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Open Petition since 8th June 2023

Provide insulin pumps to all children with type 1 diabetes in Scotland - 427 Signatures

Scotland has more than 327,000 people with diabetes, of whom 10% have type 1 diabetes. Almost 13,500 people died from diabetes in 2020; this is a major concern. People need assurances that they will have equitable access to monitoring devices to help manage their diabetes and prevent injury or death.

There is currently a postcode lottery with the provision of vital continuous monitoring pumps for children with diabetes. Some Scottish NHS Boards provide the pumps and have no waiting lists for children with type 1 diabetes, while others have only a 2 or 3 month wait.

NHS Highland has waiting lists for children up to 3 years. NHS Highland currently has 25 children waiting for a diabetic insulin pump and only provide funding for 8 pumps a year.

There are currently 167 children diagnosed with type 1 diabetes in NHS Highland areas; Caithness itself has an average of 20 children a year diagnosed with type 1 diabetes.

This indicates an equity issue for children receiving lifesaving diabetic insulin pumps in the NHS Highland area.

Found: Provide insulin pumps to all children with type 1 diabetes in Scotland


Scottish Parliament Written Question
S6W-19956
Wednesday 2nd August 2023

Asked by: Choudhury, Foysol (Scottish Labour - Lothian)

Question

To ask the Scottish Government what action it is taking to reduce any inequalities of access to diabetes technologies, in light of reported concerns that people may be dissuaded from using such technology if they have to pay for insulin pump batteries.

Answered by Minto, Jenni - Minister for Public Health and Women's Health

Our Diabetes Improvement Plan, published in 2021, contains a key commitment to increase access to existing and emerging diabetes technologies. Between 2016 and 2022, we have invested £29.6 million of additional funding specifically to support this.

The new Accelerated National Innovation Adoption (ANIA) pathway workstream will also support accelerated distribution of Closed Loop Systems, in a more equitable way across Scotland, by creating a new national onboarding team. We are aware there are variations in approach to the cost of replacement batteries for insulin pumps across NHS Boards and we have asked Boards and healthcare professionals to improve equity of access to technologies. Through the ANIA pathway workstream, the Scottish Government has invested a further £350,000 to accelerate the distribution of Closed Loop Systems.

Not all insulin pumps require batteries, and we expect NHS Boards and staff to support patients to find the most appropriate technology for their specific circumstances.

We are committed to supporting families and households who are facing the increased cost of living, and this includes tackling the barriers people face when trying to access diabetes technologies.


Non-Departmental Publication (News and Communications)
Medicines and Healthcare products Regulatory Agency

Jul. 24 2023

Source Page: Letters and medicine recalls sent to healthcare professionals in June 2023
Document: Tresiba FlexTouch 100 units/mL solution for injection (insulin degludec): Supply Shortage in the UK (PDF)

Found: HEALTHCARE PROFESSIONAL COMMUNICATION Tresiba® FlexTouch® 100 units/mL solution for injection (insulin


Scottish Parliament Select Committee
Written Submission, 20 November 2023
Confederation of Shipbuilding and Engineering Unions Submission - Scottish Employment Injuries Advisory Council Bill

Correspondence Nov. 20 2023

Committee: Social Justice and Social Security Committee

Found: Finally, we come to the endocrine system, the system that controls the production of hormones and insulin


Non-Departmental Publication (News and Communications)
Medicines and Healthcare products Regulatory Agency

Jun. 27 2023

Source Page: National Patient Safety Alert: Potential risk of underdosing with calcium gluconate in severe hyperkalaemia (NatPSA/2023/007/MHRA)
Document: hyperkalaemia kits (PDF)

Found: A dose of 10 units of soluble insulin has been used in the majority of published studies of insulin-glucose


Departmental Publication (Transparency)
Ministry of Defence

Sep. 05 2023

Source Page: FOI responses published by MOD: week commencing 5 September 2023
Document: Annual medical discharge in UK armed forces (PDF)

Found: <1 0 0 ~ 1 - Of which non-insulin-dependent <1 ~ <1 0 0 Mental and behavioural disorders 389 23 99


Deposited Papers

Jul. 07 2008

Source Page: Making every young person with diabetes matter. Report of the Children and Young People with Diabetes Working Group. 76 p.
Document: DEP2008-1820.pdf (PDF)

Found: Day-to-day management of food, insulin, physical activity and mood can affect a wide range of their activities


Non-Departmental Publication (Statistics)
Northern Ireland Statistics and Research Agency

Feb. 29 2024

Source Page: Prescription Cost Analysis for Northern Ireland, 2023
Document: (Excel)

Found: Other appliances 21180110.290.291Belfast4SURE hypodermic insulin


Deposited Papers

May. 13 2008

Source Page: Table showing number of emergency hospital admissions where there was a primary diagnosis for diabetic ketoacidosis or hypogylcaemic coma for each year from 2002/03 to 2006/07, broken down by (a) age, (b) sex, (c) type of diabetes and (d) primary care trust. 21 p.
Document: DEP2008-1256.xls (Excel)

Found: performed in the Independent sector in England commissionedby English NHS.Diabetic KetoacidosisE101 Insulin-dependent


Written Question
Diabetes: Health Services
Tuesday 12th September 2023

Asked by: Andrew Rosindell (Conservative - Romford)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve NHS diabetes care (a) nationally and (b) in Romford constituency.

Answered by Will Quince

Progress continues to be made for patients with type 1 diabetes, with over 65% of people currently using flash glucose monitoring to help manage their condition. 97% of pregnant women are being offered flash glucose monitoring and 78% accept the offer.

The NHS Diabetes Prevention Programme supports those identified at high risk of type 2 diabetes to reduce their risk. Data as of February 2023 shows a 20% reduction in risk for those who are referred to the programme compared to those who are not.

The local National Health Service in Romford, Havering and the neighbouring boroughs of Barking and Dagenham and Redbridge has set out a series of improvements to care for patients with diabetes. These include home-based urine tests, to help prevent renal failure in patients with diabetes, especially those in hard to reach populations such as the housebound.

In addition, plans are in place for a new transition service for children and young adults from ages 12 to 25 that will equip them for later life and will be supported by new capabilities for insulin pumps and continuous glucose monitoring.

A new diabetes foot pathway has been jointly adopted by local general practices and hospital and community care clinicians across the area, including in Romford.