202400418983 - Information released - Documents (PDF)

Found: People with long COVID have access to a wide r ange of services including respiratory, neurology, rheumatology


Non-Departmental Publication (Statistics)
Medicines and Healthcare products Regulatory Agency

Sep. 05 2024

Source Page: Valproate: Paternal exposure to valproate and risk of neurodevelopmental disorders and congenital malformations in offspring
Document: (PDF)

Found: Neurology 2024: volume 102, page e208076. Dreier JW and others.


Non-Departmental Publication (News and Communications)
Medicines and Healthcare products Regulatory Agency

Sep. 05 2024

Source Page: Valproate use in men: as a precaution, men and their partners should use effective contraception
Document: 2018 European review (PDF)

Found: Scientific advisory group on Neurology ................................ ............................


Written Question
Neurology: Employment
Thursday 5th September 2024

Asked by: John Hayes (Conservative - South Holland and The Deepings)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if he will have discussions with the Secretary of State for Work and Pensions on supporting employment opportunities for people with functional neurological disorders.

Answered by Andrew Gwynne - Parliamentary Under-Secretary (Department of Health and Social Care)

Long-term sickness continues to be the most common reason for economic inactivity among the working age population. We know that appropriate work is generally good for health and wellbeing. We want everyone to get work and get on in work, whoever they are and wherever they live. We want people to avoid poverty, and for this to happen we must ensure that disabled people and people with health conditions can work and save for as long as they wish and are able to.

Disabled people and people with health conditions are a diverse group so access to the right work and health support, in the right place, at the right time, is key.

The Department for Work and Pensions and the Department for Health and Social Care are committed to supporting disabled people and people with long-term health conditions, including functional neurological disorders (FND), and have a range of support available so individuals can stay in work and get back into work, including those that join up employment and health systems.

Measures include joining up health and employment support around the individual through Employment Advisors in NHS Talking Therapies and Individual Placement and Support in Primary Care, as well as support from Work Coaches and Disability Employment Advisers in Jobcentres and Access to Work grants. We also support the role employers play in increasing employment opportunities and supporting disabled people and people with health conditions to be part of the workforce, including through increasing access to Occupational Health, a digital information service for employers and the Disability Confident scheme. The information service is available at the following link:

https://www.support-with-employee-health-and-disability.dwp.gov.uk/support-with-employee-health-and-disability

As part of our Get Britain Working plan, more disabled people and those with health conditions will be supported to enter and stay in work, by devolving more power to local areas so they can shape a joined-up work, health, and skills offer that suits the needs of the people they serve.

The National Institute for Health and Care Excellence guidelines on FND state that symptoms of FND include recurrent dizziness, limb or facial weakness, numbness and tingling, difficulties with memory and concentration. Severity of symptoms also fluctuates and increases during times of stress. It is, therefore, important that employers provide appropriate adjustments for people with neurological conditions, including FND, to better support them in the workplace.

The two Departments will work together to support people with long-term conditions, including FND, back into work.


Scottish Government Publication (FOI/EIR release)
Chief Operating Officer, NHS Scotland Directorate

Sep. 02 2024

Source Page: NHS use of independent sector providers: FOI release
Document: FOI 202400410803 - Information Released - Annex (PDF)

Found: [Redacted s.30(b)(ii)] [Out of Scope] [Out of Scope] Insourcing [Redacted s.33(1)(b)] 3 Neurology


Scottish Government Publication (FOI/EIR release)
Healthcare Quality and Improvement Directorate

Sep. 02 2024

Source Page: Minutes for the Neurological Conditions Team covering years 2018-2024: FOI release
Document: FOI 202400408922 - Information released - Annex (PDF)

Found: and biopsycho medical model • Looked at SHA Care Framework – considering how relevant for ME • Neurology


Arms Length Body Publication (In consultation)
NICE

Sep. 02 2024

Source Page: MRI-guided focused ultrasound thalamotomy for treating moderate to severe tremor in Parkinson's
Publication Type: Interventional procedure consultation: Extended
Document: Specialist advice questionnaires PDF 2.67 MB (webpage)

Found: Most are done in Neurology Clinic. But the QOL measures can be remote / video questionnaires.